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Williams Syndrome Family of Hope

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Nonprofit Overview

Causes: Health, Health (General & Financing)

Mission: The Williams Syndrome Family of Hope, Inc. is a grassroots non-profit organization that was formed by families for families. Our mission is to provide support, resources, education and financial assistance to those affected by Williams syndrome. Spreading awareness is key. Educating physicians, therapists and educators is imperative. Williams Syndrome Family of Hope, Inc. has been created to enhance the lives of individuals living with Williams syndrome. We are dedicated to raising public awareness about Williams syndrome and its effects on the individual and their family. Please join our efforts to provide hope, financial aid and relief for the constant, complex and ongoing medical and financial needs of families and individuals with Williams syndrome. The formation of Williams Syndrome Family of Hope is in loving memory of the children who have died from complications of Williams syndrome and to honor the individuals who live with the syndrome. We are “Differently Abled....Beautifully Perfect.” Hope is an Open Heart.

Target demographics: enhance the lives of individuals with Williams syndrome

Geographic areas served: USA and Intl

Programs: Pillowcases of Hope where we send out pillowcases to individuals with WS who are hospitalized; Birthday Club for WS individuals to get cards from all over the world; to help provide WS individuals access to educational and therapeutic devices.

Community Stories

17 Stories from Volunteers, Donors & Supporters

1 Jodi13

Donor

Rating: 5

My Name is Jodi and I am the Owner/Director of Weight On Me Weighted Blankets. I have had the opportunity to work with this organization through arranging blankets to be delivered through donations from Family of hope, and also partnered with Family of Hope to Organize a give-away of merchandise.

The dedication to clients and helpfulness of the directors is amazing. I have appreciated working with this group, and love their dedication to Williams Syndrome and the families. They are the first resource I tell people to reach out to for information on WS

1

Donor

Rating: 5

My name is Ronnie Gesser and I am the owner of Ez Sox. It's wonderful to know that our Ez sox donation has brought joy to the children of the Williams syndrome family of hope.

1

Donor

Rating: 5

My name is Kristi Langslet. I am co-owner and Occupational Therapist/Designer for Sommerfly, a therapeutic products company who make products to help with Sleep, Calm and Focus. We were asked to make a donation of our Sleep Tight Weighted Blanket to the Williams Syndrome Family of Hope several months ago. We were happy to do so after investigating the long history of care and help this organization has given to families who need support. We received a follow up phone call and email from The Family of Hope and a Thank You email from the family to whom our donation was given. We at Sommerfly want to help people and it was a pleasure partnering with this great organization who goes the extra mile to help and expresses thanks to those who help! Thank you for your great work!
Sincerely,
Kristi Langslet, OTR/L
Sommerfly
www.sommerfly.com

1 Renee34

Volunteer

Rating: 5

The founder, Kelley Bedore, found me on Facebook. We fast became friends talking about our non-profits. during the first year, I was a witness to mothers joining together to help make the lives of their children better. They became a support group for each other, and if one of them was in need, they all worked together to help the one.
Williams syndrome children need extra's in life to help their beautiful minds reach their potential. Needless to say it can add up quickly. This group reaches out to WS families, and help cover the cost. They send Birthday cards to the children. Be it little or big- Williams Syndrome family of Hope is there to assist.

1 Sondra G.

Volunteer

Rating: 5

I found Williams Syndrome Family of Hope when I was so looking and needing to be with other parents of WS kids and they welcomed me, more than welcomed me, into their family. Being a volunteer for the WSFOH and helping to spread awareness of Williams Syndrome has brought peace to me. I am not only able to tell my experiences, but go to others and ask for guidance and help. That is what makes this so great - we are a family.

2 Rosaura R.

General Member of the Public

Rating: 5

We have a daughter 10 years old and Williams Syndrome Family Of Hope were the first ones to lend me a hand and provide us with great support .

2

Client Served

Rating: 5

We have a 4 yr old son with Williams syndrome. We connected with the WSFOH through FB & have been very thankful for the information & support they provide. If you have a question they help get an answer, if you need to vent they listen & lend a FB shoulder to cry on. The WSFOH has provided Moggies for our little guy & assisted us with the expense of a therapy bill. We are so thankful to have them be a part of our Williams syndrome journey.

1 Betty18

Volunteer

Rating: 5

I have a niece with Williams Syndrome, she is 22 yrs old. Kelley Bedore & Williams Syndrome Family Hope has been the best place we can go for support and friendship. About a year ago I took a volunteer role as the MS area Rep for them and you could not find a better organization . They have helped so many families in need, and put smiles on many of childs face. The impact of the Williams Syndrome Family of Hope is so heart warming to see what Kelley and all of our families can accomplish as we spread awareness about Williams Syndrome.

Previous Stories
1

Volunteer

Rating: 5

I came in contact with this wonderful group through my neice with Williams Syndrome, it is a great source of information and support.

2 Ruth31

General Member of the Public

Rating: 5

I am aMom of a Williams Syndrome child. I find the organization to be most helpful with questions and answers. Always willing to spread the word of awareness. Also from what I can see they have made great strides in helping families in need!!

2

Volunteer

Rating: 5

My granddaughter has Williams syndrome and this Foundation has been a life-saver for our whole family! The love and support they have offered to us far exceeds any amount of money we could have been given by another Foundation :) We are so lucky to be a part of this Foundation and what it does to support WS individuals and spread awareness!

2

Volunteer

Rating: 5

I am a proud supporter of Kelley Bedore and the Williams Syndrome Family of Hope . The impact they make on the children's and adults' lives is truly remarkable.

As a representative of a member of the United States Congress, I was proud to attend a luncheon in Washington, D.C. in honor of First Lady Michelle Obama put on each year by the Congressional spouses. A pocketbook was given to each person that attended the luncheon. I brought the purse back with me from the luncheon and was proud to donate it to the Williams Syndrome Family of Hope to be auctioned off to raise donations for this important cause.

Kelley and her organization have made substantial contributions to the children and adults of the State of Georgia. Earle Shivers

1 Julie100

Client Served

Rating: 5

I have a four year old son with William's Syndrome and the support from this group has been amazing. They provide wonderful information and are always upbeat and willing to do more. I know the board members have children of their own with William's Syndrome and I cannot imagine how they find the time and energy to do all they do for us, but am very, very grateful. I will do all I can to support this wonderful organization and just wish I could win the lotto for them!

1

Client Served

Rating: 5

I came in contact with this wonderful group because of my son who has William SYndrome. They have blessed our family with a great source of information which is helpful in understanding his syndrome along with meeting new families that daily bless our lives. Jayden was giving a nook that helps him in his development and we couldnt be prouder. He was also the random winner of a contest they held were he recieved a William syndrome Family of Hope Baseball cap. Jayden was thrilled beyond belief to get mail and loves wearing his new hat. A huge Thank you to this non profit organization for all you do to help.

1 Rebecca2345678

Client Served

Rating: 5

Williams Syndrome Family Of Hope has been a wonderful source of information and support to our family.

3 Debbie67

Client Served

Rating: 5

I came in to contact with this wonderful group through my daughter with Williams Syndrome. I wanted to get the word out about the syndrome and didn't know how to begin, so several of the wonderful ladies guided me, helped out in any way possible, and supported me, turns out we had a wonderful event, raised some money for the organization, and met another wonderful family that also had a child with Williams Syndrome. I have met alot of amazing people through this group on facebook, and when I have questions or concerns, this group is always there to help and assist me. I told them about my daughter's sleeping problems, and the organization got her a weighted blanket, which has helped her tremendously at night. I could not ask for a better group of parents and volunteers, as friends and family. This group and organization is actually more supportive and helpful then my family, and that says alot!!!

2 Erika B.

Board Member

Rating: 5

I came to the Family of Hope through my daughter Abby who has Williams Syndrome. I met everyone on Facebook and was asked to be on the Board of Directors which was one of the greatest moments of my life! The Family of Hope purchased a LeapFrog LeapPad Explorer for my daughter Abby who is 6 and it has enhanced her life so much! She has learned how to use the touch screen where she could not use the mouse on a regular computer :) We were lucky enough to be able to attend the recording of a song and video in Nashville for the Family of Hope and meet so many wonderful people and individuals! I have met some of the best people ever through this Foundation and our goal is to help as many families as possible to enhance the lives of individuals with Williams Syndrome! I am extremely proud to be able to serve on the Board of this Foundation!