The only organization worth going to for help in the Porphyria's. You can get answers to questions that are difficult to find elsewhere. The USPA has helped me get a lot of my life back by recommending sources to go to and people that understand the disease. You will be hard pressed to find any other organization that has the understanding of the Porphyria's and is kind enough to walk you through any personal struggles with the disease you might have. Highly recommended!!!
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- EIN 82-1864317
- 818-458-9615
- 19140 Avenue Of The Oaks Unit D Santa Clarita CA 91321 USA
- Www.Porphyriaalliance.com
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Nonprofit Overview
Causes: Health, Voluntary Health Associations & Medical Disciplines
Target demographics: Increasing awareness of the porphyrias
Direct beneficiaries per year: Many patients
Geographic areas served: Helping Porphyria patients world wide
Programs: Providing resources for patients and their families to access testing and treatment for the porphyrias