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Lmsarcoma Direct Research Foundation

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Nonprofit Overview

Causes: Health

Mission: LMSdr funds LMS specific research, advocates for promising research, provides patient education and support, collaborates with other organizations and is a voice for the LMS community. We are the bridge between researchers and LMS patients.

Results: We have raised over 1 million dollars for research. Please see our website for the grants we have awarded.

Target demographics: patients with leiomyosarcoma (LMS)

Direct beneficiaries per year: 2000 LMS families

Geographic areas served: world-wide

Programs: Providing patient education, support and funding of promising LMS research.

Community Stories

26 Stories from Volunteers, Donors & Supporters

7 Susan483

Donor

Rating: 5

LMSdr has been a tremendous source of information, support, guidance, and realistic hope since I was diagnosed with this rare and aggressive cancer about a year ago. It hosts a wonderful worldwide FB page for people and their loved ones who have this diagnosis. It is well monitored and a tremendous source of information and support. LMSdr does everything possible to help people find a cure for this rare cancer, including identifying scientific research projects for financial support, helping people host fundraisers, organizing a tissue bank and blood samples for research purposes, hosting seminars, providing recordings of past seminars, the list goes on and on. I have contributed greatly to LMSdr, and have encouraged friends, colleagues, and relatives to do likewise. A tremendous percentage of what LMSdr collects goes directly to LMS research. Their expenses are low as the organization is completely volunteer-run. I simply cannot praise LMSdr enough!

10

Client Served

Rating: 5

Love this organization! All funds raised go directly to research for cure/treatments for LMS. Beyond that seminars/ retreats with top researchers are held. This is a worldwide organization providing support, info to patients as well. Can't say enough about this org.

10 Writer

Volunteer

Rating: 5

LMSarcoma Direct Research Foundation (LMSdr) raises money for research for leiomyosarcoma, a very rare sarcoma on the smooth or involuntary muscles. LMSdr has all volunteer staff who work out of their own homes - so true to their name, money goes directly to research. They have put on patient conferences, advocate trainings and webinars. Even though there are only about 1276 LMS patients in the US... they have a Face Book support group of 1450 patients and loved ones. Their newsletter reaches 2000. This foundation is the life-line for LMS families.