Myelin Repair Foundation is truly one of the best places that I could have volunteered for. I believe that their goal of trying to find myelin repair treatments for MS is unique but not too overambitious. I would love to continue to support and work with this organization, because I believe that they will truly do great things for MS patients, and for science, in the future.
This is an amazing non-profit organization--the epitome of how non-profits should be. 84% of the money that comes in goes to research (compared to the National MS Society's 15-20%). Also, their collaborative ARC model breaks down barriers in the drug development process, which I believe will help them get to their goal of providing the world w/ MS treatments AND will influence the medical research field by making collaborative progress a norm instead of nonexistent.
Hello: I was diagnosed with MS on October 6, 2000. For the first couple of years I was everyone's guinea pig. No matter what was tried, I continued to get worse. I was truly a story of "diagnose and adios." Neither my doctors nor I knew what to do. I was scared. The only clinical trials I had read about were for people with early relapsing-remitting MS. I had already progressed to secondary progressive MS. It seemed there was no hope. Then, while doing MS research on the computer, I came across the Myelin Repair Foundation. I soon discovered there were others like me and others that actually cared about what happened to me. My new motto in life is, "for real hope, visit www.myelinrepair.org. Because the founder of this nonprofit also has MS, I feel he has a vested interest in the nonprofit's success and that makes me feel good. Be well. . .Diana
I have been an MRF volunteer for over 5 years. I've had MS for over 14 years. My experience with MRF has been very positive. MRF is truly the best organization when it comes to advancing research directed at finding better treatments for MS. The commitment of MRF staff and scientists is truly awe inspiring. I also know that the MRF runs an extremely efficient operation with approximately 90% of all donated dollars going directly to research. MRF President and Founder Scott Johnson has MS, so this is a very personal mission and commitment for him.