Global Blood Disorder Foundation

Programs: Program description: the international affirm program is an international advocacy and leadership development program. It is designed to mentor men with hemophilia as they further develop and expand their leadership and advocacy skills with the aim to bring better care, programs and treatment to their respective communities. Program goals: * affirm attendees will receive a global view of the bleeding disorders community by attending 4 program meetings over a 2 year period using group, workshop style, didactic, integrated and experiential networking approaches of learning; and gain personal growth and development that fosters networking at all levels with in the bleeding disorder community. * affirm attendees will gain experience and exposure to advocacy tools, lobbying and dealing with the media through educational sessions, role playing exercises and group presentations using defined economics focused case studies. * affirm attendees will gain self-awareness and experience in developing advanced leadership skills that are useful and pertinent to their respective communities. * affirm attendees will utilize bleeding disorders research and patient reported outcomes to bolster their advocacy efforts on a global level. Outcomes/benefits of the program: affirm attendees will participate in four program meetings over a two year time frame. Program meetings will be held both in the united states and other countries outside the us. Each program meeting agenda will have a specific focus designed to enhance the attendees' leadership and advocacy skills, raise their level of education and provide practice workshop sessions that offer hands on experiences.

program description : latam suro is central/south american spanish youth leadership program designed to develop and train young adults in the bleeding disorders community who have the drive and ability to become global leaders. Program goals: * identify motivated individuals and foster leadership skills * connect up-and-coming leaders in the community * build understanding of the issues facing the global hemophilia community * help increase treatment standards in central/south america outcomes/benefits of the program : part iof the program will focus on teaching participants the basic skills they will need to become leaders in the bleeding disorders community. Specific activities will focus on: * team-building skills * communication skills * self-esteem activities * the evolution of hemophilia care and treatment * tools for success * social media and video training * research and product development

program description: suro is an international youth leadership program designed to develop and train young adults in the bleeding disorders community who have the drive and ability to become global leaders. Program goals: * identify motivated individuals and foster leadership skills * connect up-and-coming leaders in the community * build understanding of the issues facing the global hemophilia community * help increase treatment standards across the globe outcomes/benefits of the program: part i of the program will focus on teaching participants the basic skills they will need to become leaders in the bleeding disorders community. Specific activities will focus on: * team-building skills * communication skills * self-esteem activities * the evolution of hemophilia care and treatment * tools for success