LMSdr has been a tremendous source of information, support, guidance, and realistic hope since I was diagnosed with this rare and aggressive cancer about a year ago. It hosts a wonderful worldwide FB page for people and their loved ones who have this diagnosis. It is well monitored and a tremendous source of information and support. LMSdr does everything possible to help people find a cure for this rare cancer, including identifying scientific research projects for financial support, helping people host fundraisers, organizing a tissue bank and blood samples for research purposes, hosting seminars, providing recordings of past seminars, the list goes on and on. I have contributed greatly to LMSdr, and have encouraged friends, colleagues, and relatives to do likewise. A tremendous percentage of what LMSdr collects goes directly to LMS research. Their expenses are low as the organization is completely volunteer-run. I simply cannot praise LMSdr enough!
LMSarcoma Direct Research Foundation (LMSdr) raises money for research for leiomyosarcoma, a very rare sarcoma on the smooth or involuntary muscles. LMSdr has all volunteer staff who work out of their own homes - so true to their name, money goes directly to research. They have put on patient conferences, advocate trainings and webinars. Even though there are only about 1276 LMS patients in the US... they have a Face Book support group of 1450 patients and loved ones. Their newsletter reaches 2000. This foundation is the life-line for LMS families.
