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International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: Grow and gather all stakeholders to collaboratively improve understanding of hyperhidrosis; conduct and foster research; build public awareness; advocate and support hyperhidrosis sufferers; educate, inform and inspire clinicians and innovators. Founded in 2003 by a team of respected experts in hyperhidrosis research and patient care, the International Hyperhidrosis Society (IHhS) is the only independent, non-profit, global organization working to improve the quality of life among those affected by excessive sweating. The organization’s mission is to reduce the symptoms, anxiety, and social stigma associated with excessive, uncontrollable sweating by improving the information, support, care and treatments available to the millions of hyperhidrosis sufferers worldwide. As part of this mission, the IHhS conducts and collaborates on hyperhidrosis research, educates healthcare professionals in optimal, up-to-date hyperhidrosis diagnosis and management practices, raises awareness about the condition's emotional, economic, and life impacts, and advocates for improved patient access to effective treatments. From individual sufferers and clinicians, to pharma, biotech and regulatory bodies, the IHhS creates a hyperhidrosis community of collaboration and cross-pollinating that results in meaningful improvements in hyperhidrosis diagnosis, care and understanding. All programs are crafted within the service framework of advocacy, research, education and awareness.

Community Story

4 Francisco Romero Amondarain

Francisco Romero Amondarain Volunteer

Rating: 5

10/15/2019

Hello,

My name is Francisco, I'm from Madrid, Spain. I am 36 years old and I want to tell my story and the gratifying discovery of seeing that a great association such as the International Hyperhidrosis Society, represents and defends a community of those affected by hyperhidrosis.

Since I was little, I had hyperhidrosis in my feet, hands and armpits, people always accused me of being nervous, but I didn't understand why I kept sweating so much when I wasn't nervous.

The primary and secondary educational stage were very hard, shaking hands with a girl, playing with classmates, writing and taking notes, going out to play, etc. All school assignments caused me a significant drop in self-esteem, nobody understood me and many people looked at you and made very unpleasant comments with sweat.

My adolescent stage was hard, it was very difficult for me to shake hands with my partner, to be in any social event, to constantly smash my footwear because of excessive sweat. I started working very young and I had many limitations in practically all the jobs by sweating through the armpits and wetting any work uniform, shaking hands with clients and looking at you with a very unpleasant face, standing and sitting, feeling like Your feet were flooded.

Despite these limitations, I consider myself a warrior and worked, studied and played sports every day since I was a child, my life was very limited but I tried to normalize the situation as much as possible starting from a very unfair basis to compete with other normal people.

My last stage of life has been totally marked by the bilateral thoracic sympathectomy operation that, it is supposed, was going to end my limitations that I had been dragging since I was little with my main enemy, my own sweat.

Unfortunately, the results of the operation were not the desired ones and my complex sweating problem became a daily nightmare, a condemnation, a curse to suffer sweat all over my body, my problem with sweat far from improving, the situation worsened at 300%

I currently sweat through the following areas of my body and suffer the following damages:

- Half right face, half right head, half right neck.
- I do not sweat on the left half face, I do not sweat on the left half head, I do not sweat on the left half neck.
- When I sweat on the right half face, I don't sweat on the left side The entire left area of my head gradually heats up like a running engine.
- Severe headaches, especially in the area where my head overheats and does not sweat.
- I can not cry, I can not tear, my left eye does not produce tears, my right eye barely produces tears.
- I suffer from continuous fungal infections due to the constant moisture of my skin.
- I suffer damage to my skin due to dyshidrosis and seborrheic dermatitis.
- My mouth, tongue and throat dry, that produces a strong pain, I feel those areas burn. I worked as a telemarketer, in fact, it was the job I did best and for which it was worth. Today I can no longer work as a telemarketer, if I do, the consequences can be dire for me.
- I have electric shocks on lips and tongue.
- I have a huge thirst for the massive loss of water throughout the body.
- I sweat for the entire thorax.
- I sweat down my entire back.
- I sweat for the buttocks.
- I sweat for the genitals.
- I sweat for my whole legs.
- I sweat my feet.
- My left hand doesn't sweat.
- My right hand partially sweats.
- My armpits sweat partially.
- I suffer constant colds from temperature changes.
- I suffer strong fatigue when my whole body sweats at the same time.
- I suffer continuous voltage drops.
- I fall asleep during the day fleetingly under morbid sleep that I am not able to control.
- I suffer electric shocks in the Achilles tendons when walking and sitting.

The operation of bilateral thoracic sympathectomy has been the worst decision of my life, my whole life has collapsed and limited both socially, work and health. Personally I do not recommend this operation to anyone because of the many negative risks it has.

I wish I had known about the existence of the International Hyperhidrosis Society before the operation, from the moment it was founded. This association helps and supports all those affected by hyperhidrosis in the world and must enhance their performance and we, those affected by this terrible disease, must support it to continue growing and continue to represent us.

I will help, within my means, to make this association prosper and I will help all the people I discover with hyperhidrosis along the path of life that I have left.

Thank you,

Regards

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