When our daughter was born with a large nevus on her skull, we did not know what to expect or where to turn, and frankly, neither did any of the medical professionals on staff at the large hospital where we delivered as this is such a rare condition. Thankfully, a quick internet search led us to Nevus Outreach, where we found not only support and advocacy, but a community of committed parents, friends, siblings, etc., many of which have become close friends. Every medical (and non-medical need) we had related to this condition was approached with invaluable support from this fantastic organization. We are so thankful for Nevus Outreach!
Nevus Outreach was a lifeline for us when our daughter was born. They really offer the most current information regarding all issues involving this very rare condition. They give hope, they understand. They put on conferences where parents and affected individuals can meet and know they aren't alone. The people making up Nevus Outreach have become like a second family for me, and for that I am so very grateful.
When our son was born, Nevus Outreach was able to offer answers. When we went to a conference we had an opportunity to meet people just like us. When our son became sick Nevus Outreach provided resources to help us find answers. And now 20 years after we 1st met Nevus Outreach, the organization continues to fund research, direct guidance, provide awareness and work on its mission of helping all people affected by Congenital Melanocytic Nevi.