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almerrill

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1 reviews

Review for Chelsea's Hope Lafora Research Fund, Danville, CA, USA

Rating: 5 stars  

A Godsend. They are awesome, I know. Our daughter was recently diagnosed with Lafora. Her name is also Chelsea. I sent Linda Gerber and email and she responded in less that 24 hours. With not much information about this disease, Chelsea's Hope is the best resource we have because it is a link to real people who know what they are talking about, that also has a mission to fight this disease. Not only do the represent the only non-profit for this in America, they also introduce all of our children and fight very hard to be a voice for them. They are the strongest alliance we have against a terrible foe. If not for them we would have nothing.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served