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2013 Top-Rated Nonprofit

Stop Childhood Auto Inflammatory Diseases, Inc

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Nonprofit Overview

Causes: Health, Specifically Named Diseases

Mission: To educate, provide awareness and fund researchers who are committed to find a cure to auto inflammatory diseases.

Community Stories

22 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

I can truly say from first hand experience that this nonprofit charity is an organization run with utmost integrity while maintaining both a personal touch and an expansive reach to families, doctors and hospitals. Balancing extensive knowledge and innovation with compassion and individualized attention to its core values and families is a strength of this indispensible charity.

Tony41

General Member of the Public

Rating: 1

This site might be as bogus as the organization. When you write a bad review, it gets removed so you only see 5 star. So Questionable. Someone should investigate the funds from this org.

Comments ( 4 )

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stopcaidnow 10/06/2014

Tony although I appreciate all responses, this clearly shows you have not researched the Foundation. StopCAIDnow is the first organization to focus on the mechanism of these disease. No one on the board is paid, the founder has put thousands of dollars toward the foundation, we have the CAID clinic and CME at the Cleveland Clinic, on going list of projects for the families and children.....most of of the CURE in sight. Maybe you'd like to tell the Founders son who has no prognosis and her oldest that this is a bogus Foundation. Maybe they'd like to hear you think the money goes else where, when they know that this Foundation is helping them and hundreds and thousands of others suffering. The Founder could have taken her money and gone for the CURE and not have started a Foundation that was so needed, however that is not her nor her boys way of thinking. No review has been removed and the Foundation speaks for itself. If you would like to call the Drs on the executive board who know how hard the Founder works as well as their dedication and work towards the CURE pls contact me so I can connect you. I advise you to research before you make un true statements. God Bless you and I pray you never have a child or loved one go through what I witness from my own and hundreds of others.

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stopcaidnow 10/06/2014

Tony although I appreciate all responses, this clearly shows you have not researched the Foundation. StopCAIDnow is the first organization to focus on the mechanism of these disease. No one on the board is paid, the founder has put thousands of dollars toward the foundation, we have the CAID clinic and CME at the renowned Cleveland Clinic, global awareness, book written for the families and children.....most importantly is we have the CURE in sight. Maybe you'd like to tell the Founders son who has no prognosis and her oldest that this is a bogus Foundation. Maybe they'd like to hear you think the money goes else where, when they know that this Foundation is helping them and hundreds and thousands of others suffering. The Founder could have taken her money and gone for the CURE and not have started a Foundation that was so needed, however that is not her nor her boys way of thinking. No review has been removed and the Foundation speaks for itself. If you would like to call the Drs on the executive board who know how hard the Founder works as well as their dedication and work towards the CURE pls contact me so I can connect you. I advise you do your research before you make un true statements about a dedicated CAUSE. God Bless you and I pray you never have a child or loved one go through what I witness from my own and hundreds of others.

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stopcaidnow 10/06/2014

no comment has ever been removed, your the first to respond this way and you have obviously not done your research.

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stopcaidnow 10/06/2014

all who know the President/Founder and the foundation are well aware no one gets paid. This is the first Foundation to focus on the mechanism of these diseases, the founder has put thousands of dollars her own money into the education and awareness, we have the CME and CAID clinic at the renowned Cleveland Clinic, many projects that were dev. for the children and families, ...and most important is we have the CURE insight! How would you like to tell her son who has no prognosis, gets infusions twice a month and her oldest who is also fighting a CAID that this foundation/cause is "bogus"! The Founder could have just focused on her two boys and went for the CURE, treatments but knowing the hell they go though she saw the urgency to start stopCAIDnow, get more Drs educated and the awareness for all these diseases. Again, I hold no judgement and GOD bless you! I pray you never have a loved one or child who feels the pain and suffering as they have and thousands do but Im sure they'd appreciate your kind sediments. Next time before you post or pass judgement on anyone or foundation, please do your research. Also, the Foundation works amongst top physicians and hospitals, if you would like to be in contact with them so they can assure you where the monies have gone, I will gladly connect you.

General Member of the Public

Rating: 5

Lisa Moreno-Dickinson is a powerful special force of nature. She utilizes all she has for the good of others. Her passion to bring awareness, support and assist those with CAID is as solid as Mt. Everest. Lisa is climbing the mountain for many who cannot climb alone.

General Member of the Public

Rating: 5

Lisa Dickinson is a wonderful, passionate, dedicated mother and director of this so very important non-profit organization, fighting children's auto-inflammatory disease. She is an effective advocate and support for other families battling with this disease, working tirelessly for a cure. Her work of many has already changed lives, and will continue to bring hope and a cure for families battling this debilitating disease.

Jarrod L.

General Member of the Public

Rating: 5

The cries of a mother won't go unanswered. Change happens when hearts are changed. Join Lisa in spreading the message and make a difference today.

1 kalhoon

Volunteer

Rating: 5

When people think what can ONE person really accomplish ??? Not MUch is the answer....
Well they have never met Lisa Moreno Dickeson- Founder StopCAID now.

NO ONE without exception has accomplished more. While being the best mother I have ever seen she also revolutionized the way this group of horrific diseases "CAID" which by the way LISA created the name for these collected illnesses) has been addressed by the medical community and the public.

She has created multiple spectacular fundraiser, created wings in hospitals for the treatment and study of CAID, motorcycle rallies, and brought awareness nationally single handedly in less than a year with a huge Madison Ave PR company and millions of dollars.

The money also goes 100% to doctors shes has hand picked through her years of saving her beautiful sons. Only the best on this team.

Lisa has and will continue to be one of the people everyone will remember who truly made a huge difference for something so so tragic and important. Until Lisa surfaced it was -virtually unknown and overlooked by science and doctors in general.
Bless you LISA

Previous Stories
1

Volunteer

Rating: 5

Lisa is an unstoppable force. No one could sacrifice more of them-self. Three hours sleep a night is routine and the rest is fighting to end the horrific suffering. Brilliant, relentless, lovable and the greatest person you could ever have on your side. There is only one Lisa and thank God she is behind StopCAID Now.org. I have never met a more dedicated person who will do WHATEVER it takes to end this horrible situation. She is selfless and humble but she is a hero to everyone who meets her. We love you Lisa.
With gratitude,
Chance

Client Served

Rating: 5

This organization has done more in two years for Auto Inflammatory diseases than most have done in years. So Proud of Lisa Moreno Dickinson and all she has accomplished in such a short time. We need a voice for the children with CAID and I could not have picked anyone more perfect for this role. She is driven, tireless and always on GO when it comes to the children and this cause. Love her determination and effort to help all of these kids to live a better - pain free life. She inspires me daily and my daughter who suffers from CRMO loves her and her passion to find a cure. We are grateful beyond words for this organization - and the headway they are making for Inflammation Diseases for Children. God bless her and this progress she is making on behalf of all the kids who suffer.

BeverlyHills P.

General Member of the Public

Rating: 5

Amazing, simply put. Such a needed cause from such a warm heart.

1 Bob_44

Volunteer

Rating: 5

I have never met a more dedicated or tireless human being in my life then Lisa Moreno Dickenson! I believe with her at the helm of this organization a cure will be found!!!!

1 Judy78

Board Member

Rating: 5

The mother who started this foundation, Lisa Dickinson, has been NON-STOP in the past few years trying to figure out a cure for children with auto Inflammatory Diseases. What impresses me most is that she could have just tried to help her child alone in finding ways to cure him, but instead made herself an open book to other parents with children of the same disease, and has been a great comfort and advocate for their families. In two years the strides she has made with the Cleveland Clinic, press and donations are momentous and will change countless children's - and their families - lives forever.

1

General Member of the Public

Rating: 5

This is an excellent charity doing amazing work, doing a great job raising awareness.

1

Professional with expertise in this field

Rating: 5

In real estate, the operative words are location, location, location. In Philanthropy the operative words are leadership, leadership, leadership. Lisa brings to this organization a passion, a vision and a belief that its not a question of how, but when CAID will be cured. If a cure can be willed by love, than CAID will get there in abundance. It is well run, perfectly positioned for the needs of the children and parents it serves and delivers over and over again.

1 Kathleen51

Client Served

Rating: 5

Stop CAID Now has been wonderful for calling attention to these auto inflammatory diseases that our children suffer from. So many of them have never been heard of by the general public, and by putting them together, maybe more research dollars can be acquired to learn more about them, prevention and treatment of them.

4

Client Served

Rating: 5

I first came across STOP CAID NOW in February 2013, when my 7yr old daughter was diagnosed with CRMO. (Chronic Recurrent Multi-focal Osteomyelitis) I came upon their website while researching this debilitating illness. Their website is extremely educational and absolutely amazing. It has helped me navigate the world of chronic illness! I visited a CRMO Facebook page for support and additional information immediately. While on that page, I was extremely surprised when the STOP CAID NOW founder, Lisa Moreno-Dickinson, reached out to me personally. Within 24hrs of my first post on the support page, Lisa privately messaged me and offered her support in finding the right help for my daughter. She pointed me in the right direction and gave me her sons doctors information at the Cleveland Clinic, to make sure we could get an appointment with a doc that specializes in these diseases. She truly has gone above and beyond while sharing her own stories of what families like ours go through. Her daily FB posts, sharing her children's struggle, is absolutely uplifting!! You can tell that this organization is far from just a company to her. It is truly her heart and soul!! STOP CAID NOW and Lisa Moreno-Dickinson have helped my family in so many ways and for that, I am forever grateful for their existence! Please keep up the AMAZING work!! If there is ever a way I could repay your kindness, please do not hesitate to ask!! With your dedication, I know there will be a cure found!! Thank you from the bottom of out hearts for all of your hard work!!

1

Professional with expertise in this field

Rating: 5

My personal experience is one that is similar to this dreadful disease. My mother and nephew both have and auto immune disease. I've been there for his kidney transplant, his collapsed lungs and other surgeries. I'm helped my mom cope through hair loss and pain. There is so much help needed with auto inflammatory diseases. I think this is one of the most important organizations we have right now, we have to learn more, do more research and help these beautiful children!

1 John183

Advisor

Rating: 5

Stop CAID Now is unique in it's outreach and coverage of so many Autoinflammatory disease categories. Prior to this there was little or no focus on the mechanism that triggers the reaction within the patient and no real diagnosis was possible because of the many factors that cause inflammation. The money that is raised goes directly toward raising awareness and finding a cure.

1 Carl H.

General Member of the Public

Rating: 5

this organization has worked diligently to create greater awareness of childhood auto inflammatory diseases. Lisa Moreno-Dickinson, the founder, held events, consistently shares her personal stories of inspiration of her 2 sons who have this condition, and is always available to provide counsel and help to all who reach out to her. Through social media, (facebook, twitter, website, etc. she has single handedly built this organization. I urge all who have questions, or face the condition within their families, to outreach to Lisa and SCAID. Carl Hymans

1 Brian69

Professional with expertise in this field

Rating: 5

This Non-Profit chronicles the work of a loving and devoted Mother. Her passion and determination are incredible, and I truly admire her strength. I sincerely believe that by supporting the work of this organization, LIVES WILL BE SAVED!

JoAnne234

General Member of the Public

Rating: 5

Lisa Moreno-Dickinson is an amazing person with endless energy. She founded StopCAIDnow, Inc., a non-profit organization dedicated to the fight against CAID(Childhood Auto-Inflammatory Diseases). Her foundation works closely with specialized doctors and researchers who are dedicated in their efforts toward finding better treatments, and hopefully one day a cure. I'm extremely impressed with what Lisa has done in such a short time frame--less than a year!

• started up a non-profit organization

• built a website with information & resources for families with CAID

• gained long-term endorsement from multi-platinum hip-hop artist Eminem, along with Roger Carter Racing in support of "Race 4 CAID" @ Iowa Speedway's ARCA prestigious racing events

• organizing a prestigious PGA Tour with celebrity appearances to benefit children with Pediatric Granulomatous Arthritis

• hosting a White Carpet/Black Tie Fundraising Gala this coming February with celebrity performers

• partnered with the renowned Cleveland Clinic(ranked among the top 4 US hospitals) to develop the first Continued Medical Education program for CAID

• continuing to raise awareness about CAID

• raising funding for research toward a cure for CAID

• gained sponsorship from several internationally known companies

• recognized worldwide for her efforts

Within her foundation, Lisa also recently produced a book titled "Hero In Me" to support families with CAID and to develop awareness about these diseases. I have had an incredible experience managing and editing this project. I have learned so much about CAID. Lisa is truly an inspiration. I highly recommend Lisa and StopCAIDnow if you are looking for a non-profit to support. She is not only a hero to her son, but to countless other children and their families. Lisa has taken something devastating, and turned it around for good. Through her selfless compassion, tireless efforts, and incredible conviction, she is truly making a difference.

Client Served

Rating: 5

My son has dealt with a rare auto inflammatory disease for years. At age 16 we were finally given a name for his illness but it made us feel even more alone. The terms, rare, unusual, uncommon were not things we wanted to hear. We wanted to know there was someone out there that could help us to understand this disease and help us fight for a cure that my son suffered with alone for many years. When we found StopCaidNow we felt more blessed than ever. The encouragement the president, Lisa Moreno-Dickinson, gave to our son increased his self esteem and gave him hope. Now, several families have come to us for advice and help. We always direct them to StopCaidNow. I know that together we will find a cure for all of these children with CAID illnesses.