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Diann Shaddox Foundation for Essential Tremor

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Nonprofit Overview

Causes: Health

Mission: The Diann Shaddox Foundation for Essential Tremor is dedicated to finding a cure for ET, educate, and increase awareness about people afflicted with Essential Tremors. DSF is a National Non-Profit public organization 501 c(3) and is adamant to advance treatments that can slow, stop, or reverse the progression of Essential Tremors. Essential Tremors (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or body. Over 42 million people worldwide including children have ET, the largest movement disorder in the world. Recent research indicates that 5 out of every 100 children under the age of 20 has Essential Tremor. DSF works with people worldwide to show that ET is an international progressive disorder. We are unwavering to assist families with our Programs to find a cause and cure. ET can begin at any age, from birth to 100 and doesn’t discriminate with age, race, sex, or national origin.

Results: Your tax-deductible donation to DSF supports all the DSF Programs Just $25.00 can assist families living with ET in finding new jobs, learn new skills, feed their families, pay their mortgage/rent and medical bills, • GLOBAL ESSENTIAL TREMOR AWARENESS PROGRAM: Team DSF Global ET Awareness Program will bring the term Essential Tremor along with education and awareness to the world. • FAMILY ASSISTANCE PROGRAM: The Family Assistance Program is a short-term program that will assist families in finding new jobs, learn new skills, feed their families, pay their mortgage/rent and medical bills, The Program is designed to help people who lose their jobs or have a hardship because they have uncontrollable tremors. The DSF Family Assistance Program, which is the first of its kind for families suffering from hardships related to Essential Tremor, is designed as a short-term assistance program while families reestablish their income and health needs. • ET MEDICAL RESEARCH PROGRAM: Team DSF Medical Research Program is set-up to reveal the latest treatments for Essential Tremor whether it is the cutting-edge medications or surgeries and to find a cure for ET. DSF is determined to advance treatments that can slow, stop, or reverse the progression of Essential Tremor. • DSF NATIONAL EDUCATIONAL INITIATIVE PROGRAM for CHILDREN: DSF Educational Initiative includes educating our school systems about Essential Tremor. Team DSF is working with Legislators and Educators on a pilot program to inform Principals, Teachers, and school Nurses about Essential Tremor. Helping them to identify and become aware of symptoms of ET in Children in their classrooms. Recent research indicates that 5 out of every 100 children under the age of 20 has Essential Tremor. That number is staggering, and represents a significant increase in the incidence of ET in children from even ten years ago. • STOP ET BULLYING PROGRAM: Team DSF is adamant to stop the bullying of people afflicted with ET, not only children but people of all ages. ET is disability and the world needs to be educated. Most people don’t understand ET so it brings on bulling because of ignorance. • SUICIDE AWARENESS ET PROGRAM: Find Hope & Recovery You aren’t alone. DSF is committed to help people who live each day with tremors find hope and recovery in their lives DSF’s Mission: Our mission is clear to find a cure for Essential Tremors

Target demographics: 42 milllion worldwide including children living with Essential Tremor

Direct beneficiaries per year: Many families in the US living with Essential Tremor with our Family Assistance Program

Geographic areas served: In the US and Worldwide

Programs: • GLOBAL ESSENTIAL TREMOR AWARENESS PROGRAM: Team DSF Global ET Awareness Program will bring the term Essential Tremor along with education and awareness to the world. • FAMILY ASSISTANCE PROGRAM: The Family Assistance Program is a short-term program that will assist families in finding new jobs, learn new skills, feed their families, pay their mortgage/rent and medical bills, The Program is designed to help people who lose their jobs or have a hardship because they have uncontrollable tremors. The DSF Family Assistance Program, which is the first of its kind for families suffering from hardships related to Essential Tremor, is designed as a short-term assistance program while families reestablish their income and health needs. • ET MEDICAL RESEARCH PROGRAM: Team DSF Medical Research Program is set-up to reveal the latest treatments for Essential Tremor whether it is the cutting-edge medications or surgeries and to find a cure for ET. DSF is determined to advance treatments that can slow, stop, or reverse the progression of Essential Tremor. • DSF NATIONAL EDUCATIONAL INITIATIVE PROGRAM for CHILDREN: DSF Educational Initiative includes educating our school systems about Essential Tremor. Team DSF is working with Legislators and Educators on a pilot program to inform Principals, Teachers, and school Nurses about Essential Tremor. Helping them to identify and become aware of symptoms of ET in Children in their classrooms. Recent research indicates that 5 out of every 100 children under the age of 20 has Essential Tremor. That number is staggering, and represents a significant increase in the incidence of ET in children from even ten years ago. • STOP ET BULLYING PROGRAM: Team DSF is adamant to stop the bullying of people afflicted with ET, not only children but people of all ages. ET is disability and the world needs to be educated. Most people don’t understand ET so it brings on bulling because of ignorance. • SUICIDE AWARENESS ET PROGRAM: Find Hope & Recovery You aren’t alone. DSF is committed to help people who live each day with tremors find hope and recovery in their lives

Community Stories

10 Stories from Volunteers, Donors & Supporters

1

Board Member

Rating: 5

I have been watching Diann Shaddox and her husband Randy working tirelessly over the last few years trying to raise money for their non-profit foundation for the cure of Essential Tremor and other associated disorders. Just trying to get the public educated on how those who suffer from Essential Tremor are viewed by those that are not affected has been a focus for them as well. Often times those who suffer are viewed as being drunk or having some sort of fit that they brought onto themselves which makes it even more difficult to live and work. Diann is also an author and she donates part of her proceeds to the foundation, and Randy works along side her to educate the public about Essential Tremor. Together they are working to hopefully one day find a cure.

2 Candace McMullan A.

Board Member

Rating: 5

Watching my childhood friend of 59 years, suffer with uncontrollable shaking in her hands...thinking it was “nerves” until we were in our late 20’s was heartbreaking! She continued trying to hide her hands, living a full life, writing stories, raising two children (3rd if you count one of her grands)....With the trembling progressing to other parts of her body. I saw her writing books, as her outlet, as she had been very reserved about her essential tremors. I’ve watched her morph into a beautiful butterfly, willing to tell her stories, struggles, and starting a foundation to help find a cure for this non age/race discriminating disease, millions world wide suffer with. Your donation may not be much, but it might just be the final amount needed for a major breakthrough. She didn’t start this foundation for herself, but for research in future years, So, others would not have the daily struggles of simple tasks of getting food from a plate to their mouth. Diann Shaddox, along with her supporting husband, Randy, of almost 46 years, have generously started this foundation, working year round, sometimes 24 hours a day to simply help others. Please, if you know or see someone with their hands trembling....your donation might be the one to end the suffering of millions

2 Darlene A. M.

Professional with expertise in this field

Rating: 5

As a neurosurgeon in practice for over 10 years, I have seen a significant increase in the number of cases of ET, yet there has been little advancement in the field over the past many years, due to the lack of awareness of this growing condition. What I love about Diann Shaddox Foundation for Essential Tremor is the powerful mission to raise awareness for this disabling disorder, and to raise funds for much needed, and much overdue! research. Diann is a fantastic role model, tireless in her efforts, and is to be applauded for putting the needs of people with ET above her own needs. I am delighted to support the Diann Shaddox Foundation!

2

Volunteer

Rating: 5

Great foundation working all over the country for essential tremor.

3 Debra W.3

Volunteer

Rating: 5

I have been involved with Diann Shaddox Foundation for Essential Tremor's for over two years now. During that time I have seen the outstanding work helping and informing the public about essential tremors. They also have been at the fore front on medical research.
During my time volunteering with the foundation I have learned a lot about essential tremors and have had fun helping with fun raising. This is a great organization that does a lot of good.
Here is to many more years of helping
Debra W

2 Lon A.

Professional with expertise in this field

Rating: 5

The Diann Shaddox Foundation for Essential Tremor is dedicated to finding a cure for Essential Tremor. Their goal is to educate and increase awareness about people afflicted with Essential Tremor and to advance treatments that can slow, stop, or reverse the progression of Essential Tremors.
Essential Tremors (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or body. Over 42 million people worldwide including children have ET, the largest movement disorder in the world. Recent research indicates that 5 out of every 100 children under the age of 20 has Essential Tremor. Diann's Foundation works with people worldwide to show that ET is an international progressive disorder. They are unwavering to assist families with their Programs to find a cause and cure. ET can begin at any age, from birth to 100 and doesn’t discriminate with age, race, sex, or national origin. Lon Anderson

2

General Member of the Public

Rating: 5

An incredible, hardworking, caring woman! She has done so much to help bring awareness forward. Proud to have her in my support group on FB. Donating to a nonprofit is an amazing way to help bring more awareness forward, to help educate and help gain resources to help find a cure/ better treatment. ❤

2

Board Member

Rating: 5

I have know Diann and the Foundation for 5 years now and almost 2 years ago became a Trustee and Director for them because of this great lady and great Foundation. Best decision I ever made. Doing the right thing to help an under served, unknown group of fellow ETers is a mission I will fight for the rest of my life...and now with the right Army.

4

General Member of the Public

Rating: 5

I have known Diann Shaddox all my life. We went to the same public school, the same church, and the same college. A few years ago, we reconnected on Facebook to find that we were on opposite coasts: she in South Carolina and I in San Jose, CA. I was sorry to learn that she had essential tremor (ET). I was familiar with ET because my grandmother had the disease. I saw my grandmother struggle to write legibly and as the ET advanced, she lost the ability to sew, knit, crochet, needlepoint, and play the piano. Essential tremor robs its victims of abilities that most people take for granted. I am proud of Diann because of the way she responded to ET. She became determined to find a cure for essential tremor, and so, she started the Diann Shaddox Foundation. She works tirelessly to educate the world about ET by traveling and speaking, plus she writes novels that financially benefit ET research. No one else is better advocate voice for essential tremor sufferers than Diann Shaddox.

5 Randy M.2

Board Member

Rating: 5

Diann Shaddox is an incredible woman who discovered 35 years ago that she was suffering from a progressive disease that has had so little recognition but causes it's sufferers to live a life of debilitation, degradation and embarrassment from a condition that is so little understood.

Since that time, Diann has dedicated her life and has used her gifts as an author to bring awareness and hope for a cure to the over 42 million of worldwide sufferers, including children, for the little known and often misunderstood affliction known as Essential Tremor. Diann is the Founder of the Diann Shaddox Foundation.