They helped fund a clinical trial for my daughter. And are continuing to fund clinical trials for children of all ages and stages with Sanfilippo Syndrome
TSF is our hope to get treatment for Sanfilippo, in order to save our kids, or at least the future coming kids.
#cure_sanfilippo
When my daughter was first diagnosed last year with sanfilippo syndrome type A they came to me and gave me hope that i thought was gone! They really helped keep my mind on track love them❤❤
Though Team Sanfilippo is based in US, they care about Sanfilippo Syndrome worldwide community and have been funding research for years. TS has put together many foundations to collaborate finding effective treatments for Sanfilippo, for all children regardless their age, type, etc. We, as a family, and my son, are very thankful to TS.
Team Sanfilippo is just that. A Team of parents searching for treatments for children with Sanfilippo Syndrome. They are educational and are trying to fund treatments for older children wit this rare disease. While many treatments are being investigated for children 5 and under not many are researching for older patients but that is Team Sanfilippos passion, a treatment for all
I donate to and participate in many of the orginazation fundraisers because it is a great nonprofit! They are always working hard to find treatments, cures, or support for children and young adults who suffer from Sanfilippo Syndrome.
Comments ( 1 )
Patty Burkholder T. 01/25/2019 We are dedicated to helping find treatments leading to cures for all our families. We are so grateful for all who support our foundation and families. This disease is terminal and for most, before the age of 18 years old. We are doing better at finding quality of life therapies, extending life for many children, but still have a long way to go to cure the disease so that no child dies early. Thank you so much for all your support in donations, sponsoring fundraisers, volunteer hours in even caring for children while mom and dad get a break, etc. All who help in anyway are truly appreciated. Never under estimate the need of help for a family of any child with terminal rare disease, weather it be just time for a break, dollars to hire the proper respite care for a date, extra diapers or wipes that insurance may not cover etc. The list of ways is large, just ask the family, most will be grateful that you care! Be blessed in all you do ! Thank you again, The Team at Team Sanfilippo / TSF Inc.