Mission: Nevus outreach is dedicated to bringing awareness, providing support, and finding cures for people affected by congenital melanocytic nevi and related disorders.
Results: Funding nearly $1,000,000 in research, hosting 11 biennial conferences, raising awareness with a mailing to 11,000 dermatologists
Direct beneficiaries per year: 4000 people
Programs: Nevus outreach offers the most comprehensive, up-to-date, professionally- vetted, multi-lingual, lay-person appropriate information about giant congenital nevi available from any single source, and distributes this information to families, health care providers and the general public using printed materials, a Facebook page and several private Facebook groups, and www. Nevus. Org, the nevus outreach website.
Nevus Outreach supports people affected by giant congenital nevi by providing answers to their questions and connecting them with others who can help them using printed materials, in-person meetings throughout the united states, and www. Nevus. Org, our website devoted to online support for people affected by giant nevi. The nevus outreach support group on facebook currently has over 4,000 members and is open to anyone affected by a giant congenital nevus.
Nevus Outreach funds basic science and promising therapeutics that are designed to find a cure for giant congenital nevi and neurocutaneous melanocytosis.
Nevus Outreach was a lifeline for us when our daughter was born. They really offer the most current information regarding all issues involving this very rare condition. They give hope, they understand. They put on conferences where parents and affected individuals can meet and know they aren't alone. The people making up Nevus Outreach have become like a second family for me, and for that I am so very grateful.
When our son was born, Nevus Outreach was able to offer answers. When we went to a conference we had an opportunity to meet people just like us. When our son became sick Nevus Outreach provided resources to help us find answers. And now 20 years after we 1st met Nevus Outreach, the organization continues to fund research, direct guidance, provide awareness and work on its mission of helping all people affected by Congenital Melanocytic Nevi.