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Hemophilia Foundation of Northern California

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Nonprofit Overview

Causes: Health

Mission: Founded in 1958 and operated continuously since, the volunteer-driven Hemophilia Foundation of Northern California (HFNC) is a non-profit organization serving the needs of people with hemophilia and other bleeding disorders. It strives to improve the quality of life of all those affected through education, direct service and the promotion and support of research.

Geographic areas served: Northern California

Programs: Camp hemotion - an annual weeklong residential summer camp serving approximately 100 young people, ages 7-20, living with bleeding disorders. For many years, camp hemotion has served as hfnc's primary way to reach young people and provide them with the tools and skills they need to lead healthy, vibrant and, importantly, full lives.

family information day - in partnership with oakland's children's hospital, hfnc provides a one-day educational symposium designed to educate attendees about developments in the treatment of bleeding disorders and the financial and life challenges that are associated with them. Approximately 150 individuals attend the annual symposium.

hispanic heritage celebration - the hispanic heritage month educational symposium for our spanish speaking families affected by bleeding disorders is designed to bridge the cultural and linguistic gaps that exist amongst the spanish speaking hemophilia community and the general hemophilia community.

Community Stories

14 Stories from Volunteers, Donors & Supporters

Bryan14

Donor

Rating: 5

This group asked 8 years ago for help raising money for their Kids Camp. The costs of regular blood factor is quite high, and the families need support. We've been involved since then and help organize a yearly fundraiser in Sonoma. The annual Kids Camp teaches children how to do their own shots, and they get to meet many other kids with this same condition. We are very happy to help in a small way make that Camp happen every year, along with their other support programs, and really enjoy knowing this community of volunteers and donors.

Volunteer

Rating: 5

I have volunteered for this foundation for a few years and I love it. The events are organized and fun.

Cindy60

Client Served

Rating: 5

We are bless to be part of this community. HFNC has been part of are family from the time we where told that my son had Hemophilia. I made contact with them when my son was 8 months, they send me all the info on hemophilia and books that they order for me. I was able to get to meet other Families like ares true a event that they had that was to help us parents be good parents. It was then that i found that I was not by my self and that my son will be a boy even with hemophilia. We have been involve sends that day. We have been at almost all there events. HFNC also gave my boys the opportunity to go to a Summer Camp this year and it was FREE my boys had so much fun they can wait for next year. HFNC has also been there for use in the times of crises they have help us with there Emergency funds. I thank every volunteer and every one that gives to HFNC and makes it possible for family's to get together .

Volunteer

Rating: 5

Hemophilia and other bleeding disorders affect people across the socioeconomic spectrum. The financial realities of treating the conditions can lead families into poverty in order to gain access to Medi-Cal. The Hemophilia Foundation of Northern California (HFNC) runs excellent programs and outreach in order to help give its members the tools to advocate for themselves, to care for their condition, to learn about the latest advancements, and to support beneficial legislation. This all takes time, a dedicated board of directors, and a group of willing volunteers. Merlin Wedepohl is the Executive Director of HFNC, and he makes the coordination of all the details seem effortless. His ever-cheerful attitude is contagious and magnetic. People love to volunteer for HFNC because they are able to see real results. One of HFNC's biggest programs is Camp Hemotion, a week-long summer camp for kids with bleeding disorders and their siblings. The campers get to be regular kids, thanks to the help of the camp's ever-vigilant medical staff. Kids get to learn the skills necessary to be independent in their care - including the anxiety-inducing skill of poking oneself with a needle in a vein to infuse the medication multiple times a week. This is all done with patience and caring support, and the campers have memories and skills that will empower them for a lifetime. The Hemophilia Foundation of Northern California is truly a GREAT Nonprofit! Andy Blackledge

Client Served

Rating: 5

My family and I feel so blessed to be part of the HFNC community. Our first experience with the organization was 5 years ago at Family Camp and we found the people to be so welcoming and supportive. They always remember our names and circumstances and reach out to us throughout the year to let us know about upcoming programs and offer their support. Our daughter had a fabulous experience at kids' camp last summer and now gives herself her own medicine. This is so important for her maturity and independence and she wouldn't have been able to learn it without the HFNC's dedication and commitment to making kids' camp available to all kids with bleeding disorders and their siblings every year. We are so grateful and consider HFNC to be a top nonprofit!!

Volunteer

Rating: 4

I have just begun my involvement in this organization, and can say it is so refreshing to work with such warm and caring people. I have tried to get involved in other organizations before, but this one is by far the friendliest I have ever been around. It makes me want to give back all that much more, and give me so much hope that my time will make a difference.

Professional with expertise in this field

Rating: 5

I have worked with the Hemophilia Foundation of Northern California (HFNC) since 1977, when I was just beginning my career as a hemophilia doctor and wanted to start a summer camp for children with hemophilia and other bleeding disorders. HFNC agreed to do the fundraising for the camp, which is now in its 35th year. In order to ensure funding for camp, each year HFNC organizes and holds several fundraisers, including a Crab Feed, Wine Taste, Golf Tournament, and Hemophilia Walk. HFNC also does all the administrative work for the camp, including sending out and receiving applications for campers and counselors, hiring the buses, providing insurance coverage etc. HFNC now also fund raises for and runs a Family Camp each year.The volunteers in this organization are an enthusiastic, high-energy group that are committed to ensuring the continuance of Summer Camp and Family Camp. This organization is the backbone of our camping program, and we could not hold these camps without their efforts.

Volunteer

Rating: 5

They are a god send for families like mine! My son was diagnosed with a blood disorder at age two. No one in our family had ever had any experience with anything remotely close to this. I was terrified and had no idea how to proceed with everyday life but, after speaking with HFNC and attending some of their group activities, I became more at ease. They were there for any questions or concerns I had (no matter how silly!) and after five years, we are just a normal active family, with a few quirks thrown in!

Volunteer

Rating: 5

I began my volunteership with HFNC about 10 years ago. It was a pretty" closed" community but once they realized I was there to help out, I was embraced to the point of it being like an indian bear hug. I have done funding program site set-ups, providing transportation for materials and people, security at camp locations, camp counselor at family and summer camps, video productions of events, staff support for the annual coastal bike ride from S.F. to San Diego, supporting and playing in the annual golf tournament, and raising donations of wines for the annual wine tasting at Sonoma Golf Club. Never been paid (in money that is) but have received " millions" in personal good feelings in my heart knowing that it actually helps someone. I think that makes me a pretty wealthy man!

Volunteer

Rating: 5

One of the best non profits - they host the best camps for children with bleeding disorders

Client Served

Rating: 5

Being a new mom with no family around me and having my son diagnosed with severe hemophilia at 7 months was all I needed to attach myself to this foundation. Through the HFNC and its parent volunteers I was soon able to accept the diagnosis of this inherited condition. I went on to learn how to best explain to others who would then teach my son at school, play with him and become his friends and most of all teach him all about hemophilia so that he would lead a successful life. Having him attend a week long summer camp for children "just like him" was an eyeopener for all of us. He came back to us a much wiser 5 year old. I knew then that he would be an independent person even without me. Looking back I have so much to be thankful for from this foundation in raising my son. Hemophilia is a rare disease therefore not understood by many. It helps to have a foundation where you can easily find those who understand and can really help.

Julie81

Volunteer

Rating: 5

The HFNC is a wonderful foundation that offers great education and peer support to families with bleeding disorders.

Volunteer

Rating: 5

I am a 21-year-old college student with severe hemophilia A, and I have been a member of the HFNC for my entire life. The HFNC has fostered a strong sense of community amongst people like myself living with bleeding disorders. The chapter's hallmark program is Camp Hemotion, a week-long summer camp for 7-14 year olds living with bleeding disorders. When I attended as a camper for 8 years, before returning as a junior and assistant counselor for another 4 years, I learned from the older members of our community, as well as from other kids my own age. Whenever I returned to camp, we could all pick up where we left off an entire year before, all because of the sense of family that the camp directors and the HFNC foster. I am so grateful to be a part of a hemophilia chapter that has always shown faith in me and has been vigilant to keep community members involved and supported throughout their entire lives.

1

Volunteer

Rating: 5

I have been a member of this organization for over 25 years. Like most people I did not know what hemophilia was until I birthed a son with hemophilia in the early 1980's. This foundation has been there for this small community helping at every turn deal with it's current issues. In the 80's it was HIV infection. Today we are a younger community dealing with healthcare reimbursement issues. This foundation does the best it can by providing a Summer Camp for children that would not be accepted at a regular camp. We provide a Family Camp to educate and teach families how to cope with their children's diagnosis. We offer bi-lingual services to families that need it. We partner with the blood fractionators and pharmaceuticals that make the life saving Factor medication by bringing needed social & educational programs. Please consider donating to this foundation as your money would do more to support this small community because it functions like larger more well known foundations.