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- EIN 91-1950872
- (610) 566-0797
- 200 Old Castle Ln Wallingford PA 19086-6027 USA
- www.burningfeet.org
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Nonprofit Overview
Causes: Centers to Support the Independence of Specific Populations, Health, Human Services, Specifically Named Diseases, Specifically Named Diseases Research
Mission: Provide information, support and education to erythromelalgia patients, their families and the health care community through website, newsletter, social media and direct contact. Raise funds to support erythromelalgia research. Raise awareness of erythromelalgia in the general community.
Programs: Maintained website with educational materials (more than 100 publications) for erythromelalgia pateints, their families and health care providers. The website had greater than 10,000 page visits per month.
created and disseminated semi-annual newsletter containing the latest information regarding erythromelalgia treatments, research and general news, as well as patient stories. Sent to more than 3,000 members and donors.