My family just found out that we are at risk for Huntington's Disease after my father was diagnosed last week. We had no idea where to turn to for advice and information. HDYO had numerous helpful videos and tons of information that has helped me to understand the gravity of what we are dealing with.
Huntington's Disease Youth Organization (HDYO) is one of a kind! The nonprofit support young people impacted by Huntington's Disease (HD) internationally through programs and services. I am constantly referring people to their site because of the great educational material that they provide. I highly recommend them to anyone who is looking for resources when dealing with HD!
Huntington's Disease Youth Organization is wonderful. This group has filled a much needed gap in the resources for youth affected by Huntington's disease. Their website is full of great educational material. They have created a wonderful community where youth can share and feel supported. As a part of a local non-profit working to support the Huntington's disease community, I regularly refer youth and their families to HDYO.