Lung Cancer Reseach Foundation

I was diagnosed with non small cell lung cancer with an actionable mutation in June 2017. I was a 38 year old nonsmoker, mom of 3 young children and in the best shape of my life - lung cancer was the last thing I thought was wrong. As I approach the 4 year mark since my diagnosis I have been involved with various lung cancer nonprofits on my journey. I was connected with LCRF a few years ago through a friend I went to college with who had lost her father to lung cancer and I haven't looked back. What really draws me to LCRF is their dedication to research and moving the needle for lung cancer survivors. As a survivor I always say my life is "in the hands of science" and to an extent that is true - we only have so many "tools in our toolbox" before we sadly run out of options. LCRF's dedication to research is what is going to help extend my life, so that I can be here for my 3 kids. I appreciate their dedication to keeping us informed of the most promising research and their information sessions have been so meaningful and impactful - there is always something to learn and discover. I was fortunate enough to take a tour of a lab and see research dollars at work! What a cool experience and I will be forever grateful to LCRF for allowing me to share my story, for connecting investigators and survivors (there is something so neat about meeting those working so hard behind the scenes for us and being an example of how amazing research and progress is) and for their dedication to science. So many important and impactful investigators and superstars in the field received grants from LCRF at the beginning of their careers - they are truly making a difference. I have a fundraiser every year in my town and we have raised over $30,000 for LCRF! LCRF is definitely the organization I believe in and who is making a difference and progress in all survivor's lives.

I’m doing a fundraiser for “Lung Cancer” I was informed by a friend that you keep that money but none of it goes towards the research... I really hope it’s not true. Because I lost my dad one year ago.. and if raising money towards the cure... I really hope it goes where it should. So nobody else has to lose a family member this way.

I am actually a Board Member of the PA Lung Cancer Partnership which is a state chapter of the larger National LCP. We/they are raising money for research to lick lung cancer. Some of the money goes to research goals like find a cure, find a screening, build awareness and give people hope where there has not been much! They also educate advocates like me on how to make a difference!

This is my 5th year of advocating for the National Lung Cancer Partnership. I randomly participated in their Free to Breathe walk in Philadelphia back in 2007 because I wanted to start giving back to the community. Then the hammer was dropped the next day when i found out that my cousin back home was diagnosed with stage IV lung cancer. I thought this was very ironic, and that somehow I was sent to this organization. I took it as a sign, and decided to work with the Partnership. 5 years later, I am chairing the 2nd Annual Free to Breathe in the Delmarva area of Delaware/Maryland/Virgina.

I have also been lucky enough to have attended my 2nd Lung Cancer Advocacy Summit presented by the Partnership. For those not familiar, it's the one time of the year where advocates, patients, and survivors get together to learn more about the progress being made in the fight against lung cancer. It's also an opportunity to see new faces of those who want to get involved, as well as meet people who have been touched by this terrible disease. I can honestly say that it is a privilege and honor to attend, and to be amongst those who are so passionate in this cause.

I have been most impressed by the National Lung Cancer Partnership in the fact that everyone there TRULY cares about this fight. They want to create CHANGE. And after interacting with them for so long, you can tell that there isn't the bureaucracy in this organization that plagues so many others....which means more money goes towards lung cancer research. This organization is ONE CLASS ACT, and I wouldn't be involved with any one else!!!!!

As an advocate and donor, I am impressed with the Partnership's quality and quantity of resources. As an advocate, they ensure you have the knowledge base and activation tools to to become an effective advocate. Their organization is led by Dr. Joan Schiller, a leading oncologist. Not only is she impressive and well-respected within her field, but she's also willing to ask the tough questions of her colleagues in an effort to push for the best research understanding of lung cancer. I am very proud to be a part of this organization, and I have no doubt this organization will create a successful movement to garner much-needed funding for lung cancer research.

The National Lung Cancer Partnership is made up of researchers, advocates, physicians. It is a partnership in the fight to help find answers through funding research and making communities aware. This organization is totally devoted to lung cancer so all funds raised are directed toward this fight. As an advocate I go in to the community to present programs on lung cancer, it's risks, symptoms, treatments available, etc. I am able to provide materials for participants through the NLCP. Each year this organization awards grants to young investigators to fuel their research in to finding answers. They provide an avenue for advocates, caregivers, etc. to connect and support each other.

In the short time I have known of this organization, I have been impressed with it's commitment to raising the awareness of lung cancer as well as raising funds for research. They have developed a terrific management team and are fiscally conscious. They, as much as their supporters, want to see funds raised being spent to fund lung cancer research.

I recently attended the 4th annual Lung Cancer Advocacy Summit with this organization. I was amazed that so many people from such different walks of lives have personally been effected by lung cancer and are ready to make a difference in the outlook of this disease. The statistics are frightening, but the hope through research and advocacy is what makes this organization so wonderful to work with. My step-dad is fighting this disease now. And I am ready to work with this foundation that puts the patient first.

I have been a member of the Partnership for over 4 years. I have been to at least 2 Summits and helped to develop the first one in NC. I am an advocate and activist and also a nurse navigator at UNC in Thoracic Oncology. Through working with the Partnership, I have gained knowledge of how to be an advocate.
On a personal leve, the Partnership has inspired me to do more. I am now involved in speaking to large or small groups about lung cancer and educating them in the most up to date manner. Trying to get rid of the stigma and educate providers in the most accurate information.

I was recently selected by this organization to attend their 4th Lung Cancer Advocate Summit as a lung cancer survivor and has lived with this disease for almost 7 year. The Summit was attended by a group of leading doctors, researchers, patient advocates, and lung cancer survivors. This group is dedicated to raising public awareness of the disease and generating funding for lung cancer research. Attending the Summit for the first time really opened my eyes and energized me to want to get more involved in raising public awareness in the need for more research funding for finding the best treatment for this deadly disease which claimed lives each year more than the breast, prostate, and colon cancer combined. Yet, the funding for lung cancer research ranked at the bottom of the other more visible cancers. I found this organization has the best potential to achieve the goals they set out to accomplish--Research grants for dedicated scientists for lung cancer research, advocate for public awareness, and provide support for lung cancer survivors with needed resources, and the basic knowledge to seek the best treatment available for lung cancer.

I am a 42 year old woman living with Stage IV lung cancer. I turned to the National Lung Partnership because I was angry and looking for a place to help change the face of this neglected disease. The Partnership funds research directly, provides patient support materials, and trains advocates to expand the army of fighters trying to get the word out. They are staffed with great talent and professionalism.

I lost my mom to Stage IV Lung Cancer in July 2005 after a fourteen month battle. She died just one month before I had my daughter, her first grandchild. I searched everywhere for an organization to become a part of that solely focused on lung cancer research and raising public awareness of the disease. The National Lung Cancer Partnership is the only lung cancer advocacy organization founded by physicians and researchers that are working with survivors and advocates to fight this terrible disease. They also have the Free to Breathe event series that I have become a part of locally. I co-organize the Athens, GA FTB 5K. 100% of the net proceeds from each event go to supporting and funding NLCP's research, education and awareness programs. I have met wonderful staff, physicians, survivors, and advocates since joining NLCP. I can't think of a better organization to dedicate my advocacy work with and to watch grow in their efforts.
I have also done research grant reviews the last two years as a patient advocate and have learned so much from the wonderful work that is being done by researchers across the country to fight this disease.

The National Lung Cancer Partnership has been very helpful to me in my own grass roots advocacy work. Always willing to answer questions or supply materials. Just a great organization

I learned that I had lung cancer December 22, 2000. Then I had my tumor removed January 9, 2001. That was a painful surgery and a difficult recovery for me as I was left with nerve pain. Worse than the pain was the isolation that I felt. I'm not sure when I first learned of National Lung Cancer Partnership, but I know that when I learned that physicians had organised and started this organization, I felt more hope than I had in a long time. I found a place where there was interest in finding better outcomes for survivors of lung cancer. Until then, I had actually heard physicians cite lung cancer studies from 1968, as pertinent. And, I had heard physicians state that if people would stop smoking there would be no more lung cancer and then brush off the topic. I am able to keep current on lung cancer topics, and I am able to see what is being done to remove the stigma attached to lung cancer by belonging to NLCP.

When I finished my treatment for lung cancer with no evidence of disease, I asked my doctor which lung cancer organization I should work with. She answered without hesitation, National Lung Cancer Partnership. I have been an advocate working with the Partnership for over 2 years now. I admire them for staying focused on their mission of decreasing deaths from lung cancer and helping patients live longer and better through research, awareness and advocacy. In a short 3.5 years, they have created a branded fundraising event in Free to Breathe, which started as a single event in 2006 and will have 23 events this year. They created the first lung cancer advocacy summit in 2008, and held a second one this spring, training interested people in the tools of advocacy and the details of the disease. And they fund early career research grants in the hopes of developing strong professionals for the future. They provide an excellent patient education booklet called "Living with a Diagnosis of Lung Cancer" (note "Living" - hopeful!) and a DVD designed to help patients considering participation in clinical trials. And they do it all with an incredibly low administrative %.

This organization has been excellent resource for me as a survivor of Lung Cancer. I attented their Summit in April in Dallas. In all my years as Stock Broker for various firms I have never been to a meeting so well organized and helpful. I will be bringing their "Free to Breathe Race" to Jacksonville to help raise awareness (which is desperately needed in Lung Cancer) and funds. They have what I can a "Race in a can". The framework is all done for you. The staff could not be more helpful in all venues. This is a grassroots organization that should receive all the water and fertilizing one can obtain for them. I believe they have helped my healing process by allowing me to work with them. Kudos to the National Lung Cancer Partnership!

This outstanding organization was founded by lung cancer physicians/researchers to raise disease awareness in society and to raise much needed funds for lung cancer research. The organization has partnered with other lung cancer foundations in an effort to maximize each groups effectiveness. The Partnership sponsored a Lung Cancer Summit in 2008 to train grassroots advocates to raise disease awareness and the need for additional research dollars, as well as to generate fundraising activities in their communities. My involvement with the Partnership began with my attendance as a survivor advocate in training at the 2008 Summit. I returned for the 2009 Summit as a group leader. The program in both years was outstanding and included researchers' presentations, media consultant and public relations presentations, speakers from other cancer foundations, and speakers from the National Cancer Institute. The 2009 Summit also included presentations from 2008 participants' awareness and fundraising activities. Advocates left the Summit armed with ideas and a notebook filled with the power point slide presentations, facts and statistics, materials on legislative advocacy and engaging the media as well as an action plan designed by, and for, each advocate participant. Advocate/participants included early and advanced stage disease survivors, family members, friends and health professionals. The Partnership also formed a google group to provide a venue to facilitate participants' continued communication, provide new research information, news about legislative initiatives, media and awareness raising opportunities as well as to provide encouragement to fledgling advocates. In two years the Partnership has trained about 100 advocates. Each advocate has taken what they learned at the Summit and put it into practice through awareness raising activities and fundraising events in towns and cities across America. In addition, and as a direct result of the Summit, two new National Lung Cancer Partnership State Chapters were formed. Way to go NLCP and thank you for what you do for all of us!