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Cristian Rivera Foundation

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Nonprofit Overview

Causes: Philanthropy, Public Foundations

Mission: The Cristian Rivera Foundation is a non-profit, 501 (c) (3) organization, which works tirelessly to create awareness, and to raise funds to support families affected by Diffuse Intrinsic Pontine Glioma (DIPG), the Cristian Rivera Foundation also allocates funds towards the research and clinical trials conducted by Dr. Mark Souweidane of Weill Cornell Medical Center and Dr. Oren Becher of Ann & Robert H. Lurie Children's Hospital at Northwestern University.

Results: We currently have a patient who is participating in the trails that we have funded, who has been living with DIPG for over 5 years. There is no growth in her tumor size and she's leading a relatively normal life. Our funding has allowed Dr. Souweidane & Dr. Becher to make innovative advancements in treating DIPG; advancement that has been recognized by the global medical community.

Target demographics: Families impacted by Diffuse Intrinsic Pontine Glioma (DIPG)

Geographic areas served: Edgewater

Programs: The Cristian Rivera Foundation provides DIPG awareness, funding and supporting families and children programs.

Community Stories

19 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

I watched my friend receive the most horrible news a parent could receive: your child has terminal cancer. I wasn’t sure how to help him because I couldn’t even imagine what he was going through. I couldn’t imagine a world without my two daughters, I wouldn’t know how to proceed.

I watched my friend sacrifice his entire career to help keep his son alive. My friend was a successful business man at a young age; he’s an innovator and pioneer in his space. He left it all behind to save his son, to keep him alive.

I watched my friend lose his son. I tried to process what this meant, how to recover, and I couldn’t. Would my friend be able to continue? Would he ever be the same?

I watched my friend create a foundation in his son’s name to help those families that follow him in this journey. He may not be able to prevent this from happening again but he is dedicated to changing that.

I watch my friend lead a group of dedicated volunteers to help rid the world of DIPG. We work together to serve as a resource for families that are impacted by this disease, we also serve as inspiration that a cure is not too far off.

Today I watch my friend as he celebrates the lives of two children who are responding well to the clinical trials that the Cristian Rivera Foundation supports. One child, Lisha Ayala, has lived with the disease for 6 years and has shown no signs of tumor growth.

I’m watching my friend change the world...I’m watching my friend give the medical community hope that we will be able to actively treat this rare disease and eventually cure it.

Join us as we get closer to curing DIPG. Visit our site at CristianRiveraFoundation.org to see all the beautiful things we are doing for our children. Support us by attending our 10th annual Gala on 11/14/18 at Capitale in a New York City.

Watch my friend cure DIPG!

Lauren D.1

Volunteer

Rating: 5

I was a volunteer at The Cristian Rivera Foundation’s 1st Annual Full Steam Ahead 5K Walk/Run. Volunteering to raise funds for families with DIPG and DIPG research was amazing, and so is the work The Cristian Rivera Foundation is doing. Meeting Dr. Mark Souwedine and other families who suffer from DIPG was eye-opening. I got to see how the foundation’s work contributes to clinical trials and families with DIPG first hand. Everyone associated with the organization is so passionate in fighting DIPG and I’m glad I got to meet everyone and help in any way I could.

Volunteer

Rating: 5

I am currently a volunteer for the Cristian Rivera Foundation, and I can honestly say I've never loved taking part it something more. Being given the opportunity to help raise money to fight such a horrible disease with such a great group of individuals is life changing. The work we do as an organization is so inspiring, and gratifying and I am so lucky to be apart of it!

Volunteer

Rating: 5

I am honored to have volunteered for the Cristian Rivera Foundation. I saw firsthand the compassion that goes into the lives of these families dealing with this horrible disease. I saw the miracles and changes this foundation is making through the lives of children and families dealing with DIPG. It is more than a foundation, it is run by a group of caring individuals that go above and beyond for each child suffering from this devastating condition. I truly look forward to working with them again and again and again.

Volunteer

Rating: 5

For years I have wanted to Volunteer for a non profit, but I didn't find one that I felt passionate until I learned about the Cristian Rivera Foundation. The work they do is truly inspiring and full of hope. All the people involved in this foundation care so much and work so hard.

Donor

Rating: 5

I admire the work that The Cristian Rivera Foundation is doing. Being a mother of 2 young children I couldn't bare the thought of losing a child. Learning about DIPG and the fight to find a cure has made me be a loyal supporter of this foundation. I have had the pleasure of attending the Annual Fundraising Gala and can see first hand the work they support in finding a cure. All the best to CRF and hoping to find a cure ASAP.

Board Member

Rating: 5

The Cristian Rivera Foundation is a 100% committed to finding a cure for DIPG from the founder John "Gungi" Rivera to the smallest donor. The passion that this foundation delivers is contagious. The level of Transparency and dedication that goes into running this foundation is second to none. I am very happy and excited to be a part of this foundation and encourage everyone to take time and learn about the great work CRF is doing in its fight against DIPG. Please take the time to visit the website and learn as well as donate..

Board Member

Rating: 5

Since its inception the Cristian Rivera Foundation has been at the forefront in finding a cure for Diffuse Intrinsic Pontine Glioma (DIPG) by raising funds for medical facilities and scientific clinical trials headed by the leading Pediatric Neurosurgeon in the space, Dr. Mark M. Souweidane, of Sloan Memorial Kettering, educating our respective communities on DIPG and most importantly providing emotional and financial support to the families impacted by the terrible disease. We will see a cure in our lifetime because of strong individuals such as its founder, John Rivera, who knows first hand what its like to loose a child to DIPG, the dedicated board members who have been inspired by Cristian Rivera Foundation's mission, the many lives Cristian and John have inspired over the years and best of all, a very special girl who is part of the clinical trial funded by CRF, hit a milestone, seeing no tumor growth for the last 5 years. As a father of two, I am grateful for being a part of the Cristian Rivera Foundation's quest to finding a cure. Full steam ahead.

Donor

Rating: 5

The Cristian Rivera Foundation is a model non-profit organization which helps DIPG patients, survivors, and caregivers throughout the United States. The foundation has raised awareness and brought hope to families who once thought they’ve runout of options for their child. The CRF continues to offer emotional support that is necessary for families as they go through this devastating disease. The foundation and its supporters reached a point of notable success the moment they raised significant funding for research which has led to a successful clinical trial of a young girl who has surpassed the age of mortality of young children who are diagnosed with DIPG. The CRF makes sure to provide information and updates on trial phases and health status of their brave subject, providing even more hope that the path to a cure is closer than we think. Thank you CRF for your mission to save the lives of these innocent, young little humans. We have a family with two young children (plus one on the way) and, as parents, we are grateful for your work.

Board Member

Rating: 5

I had never heard of (DIPG) Pontine Glioma until John's son, Cristian, was diagnosed with this disease. I believe that CRF brings great awareness to this terrible illness. It is my honor to be part of the Cristian Rivera Foundation and help bring an understanding to this understated and implicit disease. We all have a purpose in life and I do believe Cristian's short time in this life and his father's relentless pursuit to find a cure for Pontine Glioma will one day come to fruition.

Donor

Rating: 5

I contribute to the organization due to the tremendous potential they have to save lives of children with DIPG. Seeing how they’ve grown and helped so many children is very satisfying. The Cristian Rivera Foundation is truly a great foundation to contribute to. I will definitely continue donating!

Board Member

Rating: 5

Being associated The Cristian Rivera Foundation has been one of the most gratifying experiences of recent memory. Watching our orgaznation fight one of the most aggressive forms of brain cancer in children, and we are actually making significant progress. Through our efforts, we have provided funding for innovative clinical trials that are making a difference with DIPG research. Comprised of all volunteers, we are committed to eradicating DIPG for our children. Take a look at our website and see how we are raising awareness and making change in our world.

Volunteer

Rating: 5

Where do I start? The Cristian Rivera Foundation is truly a really great organization to volunteer for. It’s so nice to be a part of a foundation that cares so much about the cause. Everyone contributing to CRF is completely selfless and their hard work and dedication to the cause is remarkable. To see how much the work they do, and how much they help children and families affected by DIPG, is very inspirational!

Volunteer

Rating: 4

I’ve been honored to be a part of and witness the miracles and changes in people's lives that CRF has made possible. It is such a wonderful organization that truly cares about helping those affected by DIPG.

Donor

Rating: 5

I’ve been a donor to the Cristian Rivera Foundation for the past six years. The "thank you" letters, pictures and e-mails tell a very moving story of how money well-spent can go a long way. Currently, there is a patient who is participating in the trials, who has been living with DIPG for over 5 years. Usually, DIPG claims the lives of its victims within 12 months of diagnosis. The survivor proves that what I’m donating to is going to a very good cause. DIPG will one day not be something to not fear!




Volunteer

Rating: 5

If you get a chance to be involved with the Cristian Rivera Foundation, please do so. I’ve volunteered at three of their galas and will do so every continuing year. It's more than a foundation, it is run by caring and loving individuals who are making changes in the lives of children dealing with DIPG.

Donor

Rating: 5

I’ve been to four of the Cristian Rivera Foundation galas and I think they are doing wonderful work. They truly embody the qualities it takes to make a difference in the world. There is no disease more heartbreaking than DIPG and this organization is giving it their all to find a cure.

Board Member

Rating: 5

I’ve been lucky enough to be a part of this charity for 2 years now. It’s an absolutely wonderful organization that truly gives 100% of its time, energy and money raised to curing DIPG. I cannot imagine losing a child to this horrible disease and this charity is working to find a cure. I’m blessed to be a part of it!!

Advisor

Rating: 5

I had the amazing opportunity of working with the Cristian Rivera Foundation, and the eagerness of the board to make an impact on children with DIPG's lives was extremely impressive. The leadership of the organization is very motivated and makes sure that their mission and purpose is fulfilled to its greatest potential. Their hard work and motivation has helped so many diagnosed children and their families.