They helped fund a clinical trial for my daughter. And are continuing to fund clinical trials for children of all ages and stages with Sanfilippo Syndrome
Came to me with open arms when my child was diagnosed with terminal illness they are awesome so supporting !
When my daughter was first diagnosed last year with sanfilippo syndrome type A they came to me and gave me hope that i thought was gone! They really helped keep my mind on track love them❤❤
My best friends little boy is amazing. Hes also dying but TSF has put him into a clinical trial that could save or/and improve his quality of life. That right there is worth more then anything!
TSF is our hope to get treatment for Sanfilippo, in order to save our kids, or at least the future coming kids.
Though Team Sanfilippo is based in US, they care about Sanfilippo Syndrome worldwide community and have been funding research for years. TS has put together many foundations to collaborate finding effective treatments for Sanfilippo, for all children regardless their age, type, etc. We, as a family, and my son, are very thankful to TS.
Team Sanfilippo is just that. A Team of parents searching for treatments for children with Sanfilippo Syndrome. They are educational and are trying to fund treatments for older children wit this rare disease. While many treatments are being investigated for children 5 and under not many are researching for older patients but that is Team Sanfilippos passion, a treatment for all
I donate to and participate in many of the orginazation fundraisers because it is a great nonprofit! They are always working hard to find treatments, cures, or support for children and young adults who suffer from Sanfilippo Syndrome.
Finding a way to help older children with Mps 111 be treated in the future! Please support this wonderful charity!