2012 Top-Rated Nonprofit

Pulmonary Fibrosis Foundation

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Nonprofit Overview

Causes: Health, Lung Diseases, Unknown

Mission: The mission of the Pulmonary Fibrosis Foundation (PFF) is to help find a cure for idiopathic pulmonary fibrosis (IPF), advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families.

Community Stories

4 Stories from Volunteers, Donors & Supporters

2

Donna62 Client Served

Rating: 5

11/07/2012

I was diagnosed in July and the PFF has been there from the beginning and have given me hope and great information. The people are loving and caring. I would recommend it to everyone.

Peg H. Client Served

Rating: 5

11/07/2012

It was ten days before Christmas when I had an open lung biopsy that brought the diagnosis of Pulmonary Fibrosis. Feeling alone and scared as I read the hits that came up when I Googled it, I felt a sense of reassurance when I found that there was a "Foundation" dedicated to this specific cause. Through them I've been able to connect through social media to a number of other people whose lives have been changed by this dreadful disease. It is heartbreaking when we lose one of our "family" members and we can't help but wonder if we're next. Knowing that the PFF will carry on in research and searching for a cure helps me sleep at night. I know that if my son or grandson should present with this, they'll have more options than I've had. I also believe my mother had been misdiagnosed when she died in 1974. Our symptoms were too eerily familiar. At least I got a correct diagnosis and have benefitted from supplemental oxygen, etc. I can't imagine how lonely and despondent I'd be if I hadn't come across this wonderful Foundation and touched base with the professionals and volunteers on their staff. May God Bless them mightily for their efforts and their commitment to excellence. ((Hugs))

Perry D. Client Served

Rating: 5

11/07/2012

They shine a light on a disease that few have heard of. Thanks for all that you do including the medical grants that may someday result in a cure for a disease I have had for five years.

stephenawald Client Served

Rating: 5

11/05/2012

Idiopathic Pulmonary Fibrosis(IPF)is a terrible diagnosis---like cancer but without treatment or cure. The PFF guides each of us to best current information...including Clinical Trials, Support Groups, world experts. They answer our questions about options...including lung transplants. They're there for us person-to-person to answer questions...or direct us to where we can get answers. PFF is the worldwide leader in Consilience(the Unity of Knowledge)...sponsoring conferences for leading researchers..OPEN TO PATIENTS. It's made a great difference in my life, shifting my focus to how I might be helpful to others confronted with this disease.

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