Children's Cancer Cause (formerly Children's Cause for Cancer Advocacy)

Results: •Hosted a September 13, 2018, FDA-approved Patient Focused Drug Development (PFDD) on chemotherapy-included hearing loss in pediatrics with 200 attendees. •Fought for passage of the STAR Act (2018), the most comprehensive childhood cancer legislation ever introduced and is designed to advance pediatric cancer research and child-focused cancer treatments, while also improving childhood cancer surveillance and providing enhanced resources for survivors. •Helped organize Childhood Action Days in Washington, DC, a childhood cancer community event that now takes place annually. •Convened five in-depth workshops on research and care for patients and survivors. •Developed and disseminated a range of free educational materials including an advocacy toolkit for anyone for new and seasoned advocates, a brochure for social workers, and online materials including an e-bulletin and blog. •Launched an advocacy training program, composed of in-person workshops and monthly conference calls and/or webinars •Awarded scholarship for childhood cancer survivors. •Established an advocacy training program called the Kids Action Network (KAN), where we share advocacy tips, policy updates, free materials, and information on how to get involved. •Collaborated with Congressional staff and other stakeholders to draft the Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act, which was introduced in 2013. Fought for funding for the original Caroline Pryce Walker program during its initial authorization period. •Advanced provisions in the 2012 FDA Safety and Innovation Act (FDASIA) to speed the development of treatments for children with cancer through incentives for companies, to reauthorize the pediatric subcommittee of the Oncologic Drugs Advisory Committee on a permanent basis, and to increase the focus on pediatric rare diseases, especially cancer.

Target demographics: children with cancer, childhood cancer survivors, and their families

Direct beneficiaries per year: thousands of families fighting a childhood cancer diagnosis

Geographic areas served: United States

Programs: • Advocacy on Capitol Hill • Free advocate training and materials • Online Action Alert Center where advocates can create a letter, send an email, or post a social media message for Members of Congress • Free webinars • Scholarships for childhood cancer survivors • Monthly newsletters • Surveys and reports