International Scleroderma Network

Programs: Scleroderma research fund distribution: reserved funds to be distributed later to the nonprofit scleroderma clinical trials consortium (sctc) for peer-reviewed worldwide research for scleroderma and related illnesses, such as pulmonary hypertension. Allocations: 2,500. 00

support, education and awareness. Accomplishments included attaining a world ranking of 36,788 and a current u. S. Ranking in the top 6,000 of literally billions of websites, for our sclero. Org web site, as measured by ranking. Com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 8% overall. We updated the entire web site to be mobile-friendly. We hired seo assistance, and a scleroderma expert list coordinator. We further developed of our state-of-the-art sclero forums, blogs and videos platform, doing a major upgrade which included two software upgrades and five specialty mods. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and pah to both interested subscribers and to the public at large. We continued to distribute our voices of scleroderma trilogy book series throughout the world. We maintained our 24 hour a day scleroderma and pah telephone hotline, and provided both email and postal mail support services to over 1,000 legitimate hotline inquirers. Over $250,000 of volunteer effort was also contributed in support of our programs by a team of over 70 worldwide virtual volunteers who sustain the backbone of our organization.