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Max Richard Thornsbury Foundation

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Nonprofit Overview

Mission: To raise awareness of Congenital Diaphragmatic Hernia (CDH) Max's story~ Max was born on December 19, 2010 @ 9:57pm and had a very severe case of CDH, with most of his organs in his chest cavity and only 11% of lungs. Max was not given a high chance of survival at birth, but Max was a fighter and came out ready for a fight. He defied the odds and continually surprised the doctors. But God had other plans for little Max and decided that heaven needed another sweet angel. It is never easy to understand God’s will when such a young life is taken, but it is undeniable that in his short 54 days Max touched the hearts and lives of so many. Max passed away February 11, 2011 @ 12:22am. Max was able to donate his knee section that will be used for cartilage grafts. The cartilage grafts are used for innovative grafts to help repair defects in the recipient's own cartilage. These defects cause disability and pain. The donated cartilage can eliminate the need for total knee replacement for injuries or diseases such as arthritic joint or sport injuries, and eliminate painful and long recovery following total knee replacement. Max is very special and will help others for months and years to come Statistics about Congenital Diaphragmatic Hernia. More than 50% of cases with CDH are detected prenatally by ultrasound examination. MRI is especially useful for the prenatal diagnosis of multiple abnormalities and for assessing lung volumes. CDH occurs in every 1-2500 live births in the United States. CDH accounts for 8% of all major congenital anomalies. Approximately 1,600 babies are born each year with CDH. After having a baby with CDH the chances of their sibling diagnosed with CDH is 2%. The chances of reherniation for a baby born with CDH are as high as 60%. Those with a patch are slightly higher. Combining all hernia types, CDH occurs approximately 85%of the time on the left side, 10% on the right side, and less than 5% of the time bilaterally. Mortality from CDH continues to be high, ranging from 20% to 60%.

Results: We have donated $14,000 to Cincinnati Children's Hospital CDH Research Team since 2011.

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CHERUBS

Professional with expertise in this field

Rating: 5

Our charity had the honor of being able to support Max's family after his diagnosis with Congenital Diaphragmatic Hernia and are thrilled to see them carry on his memory in the good work they are doing through the Max Richard Thornsbury Foundation. We are excited to see all the wonderful things that they will do in Ohio for CDH families and to fund research and are proud to sponsor some of their events.

We are proud to be members of the Alliance of Congenital Diaphragmatic Hernia Organization with such a wonderful foundation and look forward to working with them for many years to help families affected by CDH.

Dawn Williamson
CHERUBS President & Founder