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Causes: Health, Patient & Family Support
Mission: To promote and carry out those activities related to: 1) raising awareness of mucopolysaccharidosis i ("mps i"), also known as hurler syndrome, in massachusetts and surrounding states; 2) supporting families of children diagnoised with mps i in massachusetts and surrounding states, and 3) funding research for a cure of mps i. To conduct such other activities and programs in furtherance of the foregoing purposes as may be carried out by a corporation organized under massachusetts general laws chapter 180 and described in 501(c) (3) of the internal revenue code.
Programs: Able to assist a family of a child diagnosed with mps in massachusetts by helping make medical payments and provide support for everyday needs