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- EIN 33-0395993
- (888) 999-9428
- PO Box 659 Paoli PA 19301 USA
- https://genetic.org
- Facebook page
- AXYSinfo
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Nonprofit Overview
Causes: Health, Mental Health, Unknown
Mission: Founded in 1989, AXYS mission is to help individuals with one or more extra x and/or y chromosomes and their families lead fuller and more productive lives by raising awareness of the disease, educating medical professionals, fostering research, and promoting early diagnosis and treatment.
Target demographics: individuals with X & Y variations and their families to live fuller and more productive lives.
Direct beneficiaries per year: Over 7000 families
Geographic areas served: the US and beyond.
Programs: AXYS Family Conference every other year bringing over 400 people together so families and researchers can learn from each other. Online library of peer-reviewed research articles on all X&Y variations and related topics. Online and in person support groups.