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Tsf Incorporated

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Nonprofit Overview

Causes: Health

Mission: Research for treatment of sanfilippo syndrome

Results: August 2019- the first FDA approved trial to treat multiple subtypes of Sanfilippo in broad range of ages . Team Sanfilippo has funded in collaboration with Seelos Therapeutics to execute this trial ! https://www.globenewswire.com/news-release/2019/08/22/1905441/0/en/Seelos-Therapeutics-Announces-FDA-Acceptance-of-IND-Application-for-SLS-005-for-Mucopolysaccharidosis-Type-III-Sanfilippo-Syndrome.html#.XV9Ypm-ea9Y.facebook

Geographic areas served: World wide based in USA

Programs: Research for treatment for sanfilippo syndrome, both older kids and younger with hopes of a cure one day !

Community Stories

9 Stories from Volunteers, Donors & Supporters

5 Kathy N.2

Client Served

Rating: 5

They helped fund a clinical trial for my daughter. And are continuing to fund clinical trials for children of all ages and stages with Sanfilippo Syndrome

Comments ( 1 )

Patty Burkholder T. We are dedicated to helping find treatments leading to cures for all our families. We are so grateful for all who support our foundation and families. This disease is terminal and for most, before the age of 18 years old. We are doing better at finding quality of life therapies, extending life for many children, but still have a long way to go to cure the disease so that no child dies early. Thank you so much for all your support in donations, sponsoring fundraisers, volunteer hours in even caring for children while mom and dad get a break, etc. All who help in anyway are truly appreciated. Never under estimate the need of help for a family of any child with terminal rare disease, weather it be just time for a break, dollars to hire the proper respite care for a date, extra diapers or wipes that insurance may not cover etc. The list of ways is large, just ask the family, most will be grateful that you care! Be blessed in all you do ! Thank you again, The Team at Team Sanfilippo / TSF Inc.

2 Perriann Marie N.

General Member of the Public

Rating: 5

Came to me with open arms when my child was diagnosed with terminal illness they are awesome so supporting !

Previous Stories
2

Donor

Rating: 5

When my daughter was first diagnosed last year with sanfilippo syndrome type A they came to me and gave me hope that i thought was gone! They really helped keep my mind on track love them❤❤

2 Arianne T C.

General Member of the Public

Rating: 5

My best friends little boy is amazing. Hes also dying but TSF has put him into a clinical trial that could save or/and improve his quality of life. That right there is worth more then anything!

2 Mohamed M.

Donor

Rating: 5

TSF is our hope to get treatment for Sanfilippo, in order to save our kids, or at least the future coming kids.
#cure_sanfilippo

2 Jenny O.

Board Member

Rating: 5

Though Team Sanfilippo is based in US, they care about Sanfilippo Syndrome worldwide community and have been funding research for years. TS has put together many foundations to collaborate finding effective treatments for Sanfilippo, for all children regardless their age, type, etc. We, as a family, and my son, are very thankful to TS.

3 Misty Burbank L.

Donor

Rating: 5

Team Sanfilippo is just that. A Team of parents searching for treatments for children with Sanfilippo Syndrome. They are educational and are trying to fund treatments for older children wit this rare disease. While many treatments are being investigated for children 5 and under not many are researching for older patients but that is Team Sanfilippos passion, a treatment for all

4 Sheila Boyd G.

Donor

Rating: 5

I donate to and participate in many of the orginazation fundraisers because it is a great nonprofit! They are always working hard to find treatments, cures, or support for children and young adults who suffer from Sanfilippo Syndrome.

3

Donor

Rating: 5

Finding a way to help older children with Mps 111 be treated in the future! Please support this wonderful charity!