When I first found out about my daughters CHD, this non profit was there to help support and answer any questions we had. When we had our pre-op we received a bag full of some goodies that we would need during our hospital stay. It was very appreciated. Conquering CHD-TN has some amazing members and always wanting to help families.
As the mom of teenagers with CHD, I have spent many years lacking the support CHD families deserve. So I was so thankful to find Conquering CHD, and have been so blessed to find some of my closets friends in this group of parents/CHD patients. The strength, support and encouragement that this organization offers is like no other.
Personally I would rank the ACHD transitional resources and individual hospital kits as two of the greatest benefits that CCHD provides, but it is hard to narrow it down from such a vast offering. I am also continuously impressed with the efforts that CCHD puts into advocacy. This organization works tirelessly to ensure CHD receives the recognition, research and funding it deserves. CHD families in Tennessee (and throughout the country) are incredibly lucky to have such a great resource to turn to as they navigate their CHD journey!
Conquering CHD has been apart of our life since we found out our son had a prenatal CHD diagnosis. We were handed a kit at a prenatal appointment with loads of information to advocate for our son and ask questions of our care team, ways to connect with other families in the area, and comfort items.
Volunteering with this organization, alongside patients, parents, spouses, caregivers, and professionals has been extremely rewarding. The organization is forward thinking and looking to improve the lives of all those effected by CHD, while we all strive to conquer the most common birth defect.
The TN Board is determined to touch all those impacted by CHD and continue to spread awareness across the state.
Volunteering for this organization has been indescribable. The community that has been formed has impacted so many individuals living with CHD. Conquering CHD's mission is to create visibility and empower all impacted by CHD through raising awareness, knowledge, community, and research. As a CHD patient myself, I have found so many helpful resources that I wish I had known about earlier.
Conquering CHD is a one-stop shop for patients with congenital heart disease and their families. As a parent of two CHD patients and a Patient Advocate, I am able to access local support from other CHD families, education on the latest advancements in cardiac treatment and research, as well as participate in legislative advocacy.
Conquering CHD has given me the resources to best advocate for my children and their care and has connected me to a national network from which to learn from and grow with. My family will grow with Conquering CHD, as my children transition to adolescent and adult CHD providers, and eventually manage their care solo. Conquering CHD supports the CHD patient over their lifetime and that's something none of us can go without.
Volunteers in Tennessee provide much-needed support and comfort during difficult times. They host events to celebrate the good times. They provide education and resources when patients and families need it most. They are truly changing the landscape of congenital heart disease, one patient at a time!