Hemophilia Association Of New York Inc

Programs: Patient services- the majority of the association's activity is directed toward providing information and assistance to the bleeding disorders population in general and to specific individuals and families therein. During 2016-2017, 47. 9% of staff time-effort was expended in this service function, which includes providing financial assistance, specific problem resolution, counseling, out-referrals, education and camp scholarships, a 24-hour helpline, advocacy, and the provision of informational and educational materials for patients/clients. During the year, 590 persons with bleeding disorders and their families were served. See schedule o for continuation. 10% of clients received emergency financial assistance or other forms of specific intervention. Patient group meetings (men's meetings, women's meetings, children's programs, and family programs) were conducted 17 times a year and an educational weekend conference with over 100 attendees was held.

research- grants-in-aid or fellowships are made available to support scientific studies and investigations at qualified institutions toward finding alleviations of the medical problems of hemophilia and related bleeding disorders and their complications.

public and professional health education- the association encourages improvement of the knowledge, skills, and judgment of physicians and allied health professionals in working with people who have bleeding disorders. We meet regularly with the providers of care for those with bleeding disorders to inform them of our programs and services as well as to provide them with educational materials pertaining to bleeding disorders.

community services- activities conducted in this function benefit not only persons with hemophilia, but the health and welfare of the community in general. The program includes participation in planning and improving community health policy and practices, in which the association interacts with many other community organizations and agencies.