A Godsend. They are awesome, I know. Our daughter was recently diagnosed with Lafora. Her name is also Chelsea. I sent Linda Gerber and email and she responded in less that 24 hours. With not much information about this disease, Chelsea's Hope is the best resource we have because it is a link to real people who know what they are talking about, that also has a mission to fight this disease. Not only do the represent the only non-profit for this in America, they also introduce all of our children and fight very hard to be a voice for them. They are the strongest alliance we have against a terrible foe. If not for them we would have nothing.
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- EIN 27-1008382
- connect@chelseashope.org
- (925) 963-7122
- PO Box 1984 Danville CA 94526 USA
- www.chelseashope.org
- Facebook page
- ChelseasHope1
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Nonprofit Overview
Causes: Health
Mission: The mission of Chelsea's Hope is to aid and assist the Lafora researchers by raising funds for research, treatment and cures for those affected by Lafora. In addition, our goal is to raise awareness about Lafora and to provide connection and assistance for families in the form of education, emotional and general support.
Programs: A grant was made to dr. Minassian for lafora research.