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Cristian Rivera Foundation

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Nonprofit Overview

Causes: Philanthropy, Public Foundations

Mission: The Cristian Rivera Foundation is a non-profit, 501 (c) (3) organization, which works tirelessly to create awareness, and to raise funds to support families affected by Diffuse Intrinsic Pontine Glioma (DIPG), the Cristian Rivera Foundation also allocates funds towards the research and clinical trials conducted by Dr. Mark Souweidane of Weill Cornell Medical Center and Dr. Oren Becher of Ann & Robert H. Lurie Children's Hospital at Northwestern University.

Results: We currently have a patient who is participating in the trails that we have funded, who has been living with DIPG for over 5 years. There is no growth in her tumor size and she's leading a relatively normal life. Our funding has allowed Dr. Souweidane & Dr. Becher to make innovative advancements in treating DIPG; advancement that has been recognized by the global medical community.

Target demographics: Families impacted by Diffuse Intrinsic Pontine Glioma (DIPG)

Geographic areas served: Edgewater

Programs: The Cristian Rivera Foundation provides DIPG awareness, funding and supporting families and children programs.

Community Stories

45 Stories from Volunteers, Donors & Supporters

Gennaro S.

Volunteer

Rating: 5

The Cristian Rivera Foundation is one of many Nonprofit organizations I have had the pleasure of volunteering with, and I am astonished at the amount that is done annually by the foundation in its efforts to raise awareness, help families battling DIPG, and to finding a cure. I am honored to be a part of such a phenomenal foundation.

Jocelyn C.1

Volunteer

Rating: 5

The Cristian Rivera Foundation has really taught me so much about this terrible cancer that only affects children. From working with them I have seen such dedication and motivation to work with amazing doctors and donate all they can to finding a cure. This foundation does amazing work and really works their hardest to help the families and children that DIPG affects.

Volunteer

Rating: 5

This nonprofit is amazing. It has taught us about a childhood cancerous tumor that most people don't even know exist (DIPG) aka diffuse intrinsic pontine glioma. The foundation is amazing in that those involved, especially the founder and his family are non-stop trying to eliminate this from occurring to anyone else, by tirelessly trying to raise awareness and funding for research and hopefully a cure. Seeing the folks that this impacts directly as well as even the small things that must be done to get folks to contribute to such an important cause is awe inspiring. God Bless them and thank goodness for the existence of such an organization.

Volunteer

Rating: 5

I have been involved as a volunteer/donor for the Cristian Rivera Foundation for 8 years now and I continue to support them because they're amazing at what they do and are fighting for a very important cause. As a mother, it breaks my heart to think that young children lose their lives to DIPG and their families have to suffer. I've been to their galas, walks, boat rides, and other fundraisers and they are extremely passionate about curing DIPG. I'm proud to support CRF all this years and see how much the foundation has grown. Over the years we've seen more survivors and that shows that progress is being made.

Donor

Rating: 5

I started as a volunteer in the early galas 14 years ago. I have seen the foundation grow. Prior to their creation, there were no medicines, treatments or hope for the children or their families. Now because of their efforts, there is research, treatments, medicines and hope as there are several cases studies that are thriving. And that is not counting on everything the do from assisting families, to giving wishes and dreams comes true to children.

Children are special to me, as is the Cristian Rivera Foundation where I help and support their efforts to fine a cure.

Maggie R.2

Board Member

Rating: 5

I first became involved with the Cristian Rivera Foundation about three years ago as a volunteer. I soon realized what a special group of people the CRF family are, and I knew I wanted to do as much as I could to fight DIPG. As a new member of the committee, I am consistently blown away by the dedicated, hard working and compassionate group of people I have the honor of working with in this organization. The annual Gala continues to be one of the most moving and inspirational events I have ever attended. I look forward to continuing to be a part of this foundation as we join together to fight DIPG.

Volunteer

Rating: 5

I knew very little when I first heard of Cristian Rivera Foundation and had no idea that it would bring me to a beautiful and amazing journey when I was really in here with the warm family. People in Cristian Rivera Foundation are the kindest and the most thoughtful one I have ever met, and it seemed like they did not want to lose any second or chance to tell everyone how much they care about what they are doing and really eager to get in touch with every family that is struggled with DIPG to help them. Cristian Rivera Foundation has responsive staffs, powerful members and partners and all of them would get together to provide as much help as they can to make the situation better and better of family who is fighting with DIPG and it can be believed that this organization could bring and bring even more than what is needed and really help people who is suffering. It was quite an honor for me to join this team and got the chance to see how it runs its operation, and I was very proud of the whole organization and being one of the members.

Donor

Rating: 5

The Cristian Rivera Foundation is an amazing organization bringing awareness and funding research and trials which will one day find a cure for D.I.P.G. I have supported this amazing foundation for many years but recently I was fortunate to attend the gala for the first time and I was completely moved by the professionalism displayed by the foundation. I will continue to support.

Volunteer

Rating: 5

After working with the Cristian Rivera Foundation, I feel that the potential and dedication of this foundation is amazing. There is so much effort and care going into this foundation that there is clear progress being made. The organization sets itself apart with its commitment to bringing awareness to this rare brain tumor and also with its efforts to raise money and funding for this cause. The foundation has partnered with truly phenomenal doctors and have made tremendous strides with D.I.P.G. The Cristian Rivera foundation is doing anything and everything possible to accomplish their mission and it is remarkable to see people put so much effort into a very important cause.

Board Member

Rating: 5

I’ve been a proud Committee Member of the Cristian Rivera Foundation for 5 years now and can confidently say that there is no other foundation working harder to fight against DIPG. They’re partnered with one of the best neuro-oncologists in the country and have been able to say that 4 children have survived DIPG because of his work. They run some of the best events I’ve ever been to and all for this amazing cause. I’m happy to be a part of such an awesome organization.

Volunteer

Rating: 5

Becoming a volunteer for the Cristian Rivera Foundation has been an amazing, eye- opening experience. I have seen first hand the amount of effort this foundation puts forth to eliminate DIPG. The drive and passion this foundation has sets them apart from any other non- profit I have ever experienced, always discussing new ways to reach people, raise money and help these children. This foundation puts 100% into everything they do from the Gala, to the 5k, the boat ride and every single day in between. I can confidently say that because of the Cristian Rivera Foundation, there will one day be a cure for DIPG.

Professional with expertise in this field

Rating: 5

I have been working as a Part-Time Director for the Cristian Rivera Foundation and am blown away by the dedication and potential of this organization. This foundation is unique in its commitment to providing personal support to DIPG families and its ability to reach a wide, diverse audience in spreading awareness about DIPG. Celebrities, doctors, families, and people from the local community of many different cultures come together for the important cause of potentially saving children's lives. The Cristian Rivera Foundation also produces fundraising events like no other organization through a variety of different platforms including its stunning celebrity gala, NYFW runway shows, 5Ks, boat rides, and even small dinner parties held by board members. We also find creative ways to educate others about DIPG through our website, social media, email blasts, obtaining press, and appearing on local news - anything that can be done so that the world can learn about this terrible disease. In addition, every single penny matters to CRF and is not taken for granted in raising money for DIPG research - we're always thinking of ways big and small to make more money for our cause. I'm proud to say that transparency is key to this organization and something that we strive for in even the smallest of matters. Being a part of the Cristian Rivera Foundation has been an exciting, fulfilling, and life-giving journey so far, I can't wait to see what progress we can continue to make in the future!

Review from Guidestar

Tara V.1

Donor

Rating: 5

Joining the volunteer and fundraising efforts of the The Cristian Rivera Foundation has been a gratifying experience as I have assisted the organization in fighting and raising awareness one of the most aggressive forms of brain cancer in children. What has been most rewarding, is noting the significant progress the contributions have made to treat this horrible disease. Through CFR efforts, we have provided funding for innovative clinical trials that are making a difference with DIPG research. CRF is comprised of all volunteers, committed to eradicating DIPG for our children. The organization finds engaging ways to bring people together to educate them on the disease and raise funds to contribute their mission. I encourage all to view their website and see how they are raising awareness and making change in our world. We hope to see you soon.

Board Member

Rating: 5

I have been a hard worker my entire life and I thought that my accomplishments were enough to fulfill my soul. I was wrong, I always felt like something was missing. I felt I had to do something more, something that was bigger than me. Then I hosted an event for CRF and, I knew at that moment that I had to be part of this GREAT Organization. I joined this Organization less than a year ago and its been the most rewarding thing I have ever done. The work we do is truly selfless.

Donor

Rating: 5

I have donated to and supported many organizations. This Wonderful Organization is Amazing and Worthy. The support they give families who have a Child with DIPG is outstanding. I have witnessed it firsthand. I wish this organization continued success.

Volunteer

Rating: 5

I have Volunteered for several Non for Profits in the past, but The Cristian Rivera Foundation is by far the best one. I say it's the best one because their Gala is TOP NOTCH, Super organized and ran like an award show. After I volunteered, I learned about their programs and was blown away again. This year marks 4 years since I began Volunteering for this Beautiful Organization
and I plan on volunteering more of my time when needed to this inspiring Foundation.

Gleozyl S.

Volunteer

Rating: 5

Volunteering for The Cristian Rivera Foundation was truly an inspiring and fulfilling experience. All contributors in this amazing organization have shown dedication towards providing funding for clinical trials in DIPG research and sharing awareness of DIPG. The organization’s selflessness, hard work, and commitment towards eradicating DIPG in our children is truly inspiring. Please take a look at their site to see the amazing work they have done so far in DIPG awareness and funding research.

Ashley Brito M.

Volunteer

Rating: 5

The Cristian Rivera Foundation is one of the non for profit foundations that i will continue to volunteer for and support. Everything that they are pushing whether is its the GALA or the Walk or the other numerous events, the energy behind this foundation has been outstanding. I am extremely honored to be a part of such an amazing cause where everyone is very much hands on with every detail.To see how much the work they do, and how much they help children and families affected by DIPG, is very inspirational!

Board Member

Rating: 5

The Cristian Rivera Foundation has made an amazing contribution to finding a cure for DIPG, an aggressive and inoperable brain cancer. The foundation’s dedication to research (raising over $1 million) and assistance to children battling DIPG and their families makes this organization one of the most important and influential pediatric cancer-related organizations in the United States.

Board Member

Rating: 5

I am a Proud Member of this Beautiful Foundation. We Save Lives. The Volunteer staff at the Cristian Rivera Foundation is so hard working and dedicated to the mission of eradicating DIPG!

Donor

Rating: 5

It is an honor and truly a gratifying experience to be part of such a life-changing foundation which affects children worldwide. To push forward research efforts to find a cure is a monumental experience and history in the making. Losing someone is never easy, but increasingly compounding when a child is involved. I support this foundation to the fullest for its dedication and unwavering commitment on behalf of all those involved. I believe the Cristian Rivera Foundation along with its partners will be the first to find a cure. I eagerly wait and stand proudly together with them as a witness throughout this process and the unveiling of a cure.

Patricia Rosario, Founder
Unique Models and Marketing

Volunteer

Rating: 5

Finding a non-profit organization where their cause is something you are instantly attracted to is one I found with The Cristian Rivera Foundation. Volunteering with the CRF, I was able to express the same positive energy with those who supported a common goal. Each member, whether that be a volunteer or member of the board, brought a unique skill and their own story as to why the CRF was a great fit for them. As for me, the biggest part of this foundation is the people I work day to day with, the interactions and the love and care each individual has for a future in finding a cure for DIPG is incredible. It is unfortunate that so many children have to endure something so horrible, but with a good team and a winning one, this is the place to spread the love, awareness and compassion you have inside for a great cause. When someone tells you its not possible, here at the CRF, they show you that every volunteer matters, every gesture, donation and education on the matter is little wins for the greater cause. It’s amazing!

Board Member

Rating: 5

“I am more than honored and extremely grateful to be given the opportunity to serve as a staff member for the Cristian Rivera Foundation. Between learning about DIPG, working hand in hand with John "Gungie" Rivera, and working endlessly to raise awareness, I vowed to dedicate the necessary efforts until a cure is found. It takes the right team to uphold The Cristian Rivera Foundation, a team that is selfless, passionate, and devoted to go beyond the norm.. this is the set atmosphere every day at the foundation. I hold this foundation with great esteem and promise to fulfill my duties while serving for the families and children affected by DIPG.”

Volunteer

Rating: 5

I am honored to have this opportunity to volunteer at the Cristian Rivera Foundation. I have not heard of this terrible disease that attacks small children called Pontine Glioma a rare cancer. It gives me great hopes that we can find a break through this illness. Through this journey I will be exposed to so much important research and the foundation is very dedicated to their work.

Advisor

Rating: 5

As a staff member of The Cristian Rivera Foundation, it has/is been a life-changing experience. I never really heard of DIPG which shows why this foundation is created. Not a lot of people know of DIPG until one or someone special they know is touched by it. The Cristian Rivera Foundation is truly amazing, from advocating for these children to raising funds for research. I am two time. cancer survivor, I live every day to help raise awareness for children who are fighting their battles with chronic illnesses. My life dream career is finding a foundation where I can bring my passion for helping children who have a chronic illness and make difference and then I was introduced to The Cristian Rivera Foundation, let me tell you this... It is a truly amazing foundation where they help children and give a tomorrow. It is just amazing to see how much work everyone puts in and how the outcomes are in the end is just heartwarming and life-changing.

General Member of the Public

Rating: 3

A co-worker asked for a donation and ever since I have gotten several emails a week, in spite of 3 requests to be taken off their email list. I would never donate to them again.

Volunteer

Rating: 5

I watched my friend receive the most horrible news a parent could receive: your child has terminal cancer. I wasn’t sure how to help him because I couldn’t even imagine what he was going through. I couldn’t imagine a world without my two daughters, I wouldn’t know how to proceed.

I watched my friend sacrifice his entire career to help keep his son alive. My friend was a successful business man at a young age; he’s an innovator and pioneer in his space. He left it all behind to save his son, to keep him alive.

I watched my friend lose his son. I tried to process what this meant, how to recover, and I couldn’t. Would my friend be able to continue? Would he ever be the same?

I watched my friend create a foundation in his son’s name to help those families that follow him in this journey. He may not be able to prevent this from happening again but he is dedicated to changing that.

I watch my friend lead a group of dedicated volunteers to help rid the world of DIPG. We work together to serve as a resource for families that are impacted by this disease, we also serve as inspiration that a cure is not too far off.

Today I watch my friend as he celebrates the lives of two children who are responding well to the clinical trials that the Cristian Rivera Foundation supports. One child, Lisha Ayala, has lived with the disease for 6 years and has shown no signs of tumor growth.

I’m watching my friend change the world...I’m watching my friend give the medical community hope that we will be able to actively treat this rare disease and eventually cure it.

Join us as we get closer to curing DIPG. Visit our site at CristianRiveraFoundation.org to see all the beautiful things we are doing for our children. Support us by attending our 10th annual Gala on 11/14/18 at Capitale in a New York City.

Watch my friend cure DIPG!

Lauren D.1

Volunteer

Rating: 5

I was a volunteer at The Cristian Rivera Foundation’s 1st Annual Full Steam Ahead 5K Walk/Run. Volunteering to raise funds for families with DIPG and DIPG research was amazing, and so is the work The Cristian Rivera Foundation is doing. Meeting Dr. Mark Souwedine and other families who suffer from DIPG was eye-opening. I got to see how the foundation’s work contributes to clinical trials and families with DIPG first hand. Everyone associated with the organization is so passionate in fighting DIPG and I’m glad I got to meet everyone and help in any way I could.

Volunteer

Rating: 5

I am currently a volunteer for the Cristian Rivera Foundation, and I can honestly say I've never loved taking part it something more. Being given the opportunity to help raise money to fight such a horrible disease with such a great group of individuals is life changing. The work we do as an organization is so inspiring, and gratifying and I am so lucky to be apart of it!

Volunteer

Rating: 5

I am honored to have volunteered for the Cristian Rivera Foundation. I saw firsthand the compassion that goes into the lives of these families dealing with this horrible disease. I saw the miracles and changes this foundation is making through the lives of children and families dealing with DIPG. It is more than a foundation, it is run by a group of caring individuals that go above and beyond for each child suffering from this devastating condition. I truly look forward to working with them again and again and again.

Volunteer

Rating: 5

For years I have wanted to Volunteer for a non profit, but I didn't find one that I felt passionate until I learned about the Cristian Rivera Foundation. The work they do is truly inspiring and full of hope. All the people involved in this foundation care so much and work so hard.

Donor

Rating: 5

I admire the work that The Cristian Rivera Foundation is doing. Being a mother of 2 young children I couldn't bare the thought of losing a child. Learning about DIPG and the fight to find a cure has made me be a loyal supporter of this foundation. I have had the pleasure of attending the Annual Fundraising Gala and can see first hand the work they support in finding a cure. All the best to CRF and hoping to find a cure ASAP.

Board Member

Rating: 5

The Cristian Rivera Foundation is a 100% committed to finding a cure for DIPG from the founder John "Gungi" Rivera to the smallest donor. The passion that this foundation delivers is contagious. The level of Transparency and dedication that goes into running this foundation is second to none. I am very happy and excited to be a part of this foundation and encourage everyone to take time and learn about the great work CRF is doing in its fight against DIPG. Please take the time to visit the website and learn as well as donate..

Board Member

Rating: 5

Since its inception the Cristian Rivera Foundation has been at the forefront in finding a cure for Diffuse Intrinsic Pontine Glioma (DIPG) by raising funds for medical facilities and scientific clinical trials headed by the leading Pediatric Neurosurgeon in the space, Dr. Mark M. Souweidane, of Sloan Memorial Kettering, educating our respective communities on DIPG and most importantly providing emotional and financial support to the families impacted by the terrible disease. We will see a cure in our lifetime because of strong individuals such as its founder, John Rivera, who knows first hand what its like to loose a child to DIPG, the dedicated board members who have been inspired by Cristian Rivera Foundation's mission, the many lives Cristian and John have inspired over the years and best of all, a very special girl who is part of the clinical trial funded by CRF, hit a milestone, seeing no tumor growth for the last 5 years. As a father of two, I am grateful for being a part of the Cristian Rivera Foundation's quest to finding a cure. Full steam ahead.

Donor

Rating: 5

The Cristian Rivera Foundation is a model non-profit organization which helps DIPG patients, survivors, and caregivers throughout the United States. The foundation has raised awareness and brought hope to families who once thought they’ve runout of options for their child. The CRF continues to offer emotional support that is necessary for families as they go through this devastating disease. The foundation and its supporters reached a point of notable success the moment they raised significant funding for research which has led to a successful clinical trial of a young girl who has surpassed the age of mortality of young children who are diagnosed with DIPG. The CRF makes sure to provide information and updates on trial phases and health status of their brave subject, providing even more hope that the path to a cure is closer than we think. Thank you CRF for your mission to save the lives of these innocent, young little humans. We have a family with two young children (plus one on the way) and, as parents, we are grateful for your work.

Board Member

Rating: 5

I had never heard of (DIPG) Pontine Glioma until John's son, Cristian, was diagnosed with this disease. I believe that CRF brings great awareness to this terrible illness. It is my honor to be part of the Cristian Rivera Foundation and help bring an understanding to this understated and implicit disease. We all have a purpose in life and I do believe Cristian's short time in this life and his father's relentless pursuit to find a cure for Pontine Glioma will one day come to fruition.

Donor

Rating: 5

I contribute to the organization due to the tremendous potential they have to save lives of children with DIPG. Seeing how they’ve grown and helped so many children is very satisfying. The Cristian Rivera Foundation is truly a great foundation to contribute to. I will definitely continue donating!

Board Member

Rating: 5

Being associated The Cristian Rivera Foundation has been one of the most gratifying experiences of recent memory. Watching our orgaznation fight one of the most aggressive forms of brain cancer in children, and we are actually making significant progress. Through our efforts, we have provided funding for innovative clinical trials that are making a difference with DIPG research. Comprised of all volunteers, we are committed to eradicating DIPG for our children. Take a look at our website and see how we are raising awareness and making change in our world.

Volunteer

Rating: 5

Where do I start? The Cristian Rivera Foundation is truly a really great organization to volunteer for. It’s so nice to be a part of a foundation that cares so much about the cause. Everyone contributing to CRF is completely selfless and their hard work and dedication to the cause is remarkable. To see how much the work they do, and how much they help children and families affected by DIPG, is very inspirational!

Volunteer

Rating: 4

I’ve been honored to be a part of and witness the miracles and changes in people's lives that CRF has made possible. It is such a wonderful organization that truly cares about helping those affected by DIPG.

Donor

Rating: 5

I’ve been a donor to the Cristian Rivera Foundation for the past six years. The "thank you" letters, pictures and e-mails tell a very moving story of how money well-spent can go a long way. Currently, there is a patient who is participating in the trials, who has been living with DIPG for over 5 years. Usually, DIPG claims the lives of its victims within 12 months of diagnosis. The survivor proves that what I’m donating to is going to a very good cause. DIPG will one day not be something to not fear!




Volunteer

Rating: 5

If you get a chance to be involved with the Cristian Rivera Foundation, please do so. I’ve volunteered at three of their galas and will do so every continuing year. It's more than a foundation, it is run by caring and loving individuals who are making changes in the lives of children dealing with DIPG.

Donor

Rating: 5

I’ve been to four of the Cristian Rivera Foundation galas and I think they are doing wonderful work. They truly embody the qualities it takes to make a difference in the world. There is no disease more heartbreaking than DIPG and this organization is giving it their all to find a cure.

Board Member

Rating: 5

I’ve been lucky enough to be a part of this charity for 2 years now. It’s an absolutely wonderful organization that truly gives 100% of its time, energy and money raised to curing DIPG. I cannot imagine losing a child to this horrible disease and this charity is working to find a cure. I’m blessed to be a part of it!!

Advisor

Rating: 5

I had the amazing opportunity of working with the Cristian Rivera Foundation, and the eagerness of the board to make an impact on children with DIPG's lives was extremely impressive. The leadership of the organization is very motivated and makes sure that their mission and purpose is fulfilled to its greatest potential. Their hard work and motivation has helped so many diagnosed children and their families.