60 Pageviews Read Stories
- EIN 26-4614274
- info@everylifefoundation.org
- 2026977273
- 1012 14th St Nw Ste 500 Washington DC 20005 USA
- www.everylifefoundation.org
- Facebook page
- EveryLifeOrg
- Add to Favorites
Promote This Nonprofit
Nonprofit Overview
Causes: Health
Mission: The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.
Geographic areas served: We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.
Programs: Rare Across America, Rare Disease Week on Capitol Hill, Rare Disease Legislative Advocates (RDLA), Community Congress, Newborn Screening, Rare on the Road, Young Adult Representatives of RDLA (YARR), Scientific Workshop, #RAREis Scholarship, Rare Hub, RareVoice Awards