This is an all-volunteer web-based organization, with no paid employees or administrative costs. An excellent source for extensive information about sudden death at all ages and its connection with autonomic dysfunction, including research, assistive devices, and other helpful information. Gives information about subtle symptoms and how to prevent sudden death and/or disabilities. Provides resource materials for schools, to aid in preventing sudden death of athletes and others. Encourages use of inexpensive orthostatic blood pressure test to give indication of high risk for sudden death.
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