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- EIN 81-3318160
- 4402635906
- 5210 Sunset Ridge Drive Mason OH 45040 USA
- https://www.chronicpainpartners.com/
- Facebook page
- EDSawareness1
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Well organized and fully connected with resources and education related to Ehlers- Danlos syndromes and associated conditions
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JEFERMAN, Board Member
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Nonprofit Overview
Causes: Education
Mission: www.EDSawareness.com is a new online resource for the Ehlers-Danlos Syndrome community. We provide informative resources for individuals suffering with EDS and their caregiver networks. The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome, both in the general public and within the medical community. Driven by participation and shared learning, we hope to improve the quality of life for those afflicted with EDS – and those who care for them. Website content is presented “by EDSers, for EDSers” – therefore, it is driven by user participation and learning – for the benefit of all EDSers. The greater the participation, the greater the value to the whole community.
Results: Chronic Pain Partners non profit 501(c)(3) - EDSawareness.com Founded in 2012 By John Ferman & his daughter Deanna Hamm Helped over 120 EDS Support groups world wide Over 85 monthly patient oriented Educational programs In 2017 created First online EDS Physician CME Educational course
Target demographics: Those with Ehlers-Danlos Syndromes
Direct beneficiaries per year: Form 6 new EDS Support Groups
Geographic areas served: worldwide
Programs: Educational webinars for members and medical professionals