The Danny Did Foundation is aggressively spreading knowledge about SUDEP. Even within the Epilepsy community, too few people knew that epilepsy could kill. I have donated personally, referred people, and now am spearheading a fundraiser - I have increased my level of involvement because their mission is clear, their goals and activities are transparent, and they already have a track record of success. This is how a grass roots non-profit should work - making a big difference in a very tangible way right from the start.
The Danny Did Foundation is an outstanding organization comprised of caring, thoughtful, forward-looking, and motivated folks that work tirelessly towards their goals:
(1) advancing awareness of Sudden Unexplained Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and those afflicted by seizures, and (2) the mainstreaming of seizure detection and prediction devices as well as other technologies that may assist in preventing deaths caused by seizures)
Every decision they make, every interaction they have, every dollar they spend goes towards achieving their goals. Every time I talk to those associated with Danny Did or attend one of their events I feel compelled, motivated, and inspired to help in anyway possible. The DannyDid foundation does everything right and is making a significant positive impact.