Lyme Disease United Coalition

232 Pageviews Read Stories

Claim This Nonprofit

Nonprofit Info

 

 

Add to Favorites

Share this Nonprofit

Nonprofit Overview

Causes: Health, Patient & Family Support

Mission: The lyme disease united coalition is an all volunteer 501( c)3 corporation- tax exempt. The mission of the lyme disease united coalition (lduc) is to advocate for patients who have tick-borne illness resulting in lyme disease (ld), babesia, bartonella, rocky mountain spotted fever, or ehrlichia. The care of the ld patient is our number one priority throughout the united states and the remainder of the world.

Donor & Volunteer Advisory

This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.

Community Stories

2 Stories from Volunteers, Donors & Supporters

lymediseaseunitedcoalition Client Served

Rating: 1

03/26/2014

The LDUC agreed to accept donations on my behalf for the September 21, 2013 fundraiser friends put together for me which took place in FL. Their president and vice-president agreed to send tax deductible receipts to donors, provide a list of on-line donors (paypal) and send me a check for total funds raised minus $100 for book keeping. As of January 2014, I still had no check though people donated over $13,000 to me specifically. The LDUC sent a check at the end of February 2014 (28). It came back marked non-sufficient funds. Donors are outraged. The LDUC will not respond to me and sent false information to donors regarding the circumstances. They did send tax deductible forms to donors, but did not send me my money they agreed to send me so I could attain healthcare.

I am the client NOT served.

Review from Guidestar

1

MotherofthePatient Client Served

Rating: 1

03/25/2014

LDUC sponsored a medical fundraiser for my daughter in Florida on September 21, 2013. It has been six months and they have so far refused to provide a list of online contributors/amounts or forward the funds raised to my daughter, who has Lyme Disease and is in need of medical care her insurance will not cover. We collected over $12,000 locally, which had to be processed through the organization in order for contributors to receive tax-deductible receipts, so that amount was forwarded to LDUC, and we know more was donated via PayPal online. It has been six months and the only check this organization has provided to my daughter bounced due to insufficient funds. They now do not return emails or phone calls. DO NOT CONTRIBUTE to Lyme Disease United Coalition as they do not honor their obligations or do what they promise to do.

Review from Guidestar

Need help?