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Cristian Rivera Foundation

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Nonprofit Overview

Causes: Philanthropy, Public Foundations

Mission: The Cristian Rivera Foundation is a non-profit, 501 (c) (3) organization, which works tirelessly to create awareness, and to raise funds to support families affected by Diffuse Intrinsic Pontine Glioma (DIPG), the Cristian Rivera Foundation also allocates funds towards the research and clinical trials conducted by Dr. Mark Souweidane of Weill Cornell Medical Center and Dr. Oren Becher of Ann & Robert H. Lurie Children's Hospital at Northwestern University.

Results: We currently have a patient who is participating in the trails that we have funded, who has been living with DIPG for over 5 years. There is no growth in her tumor size and she's leading a relatively normal life. Our funding has allowed Dr. Souweidane & Dr. Becher to make innovative advancements in treating DIPG; advancement that has been recognized by the global medical community.

Target demographics: Families impacted by Diffuse Intrinsic Pontine Glioma (DIPG)

Geographic areas served: Edgewater

Programs: The Cristian Rivera Foundation provides DIPG awareness, funding and supporting families and children programs.

Community Stories

33 Stories from Volunteers, Donors & Supporters

Tara V.1

Donor

Rating: 5

Joining the volunteer and fundraising efforts of the The Cristian Rivera Foundation has been a gratifying experience as I have assisted the organization in fighting and raising awareness one of the most aggressive forms of brain cancer in children. What has been most rewarding, is noting the significant progress the contributions have made to treat this horrible disease. Through CFR efforts, we have provided funding for innovative clinical trials that are making a difference with DIPG research. CRF is comprised of all volunteers, committed to eradicating DIPG for our children. The organization finds engaging ways to bring people together to educate them on the disease and raise funds to contribute their mission. I encourage all to view their website and see how they are raising awareness and making change in our world. We hope to see you soon.

Board Member

Rating: 5

I have been a hard worker my entire life and I thought that my accomplishments were enough to fulfill my soul. I was wrong, I always felt like something was missing. I felt I had to do something more, something that was bigger than me. Then I hosted an event for CRF and, I knew at that moment that I had to be part of this GREAT Organization. I joined this Organization less than a year ago and its been the most rewarding thing I have ever done. The work we do is truly selfless.

Donor

Rating: 5

I have donated to and supported many organizations. This Wonderful Organization is Amazing and Worthy. The support they give families who have a Child with DIPG is outstanding. I have witnessed it firsthand. I wish this organization continued success.

Volunteer

Rating: 5

I have Volunteered for several Non for Profits in the past, but The Cristian Rivera Foundation is by far the best one. I say it's the best one because their Gala is TOP NOTCH, Super organized and ran like an award show. After I volunteered, I learned about their programs and was blown away again. This year marks 4 years since I began Volunteering for this Beautiful Organization
and I plan on volunteering more of my time when needed to this inspiring Foundation.

Gleozyl S.

Volunteer

Rating: 5

Volunteering for The Cristian Rivera Foundation was truly an inspiring and fulfilling experience. All contributors in this amazing organization have shown dedication towards providing funding for clinical trials in DIPG research and sharing awareness of DIPG. The organization’s selflessness, hard work, and commitment towards eradicating DIPG in our children is truly inspiring. Please take a look at their site to see the amazing work they have done so far in DIPG awareness and funding research.

Ashley Brito M.

Volunteer

Rating: 5

The Cristian Rivera Foundation is one of the non for profit foundations that i will continue to volunteer for and support. Everything that they are pushing whether is its the GALA or the Walk or the other numerous events, the energy behind this foundation has been outstanding. I am extremely honored to be a part of such an amazing cause where everyone is very much hands on with every detail.To see how much the work they do, and how much they help children and families affected by DIPG, is very inspirational!

Board Member

Rating: 5

The Cristian Rivera Foundation has made an amazing contribution to finding a cure for DIPG, an aggressive and inoperable brain cancer. The foundation’s dedication to research (raising over $1 million) and assistance to children battling DIPG and their families makes this organization one of the most important and influential pediatric cancer-related organizations in the United States.

Board Member

Rating: 5

I am a Proud Member of this Beautiful Foundation. We Save Lives. The Volunteer staff at the Cristian Rivera Foundation is so hard working and dedicated to the mission of eradicating DIPG!

Donor

Rating: 5

It is an honor and truly a gratifying experience to be part of such a life-changing foundation which affects children worldwide. To push forward research efforts to find a cure is a monumental experience and history in the making. Losing someone is never easy, but increasingly compounding when a child is involved. I support this foundation to the fullest for its dedication and unwavering commitment on behalf of all those involved. I believe the Cristian Rivera Foundation along with its partners will be the first to find a cure. I eagerly wait and stand proudly together with them as a witness throughout this process and the unveiling of a cure.

Patricia Rosario, Founder
Unique Models and Marketing

Volunteer

Rating: 5

Finding a non-profit organization where their cause is something you are instantly attracted to is one I found with The Cristian Rivera Foundation. Volunteering with the CRF, I was able to express the same positive energy with those who supported a common goal. Each member, whether that be a volunteer or member of the board, brought a unique skill and their own story as to why the CRF was a great fit for them. As for me, the biggest part of this foundation is the people I work day to day with, the interactions and the love and care each individual has for a future in finding a cure for DIPG is incredible. It is unfortunate that so many children have to endure something so horrible, but with a good team and a winning one, this is the place to spread the love, awareness and compassion you have inside for a great cause. When someone tells you its not possible, here at the CRF, they show you that every volunteer matters, every gesture, donation and education on the matter is little wins for the greater cause. It’s amazing!

Board Member

Rating: 5

“I am more than honored and extremely grateful to be given the opportunity to serve as a staff member for the Cristian Rivera Foundation. Between learning about DIPG, working hand in hand with John "Gungie" Rivera, and working endlessly to raise awareness, I vowed to dedicate the necessary efforts until a cure is found. It takes the right team to uphold The Cristian Rivera Foundation, a team that is selfless, passionate, and devoted to go beyond the norm.. this is the set atmosphere every day at the foundation. I hold this foundation with great esteem and promise to fulfill my duties while serving for the families and children affected by DIPG.”

Volunteer

Rating: 5

I am honored to have this opportunity to volunteer at the Cristian Rivera Foundation. I have not heard of this terrible disease that attacks small children called Pontine Glioma a rare cancer. It gives me great hopes that we can find a break through this illness. Through this journey I will be exposed to so much important research and the foundation is very dedicated to their work.

Advisor

Rating: 5

As a staff member of The Cristian Rivera Foundation, it has/is been a life-changing experience. I never really heard of DIPG which shows why this foundation is created. Not a lot of people know of DIPG until one or someone special they know is touched by it. The Cristian Rivera Foundation is truly amazing, from advocating for these children to raising funds for research. I am two time. cancer survivor, I live every day to help raise awareness for children who are fighting their battles with chronic illnesses. My life dream career is finding a foundation where I can bring my passion for helping children who have a chronic illness and make difference and then I was introduced to The Cristian Rivera Foundation, let me tell you this... It is a truly amazing foundation where they help children and give a tomorrow. It is just amazing to see how much work everyone puts in and how the outcomes are in the end is just heartwarming and life-changing.

General Member of the Public

Rating: 3

A co-worker asked for a donation and ever since I have gotten several emails a week, in spite of 3 requests to be taken off their email list. I would never donate to them again.

Volunteer

Rating: 5

I watched my friend receive the most horrible news a parent could receive: your child has terminal cancer. I wasn’t sure how to help him because I couldn’t even imagine what he was going through. I couldn’t imagine a world without my two daughters, I wouldn’t know how to proceed.

I watched my friend sacrifice his entire career to help keep his son alive. My friend was a successful business man at a young age; he’s an innovator and pioneer in his space. He left it all behind to save his son, to keep him alive.

I watched my friend lose his son. I tried to process what this meant, how to recover, and I couldn’t. Would my friend be able to continue? Would he ever be the same?

I watched my friend create a foundation in his son’s name to help those families that follow him in this journey. He may not be able to prevent this from happening again but he is dedicated to changing that.

I watch my friend lead a group of dedicated volunteers to help rid the world of DIPG. We work together to serve as a resource for families that are impacted by this disease, we also serve as inspiration that a cure is not too far off.

Today I watch my friend as he celebrates the lives of two children who are responding well to the clinical trials that the Cristian Rivera Foundation supports. One child, Lisha Ayala, has lived with the disease for 6 years and has shown no signs of tumor growth.

I’m watching my friend change the world...I’m watching my friend give the medical community hope that we will be able to actively treat this rare disease and eventually cure it.

Join us as we get closer to curing DIPG. Visit our site at CristianRiveraFoundation.org to see all the beautiful things we are doing for our children. Support us by attending our 10th annual Gala on 11/14/18 at Capitale in a New York City.

Watch my friend cure DIPG!

Lauren D.1

Volunteer

Rating: 5

I was a volunteer at The Cristian Rivera Foundation’s 1st Annual Full Steam Ahead 5K Walk/Run. Volunteering to raise funds for families with DIPG and DIPG research was amazing, and so is the work The Cristian Rivera Foundation is doing. Meeting Dr. Mark Souwedine and other families who suffer from DIPG was eye-opening. I got to see how the foundation’s work contributes to clinical trials and families with DIPG first hand. Everyone associated with the organization is so passionate in fighting DIPG and I’m glad I got to meet everyone and help in any way I could.

Volunteer

Rating: 5

I am currently a volunteer for the Cristian Rivera Foundation, and I can honestly say I've never loved taking part it something more. Being given the opportunity to help raise money to fight such a horrible disease with such a great group of individuals is life changing. The work we do as an organization is so inspiring, and gratifying and I am so lucky to be apart of it!

Volunteer

Rating: 5

I am honored to have volunteered for the Cristian Rivera Foundation. I saw firsthand the compassion that goes into the lives of these families dealing with this horrible disease. I saw the miracles and changes this foundation is making through the lives of children and families dealing with DIPG. It is more than a foundation, it is run by a group of caring individuals that go above and beyond for each child suffering from this devastating condition. I truly look forward to working with them again and again and again.

Volunteer

Rating: 5

For years I have wanted to Volunteer for a non profit, but I didn't find one that I felt passionate until I learned about the Cristian Rivera Foundation. The work they do is truly inspiring and full of hope. All the people involved in this foundation care so much and work so hard.

Donor

Rating: 5

I admire the work that The Cristian Rivera Foundation is doing. Being a mother of 2 young children I couldn't bare the thought of losing a child. Learning about DIPG and the fight to find a cure has made me be a loyal supporter of this foundation. I have had the pleasure of attending the Annual Fundraising Gala and can see first hand the work they support in finding a cure. All the best to CRF and hoping to find a cure ASAP.