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2020 Top-Rated Nonprofit

International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: Grow and gather all stakeholders to collaboratively improve understanding of hyperhidrosis; conduct and foster research; build public awareness; advocate and support hyperhidrosis sufferers; educate, inform and inspire clinicians and innovators. Founded in 2003 by a team of respected experts in hyperhidrosis research and patient care, the International Hyperhidrosis Society (IHhS) is the only independent, non-profit, global organization working to improve the quality of life among those affected by excessive sweating. The organization’s mission is to reduce the symptoms, anxiety, and social stigma associated with excessive, uncontrollable sweating by improving the information, support, care and treatments available to the millions of hyperhidrosis sufferers worldwide. As part of this mission, the IHhS conducts and collaborates on hyperhidrosis research, educates healthcare professionals in optimal, up-to-date hyperhidrosis diagnosis and management practices, raises awareness about the condition's emotional, economic, and life impacts, and advocates for improved patient access to effective treatments. From individual sufferers and clinicians, to pharma, biotech and regulatory bodies, the IHhS creates a hyperhidrosis community of collaboration and cross-pollinating that results in meaningful improvements in hyperhidrosis diagnosis, care and understanding. All programs are crafted within the service framework of advocacy, research, education and awareness.

Results: Educated hundreds of medical professionals in hyperhidrosis diagnosis and care; Provided bi-monthly e-newsletter to over 50,000 subscribers; Conducted and supported research and development of improved treatments; Millions of media impressions; Millions of visitors to our continuously-updated site: www.SweatHelp.org.

Target demographics: kids, adults, families suffering with excessive, uncontrollable sweating

Geographic areas served: Global.

Programs: physician education, research support, advocacy for sufferers, and public awareness.

Community Stories

164 Stories from Volunteers, Donors & Supporters

4

Client Served

Rating: 5

I have suffered from hyperhidrosis for most of my life and for many years felt isolated by my condition. However, the International Hyperhidrosis Society, has helped me share my story. IHhS is a true advocate, committed to furthering research and educating patients and healthcare providers about the causes, management and treatment of hyperhidrosis. The physicians and staff affiliated with IHhS are extremely knowledgeable and take a hands-on approach to truly understand patients’ needs and concerns. I encourage anyone who has suffered, or who knows someone who suffers from hyperhidrosis, to connect with IHhS. Their comprehensive website provides all of the latest information, research and tools available to patients and families. There is a great community available for support!

1

Advisor

Rating: 5

I am a research psychologist specializing in patient-facing measures of the impact of disease and treatment. I worked closely with the International Hyperhidrosis Society during the development of a measure for palmar hyperhidrosis. Both Lisa Pieretti and Marilyn Perez were instrumental in the success of that project. More importantly, I had the opportunity to learn first-hand the nature and extent of the impact on patient lives. IHhS takes advocacy and support to the next level. It is both rare and heartening to find such devotion and tireless dedication in such an organization.

1

Professional with expertise in this field

Rating: 5

As a dermatologist treating Hyperhidrosis for well over a decade, I am consistently moved and inspired by the extraordinary support given to these brave patients by the extraordinary people of the International Hyperhidrosis Society. Suffering with Hyperhidrosis can be debilitating and the International Hyperhidrosis Society provides care to patients, support to physicians and awareness to the community. They are an invaluable resource.

2

Professional with expertise in this field

Rating: 5

As partners of the International Hyperhidrosis Society (IHS), we at South Beach Symposium have benefited greatly from the work of this valuable organization. Through this partnership,
we have been able to connect our audience of medical and aesthetic dermatologists with access to timely resources surrounding the latest research and treatment options for hyperhidrosis. We strongly value the work of IHS, and are proud to work together with
this mission driven organization.

2

Professional with expertise in this field

Rating: 5

The Derma Care Access Network collaborated with the International Hyperhidrosis Society to acknowledge Hyperhidrosis Awareness Month in November. They were an excellent partner and we were thrilled to contribute to the meaningful advocacy they do. We look forward to supporting the International Hyperhidrosis Society as they continue their great work.

4 Derm A.

Professional with expertise in this field

Rating: 5

The Dermatology Nurses' Association (DNA) can depend on the International Hyperhidrosis Society to provide reliable, up-to-date information about hyperhidrosis treatments and research. As healthcare providers, our members rely on IHS resources to help augment their expertise in providing quality patient care. The DNA was honored to collaborate with the IHS during Hyperhidrosis Awareness Month and looks forward to working together in the future

3

Advisor

Rating: 5

I literally cannot write enough positive things about the International Hyperhidrosis Society. I have served on staff helping to make sure the insurance information on the website was the most up-to-date. As a lifelong sufferer, I found IHhS years ago when I was trying to find more information about the diagnosis. What I found was a bonded community of patients, so supportive of each other, and an organization that was focused on current research and treatment options.

3

Volunteer

Rating: 5

My experience with IHhS was hands down one of the best. Not only are the people behind it some of the most kind-hearted and caring people I've met but understand the immediate need that a lot of people have regarding Hyperhydrosis. Their knowledge of the subject, their passion for the cause and finding a solution is second to none. I was brought on to capture on film their process of setting up their DC Masterclass. While filming I also learned a lot about the subject, so it was very educational as well. I was able to create a fun video showcasing all of this and know that others who watch will walk away seeing and feeling that IHhS is full of good and passionate people for a good cause.

4

Client Served

Rating: 5

I have suffered from hyperhidrosis for most of my life and for many years felt isolated by my condition. However, the International Hyperhidrosis Society, has helped me share my story. IHhS is a true advocate, committed to furthering research and educating patients and healthcare providers about the causes, management and treatment of hyperhidrosis. The physicians and staff affiliated with IHhS are extremely knowledgeable and take a hands-on approach to truly understand patients’ needs and concerns.
I encourage anyone who has suffered, or who knows someone who suffers from hyperhidrosis, to connect with IHhS. Their comprehensive website provides all of the latest information, research and tools available to patients and families. There is a great community available for support!

Previous Stories
3

Client Served

Rating: 5

I have suffered from hyperhidrosis for most of my life and for years I felt isolated by my condition. I was fortunate to find the International Hyperhidrosis Society, an incredible resource for patients suffering from hyperhidrosis. IHhS is a true advocate, committed to furthering research and educating patients and healthcare providers about the causes, management and treatment of hyperhidrosis. The physicians and staff at IHhS are extremely knowledgeable and take a completely hands-on approach with patients to truly understand their needs and concerns. I have continued my treatment with physicians who contribute to IHhs and am happy to give back where and when I can.
On a personal level, IHhS has afforded me the opportunity to meet other individuals with hyperhidrosis and to finally realize that my condition not unique and I am not suffering alone! I encourage anyone who has suffered, or who knows someone who suffers from hyperhidrosis, to connect with IHhS. Their comprehensive website provides all of the latest information, research and tools available to patients. There is a great community available for support!

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3

Professional with expertise in this field

Rating: 5

I have had the pleasure of working with Lisa and her team for several years now on educational initiatives for both the public and fellow physicians. Their passion, energy, and level of dedication to this field is unparalleled, not to mention it is always a fun time working with them. While hyperhidrosis is exceedingly common, for many years it was uncommonly recognized allowing the millions affected to suffer in silence. The IHHS has been central to lifting this veil for the broader community resulting in those impacted getting proper care and stimulating industry to develop new therapeutic approaches.

Adam Friedman, MD
Professor and Interim Chair of Dermatology
Residency Program Director
GW School of Medicine and Health Sciences

3

Client Served

Rating: 5

Volunteer patient served 5/2019 in Washington DC: I am so grateful to International Hyperhidrosis Society for the opportunity to receive free Botox injections to control my craniofacial sweating problem. The staff was welcoming and supportive and the doctors who administered the treatment were compassionate and caring. I have had fairly good results and almost a year later have not been sweating on my face and head during normal weather (when the temperature is not over 70 degrees). I was apprehensive about receiving the injections in my face and head because I didn't know what the visible results or pain level would be. I was pleasantly surprised that there was little apparent change in my facial appearance and the injections were not more than a momentary pinprick of pain. I have gone from having a soaking wet head of hair and sweaty face within minutes of awakening to being able to get my hair done at a salon and keeping the style intact for several days. I may even try to wear make-up again. What a joy after all these years of discouragement, embarrassment and shame! Thank you International Hyperhidrosis Society, you are wonderful people!

3

Client Served

Rating: 5

I am so thankful for the International Hyperhidrosis Society! Without them, I would never have had the courage to share my Hyperhidrosis story with the world! I was one of the #MyHhStory winners in 2019 and I got to go to Washington DC with my husband to record #MyHhStory! A few months later, I flew back to Washington DC to receive FREE Botox injections in my underarms to help control my sweating!!! It was such an amazing experience that I will never forget! The people at the International Hyperhidrosis Society are so caring, compassionate, and friendly! Thank you so much to the International Hyperhidrosis Society for all of the wonderful opportunities and resources! ❤️

2

General Member of the Public

Rating: 5

Si, me opere en el 2004, en nov-diciembre, y hasta que llego mayo-junio, todo bien, en junio empecé a tener sudor compensatoria, por la espalda, barriga, piernas, nalgas. En la cara, me salió rosácea, y esta operación que te quita el blushing, a mi no me ha quitado nada, sudor gustativo, algunas veces comes alimentos y te da por sudar la frente Hasta día de hoy esto va a peor, el sudor es mas fuerte tanto en verano, como en invierno, en las manos, tengo que echarme cremas, porque en invierno las tengo muy resecas, y se agrietan. en invierno sudas como si fuese verano, y del frio coges unos resfriados exagerados. Esta Operación deberían de prohibirla, pero mientras hayan cirujanos lucrándose de dinero esto no lo paran. Ahora solo tenemos un cirujano en Taiwán y otro en America, que reconstruyen nervios, pero estas operaciones son de un coste muy elevado. Espero que la Sociedad de Hiperhidrosis, tome cartas con esta operación, porque una vez que te han cortado (cauterizado) los nervios T2, T3, T4, te cambia la pida a peor, y el Sudor Compensatorio es peor de lo que explican los cirujanos.

3 Meg B.3

Client Served

Rating: 5

Can you imagine being 8 years old and having your hands sweat so badly that classmates make fun of you? As a parent it was so hard to see, but IHHS offered us so much information and encouragement and directed us to many sources of help. This is one non profit that is truly serving the needs of their "community"

3 Francisco Romero Amondarain

Volunteer

Rating: 5

Hello,

My name is Francisco, I'm from Madrid, Spain. I am 36 years old and I want to tell my story and the gratifying discovery of seeing that a great association such as the International Hyperhidrosis Society, represents and defends a community of those affected by hyperhidrosis.

Since I was little, I had hyperhidrosis in my feet, hands and armpits, people always accused me of being nervous, but I didn't understand why I kept sweating so much when I wasn't nervous.

The primary and secondary educational stage were very hard, shaking hands with a girl, playing with classmates, writing and taking notes, going out to play, etc. All school assignments caused me a significant drop in self-esteem, nobody understood me and many people looked at you and made very unpleasant comments with sweat.

My adolescent stage was hard, it was very difficult for me to shake hands with my partner, to be in any social event, to constantly smash my footwear because of excessive sweat. I started working very young and I had many limitations in practically all the jobs by sweating through the armpits and wetting any work uniform, shaking hands with clients and looking at you with a very unpleasant face, standing and sitting, feeling like Your feet were flooded.

Despite these limitations, I consider myself a warrior and worked, studied and played sports every day since I was a child, my life was very limited but I tried to normalize the situation as much as possible starting from a very unfair basis to compete with other normal people.

My last stage of life has been totally marked by the bilateral thoracic sympathectomy operation that, it is supposed, was going to end my limitations that I had been dragging since I was little with my main enemy, my own sweat.

Unfortunately, the results of the operation were not the desired ones and my complex sweating problem became a daily nightmare, a condemnation, a curse to suffer sweat all over my body, my problem with sweat far from improving, the situation worsened at 300%

I currently sweat through the following areas of my body and suffer the following damages:

- Half right face, half right head, half right neck.
- I do not sweat on the left half face, I do not sweat on the left half head, I do not sweat on the left half neck.
- When I sweat on the right half face, I don't sweat on the left side The entire left area of my head gradually heats up like a running engine.
- Severe headaches, especially in the area where my head overheats and does not sweat.
- I can not cry, I can not tear, my left eye does not produce tears, my right eye barely produces tears.
- I suffer from continuous fungal infections due to the constant moisture of my skin.
- I suffer damage to my skin due to dyshidrosis and seborrheic dermatitis.
- My mouth, tongue and throat dry, that produces a strong pain, I feel those areas burn. I worked as a telemarketer, in fact, it was the job I did best and for which it was worth. Today I can no longer work as a telemarketer, if I do, the consequences can be dire for me.
- I have electric shocks on lips and tongue.
- I have a huge thirst for the massive loss of water throughout the body.
- I sweat for the entire thorax.
- I sweat down my entire back.
- I sweat for the buttocks.
- I sweat for the genitals.
- I sweat for my whole legs.
- I sweat my feet.
- My left hand doesn't sweat.
- My right hand partially sweats.
- My armpits sweat partially.
- I suffer constant colds from temperature changes.
- I suffer strong fatigue when my whole body sweats at the same time.
- I suffer continuous voltage drops.
- I fall asleep during the day fleetingly under morbid sleep that I am not able to control.
- I suffer electric shocks in the Achilles tendons when walking and sitting.

The operation of bilateral thoracic sympathectomy has been the worst decision of my life, my whole life has collapsed and limited both socially, work and health. Personally I do not recommend this operation to anyone because of the many negative risks it has.

I wish I had known about the existence of the International Hyperhidrosis Society before the operation, from the moment it was founded. This association helps and supports all those affected by hyperhidrosis in the world and must enhance their performance and we, those affected by this terrible disease, must support it to continue growing and continue to represent us.

I will help, within my means, to make this association prosper and I will help all the people I discover with hyperhidrosis along the path of life that I have left.

Thank you,

Regards

3

General Member of the Public

Rating: 4

Greetings, my name is Regina and I live in Dallas, TX. For years I have had the heavy burden of profuse sweating from my head and face. It started in high school and has gotten progressively worse through the years. I can be doing something light or absolutely nothing and the pouring begins...and won't stop until it feels like it. As you can imagine, this is very frustrating in working situations, as well as the airport etc...I have read up on ETS and the thought of sweating in other places after the surgery scares me to death. Does anyone know of anything less invasive that could help me! I just ran across this non profit as I was doing research but I will certainly stay engaged from this point forward. Is there a study out there that I might be able to participate in that is less invasive than ETS??? Any guidance would be greatly appreciated. Thank you.

Signed,
Desperately seeking a cure

3

Volunteer

Rating: 5

I can not write English properly but i will simply put my case in few letters
So i am craniofacial hh patient
Yes i am a patient
When i make a small effort .. my face gets like swimming pool and i feel itchy
I think humidity is the second reason or the most trigger .
I feel not good when i get sweat all my face,head,neck and chest .
I feel not good
I will try oxybutynin and i will see

3

General Member of the Public

Rating: 5

Hi my name is Mary Ann and I have been suffering with hyperhidrosis from the age of 6. My parents were not even aware of it at the time. I got f's in penmanship all through school because my papers were a mess. We used fountain pens so you can just imagine what that does to a wet paper. High school was horrible. I didn't want to date or go to any dances. Square dancing was a requirement one year so I told my mother I was going to skip school if she did not write me an excuse. I married the first person that would have me because my self esteem was so bad I didn't feel worthy of any better. As you can imagine it did not last. I now have a wonderful man that is understanding of everything I am going through. I had a sympothecomy done 37 years ago and it worked great but now I sweat everywhere else below my shoulders and every year it gets worse. The doctor says they can't do anything about it because of the sympathectomy being done. For that reason I would not recommend having it done but at the time there was nothing else. I feel I won't make it through another summer sweating so badly that I am not really living life. I have to drink Gatorade all the time and change 4 times a day. I really want to help other people get through this even if it's to late for me. Thank you most sincerely (dressed in black)

2

General Member of the Public

Rating: 5

The international hyperhidrosis is terrific! I attended several of their events including their my hyperhidrosis podcast session, several of their poster presentations at the AAD, as well as their CME event in Washington DC. The organization provides education to the general public AND clinicians! In my opinion, this is what makes them so special. The staff is extremely caring and accommodating and have treated me as their own since day one. They do a lot of great work for the community and I am so thankful that I met Lisa and the rest of the team! They have changed my life for the better :)

4

Volunteer

Rating: 5

I couldn’t thank IHHS enough for what they did and do for me as well as the thousands of other sufferers. IHHS is the voice of countless people that are too embarrassed to seek treatment. Lisa and all of her staff are extremely welcoming, understanding, and knowledgeable. Without them, I wouldn’t have received today’s Botox injections.

3

Client Served

Rating: 5

As someone who suffers from palmar Hyperhidrosis, I have struggled for a long time to find a treatment that works for me. Luckily, IHS came to my city and opened my eyes to all the possibilities, and, more importantly, showed me that I was not alone.

3

General Member of the Public

Rating: 5

Wonderful demonstration......definitely learned a lot today......special thanks to Marilyn and Lisa!!! Way to go guys!!!

4

Client Served

Rating: 5

I have spent years explaining why I have water dripping down by face and in my eyes! People think something is wrong like a stroke, heart attack etc. very embarrassing so I lay low when I am in a group of people!

3 Sophia6

Client Served

Rating: 5

This organization has impacted the quality of my life dramatically! I’m forever indebted to their good works and service!! Sophia W. #sweatbegone!

Previous Stories
1

Professional with expertise in this field

Rating: 5

In short, the International Hyperhidrosis Society changes lives. I can say this because my life began the day I learned of IHHS and started receiving treatment. Suddenly I was managing my condition rather than it managing me.

After treatment a whole new me emerged. A confident, stronger, me. I quickly recognized that others were suffering in silence just as I once was. They deserved to live life without the symptoms this condition afflicts. They needed to be told help was available.

The IHHS is an invaluable resource for sufferers. Armed with the latest research and the brightest physicians, I knew I wanted to get involved to help spread the word.

As an advocate for the society I have seen first hand the good works this nonprofit does. Coast to coast they promote awareness, treat the condition, and educate. The IHHS improves the quality of lives for sufferers. Lives are changed. I have seen it.

Thank you IHHS and keep up the great work!

Read more
3

Client Served

Rating: 5

Beyond grateful for this fantastic organization. So thankful for all of the work IHHS does on behalf of sweaty patients. IHHS gives patients a voice and a community and have positively impacted my life in many ways.

3

Client Served

Rating: 5

The IHHS is a great society that truly works to help better the lives of people suffering with hyperhidrosis. They are great at providing resources and information to suffers. They work closely with physicians to help spread knowledge and research. They really care about the people they work with.

4

Client Served

Rating: 5

What an amazing group of people leading this cause! I’ve never felt so comfortable and understood with a group of people through this condition. I can’t say enough good things about this society!!

2

Volunteer

Rating: 5

21 yr old female with severe hyperhidrosis The staff is very friendly and resourceful

2

Volunteer

Rating: 5

THE best group of people and support for an unknown condition that can totally take control of your life. They have been a blessing to me

3

Volunteer

Rating: 5

Hi I'm joy 21 yrs old suffering from hyperhydrosis . I hope someone could help me with the treatment. I really want to have a normal life like everybody and be totally me without having second thoughts of hanging out with others or wearing jackets every time I go out. I really pity myself for having this condition since childhood. I hope some would support me overcome this condition and be finally free from it.

6 MyLifeAsAPuddle

Client Served

Rating: 5

Thanks to the International Hyperhidrosis Society I can finally stop apologizing for who I am. They changed my life 8 years ago at their Hyperhidrosis Master Class. Understanding, compassionate and unbiased, they saw me and my hyperhidrosis not as a profit-making venture but as something they could help me treat, manage and feel better about while at the same time educating dermatologists on the front lines to recognize the condition by name.

Previous Stories
7

Client Served

Rating: 5

The IHHS gave me the strength, courage, and gusto to stop hiding my sweating secret. I received treatment at one of their CME symposiums. When I arrived and saw the signage proclaiming excessive sweating and read all the stories about people just like me, it was incredibly validating. I could finally sit in a room and sweat without any worries, while at the same time listen to experts who are pioneers in the field and who offer treatments of hope. When I left the symposium that day, I felt like a million bucks. A palpable shift occurred within me that was rather unexpected. As a result of my interactions with Executive Director Lisa Pieretti, I was inspired to launch a blog called My Life as a Puddle to create hope and awareness one drop at a time. The care, attention, and understanding of those at the IHHS is astounding. They GET IT. That day was more than just a CME symposium and an opportunity for treatment. It was about validation, courage, strength, and being seen and physically touched by all of the IHHS staff without having to worry about what they thought of my sweating. I can be changed by my circumstances, but not reduced by them. Maya Angelou once said, “Beauty and strength can be found in adversity.” I thank the IHHS deeply for helping me on my way to find mine.

3 Elle Marie D.

Client Served

Rating: 5

The International Hyperhidrosis Society is such a great resource for people looking for support for hyperhidrosis or for anyone wanting to know more about hyperhidrosis! I am beyond thankful for the International Hyperhidrosis Society! Before finding the International Hyperhidrosis Society, I thought I was alone with Hyperhidrosis, but thanks to them, I’ve actually built up the courage to share my story with the world!

I was one of four #MyHhStory Audio Project winners in March of 2019. From the moment my husband and I arrived in Washington DC, Marilyn and Lisa were so kind, caring, and helpful to us. I was so honored to be a part of a project that was so powerful and moving. I truly believe that the International Hyperhidrosis Society really cares about making a difference for people with Hyperhidrosis; I can’t wait to see what they accomplish in the future!

3

Client Served

Rating: 5

As the mother of a daughter who has excessive sweating of the hands and feet, I can attest to the negative impact it has had on her life since childhood. We are grateful for the support of the IHhS and for the increasing public awareness they provide. Let’s work together so the patients do not have to suffer in silence!

5

Client Served

Rating: 4

My name is Rita and I suffer from Hyperhidrosis of the head and face. This is really upsetting as I m a dance teacher who is expected to dance with different students, but the least exertion starts my head and face pouring with sweat. This has been happening now for the past 6 years. The doctor gave me some tablets that are called Oxybutynin , but they have increased my weight considerably. I would love dearly if someone could please please help me.

1

Volunteer

Rating: 5

Hi my name is Manish and I am suffering from a disease called hyperhidrosis since childhood. It comes out sweat in my palm, too much and sweat in the armpit, does anyone help me

2 Chantha O.

Volunteer

Rating: 5

I am Chantha I am Cambodian. Now I am living with sweaty hand. I had this discess since I was 14 years old no one can help me. Can you help me to cure it?

3

General Member of the Public

Rating: 5

I don't even know where to begin,this is a real living nightmare. Since I was a little girl, I have had sweaty hands and feet, but my mom believed it was pretty much when I would get excited going to an amusement park going for ice cream, for some reason she thought it was cute and normal. Fast forward to the past 25+Years, this cute sweaty hands stuff is not cute not one bit it literally has been,and continues to ruin my life, personal, professional,and spiritual life,it's relentless. I have major hyperhidrosis.. sweaty palms,feet,and underarms, I have severe social anxiety and depression due to my self esteem issues, I am in therapy,but no matter what "relaxation" techniques I am taught..Reality is, I still can not wear colors ( black is all I can wear that kinda hides the wetness) I would love to wear red,green light blue,pinks but those are a big No No.. I can't hug because of how wet my pits get even in AC and in winter weather, I can not cuddle up with my fiance' it causes friction in our relationship, because I get so sweaty and uncomfortable, I get so embarrassed and move away from him,he thinks it's him,I just don't want to point out my condition..which I'm pretty sure he knows,it's obvious, I just can't articulate to him the word "hyperhidrosis"it's horrible. I have turned down jobs because the uniforms are not black, I have bombed interviews because I have practically ran out of the room so I wouldn't have to shake their hands, needless to say I never received a call back. I can not think of one job that would not require shaking hands, paperwork, keyboard,wet and soggy are inevitable. I am a Christian and I love my church,but I can not participate in many things,due to my condition, I dread the weekly "meet and greet" part on Sunday mornings I have so much anxiety leading up to that I am fanning my hands even in AC,praying to God to dry my hands, before the pastor tells us to "meet our neighbor", I try and make my way to the restroom real quick or pretend to be tying my shoe,it's ridiculous! Lately I haven't even been attending church and that makes me so sad. I have tried Rx strength deodorant,lotions and medication is not an option for me. I pray to God that there will be some kind of treatment, a treatment that first of all relieves this emotional pain, also I pray a treatment that will be covered by insurance / Low cost/ No cost will be accessible to ALL us HH sufferers. God Bless you all!!

3

General Member of the Public

Rating: 5

Hi. My name is Jonathan Headrick. I am 35 years old. I have the condition of hyperhidrosis. In high school, I was very outgoing, energetic, confident, bold- a social butterfly if you will. My earliest memory, or symptom, was two wet spots underneath each armpit after sitting in an air conditioned room. I was 18. Over the next few years , the sweating increased tenfold. Although social situations seem to trigger the excessive sweating, it eventually got to the point of upon awakening in the mornings my palms and underarms would be sweaty. I began to isolate, stopped going out with my friends, and became very self-conscious of my condition. I packed multiple shirts to carry with me everywhere I went. Due to my increased awareness and self-confidence depletion, I developed a nervous disorder. By age 21, I had almost became a loner. The only thing I found that was semi effective, was alcohol. Although the next day, the sweating was back to normal(per say) if not a little more than normal, yet during the times that I drank, it subsidied. I tried different types of deodorant, a hand cream, different types of medication, but all were ineffective. Plus the only effective solution I had found, alcohol, wasn't a reasonable answer. At age 24, I decided to have the ETS surgical procedure. A guy that I work with saw a commercial on TV advertising the condition and the surgery. I jotted the number down , called the 1-800 number, made an appointment, and 3-months later booked a flight to Hollywood Florida and had the procedure done. That was 11 years ago. Since then, I have been unable to enjoy any of outdoor activities. The compensatory sweating, which I was briefly conversed with about, has been extreme if not debilitating. My palms, since that day, have not perspired in the least way. As a matter of fact they stay so dry I have to put a different kind of cream on them now. My stomach and back sweat profusely when I get a little warm, not hot, a little warm. When i get hot the sweating is unlike anything anyone im around has ever witnessed. Within 30 minutes, my shirt, pants, socks and shoes are soaked. I look as if i have just gotten out of a swimming pool. I have been hospitalized over a half-dozen times due to dehydration. I do not recommend the ETS procedure. It has cost me a career in land surveying, due to the inability to work outdoors. I'd rather still be dealing with sweaty palms and bad nerves.

3

General Member of the Public

Rating: 5

Im now 12 years old and i cannot take palmar Hyperhydrosis anymore. Its too much. I have it very severe and i keep getting into trouble for not doing my work because my hands are sweaty. Most of my teachers dont believe it and make me do my work. I am a very religious person and i go to mass every sunday. But every time the priest tells us to give the sign of peace everyone looks at me and laughs. The other day at dance i was doing a piece and i slipped and fell because Hyperhydrosis triggers my feet too. Everyone started laughing at me. My parents are doing everything they can to help me. But antiperspirants do not work. I know i am only 12 but i will not stop helping until we find a cure. Palmar Hyperhydrosis is truly the most confidence wrecking disorder. And i wish it upon no one.
Lourdes x

4

Client Served

Rating: 5

IHhS is such a great organization. Most people would not think that sweating more than average is a big problem, but if you are one of the affected people, you know how troublesome it is. It is extremely helpful to know that other people understand the issues that people with Hh face. Knowing that doctors and other caregivers are trying to find a solution is very encouraging. Without IHhS, those of us suffering from Hh would not have a voice. Because of IHhS, I have found out about treatment options I did not know existed and I have been able to discuss strategies for dealing with this condition with other people who have it. I am so grateful to IHhS for helping to bring hyperhidrosis in to focus for the medical community, the FDA, and sufferers.

1 Gary O.

Donor

Rating: 5

IHhs is a phenomenal non-profit that brings attention, services, and treatment for people that need it. I have been extremely impressed with how the organization is run, and feel confident that my donations go straight to the cause.

2

Client Served

Rating: 5

Lisa and her staff and this excellent and helpful entity have been great with informative emails, invites (and later attendance for me) to free clinical trials, and as well keeping all of us HH sufferers informed on new treatments and such. Making others aware of the miserable HH condition has been a positive as well, and I really appreciate all that they do! Keep up the good work and compassion! I thank you.

5

Professional with expertise in this field

Rating: 5

I am a Dermatology Technician and also a Practice Outreach Representative for a large dermatology practice. I have had the opportunity, over the years, to volunteer with the IHHS and the testimonies from individuals who are experiencing hyperhidrosis will really hit you in the heart. Their quality of life is drastically improved with the knowledge the IHHS shares with them and then a treatment plan. I am out in the community and lecture to over 10K people a year and it never fails that I meet someone who has hyperhidrosis and they are not aware that this is a real condition that is treatable. It is with a great deal of pride that I tell them about IHHS. We all must work together to keep spreading the word!

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7

Professional with expertise in this field

Rating: 5

I work in a busy dermatology practice and I have had the opportunity to also be involved directly with the IHHS on some of their training sessions throughout the country. The most rewarding part of my day is hearing the testimony of the patients. I sometimes feel I leave with a more rewarding experience than the patient. When I took my own, then teenage daughter, to the pediatrician with hyperhydrosis of the hands he said it was part of adolecence. We need every speciality to be educated that there is help for these patients. When you assist in treatment for a patient who has to alter their daily activities due to sweating and they call you back to say they are dry and how much their lives have changed with the help they have been given, that busy day all becomes worth it! There has been the police officer who could not pull his gun from the holster due to wet hands, the public speaker who had forehead sweating so bad it dripped in his eyes, the teacher who could not use chalk, the student who could not do projects with markers because the ink would smudge, the hair dresser who could not hold the curling iron with wet hands, the stories are endless but I am sure space here is limited and others need to post. IHHS is wonderful and treatments are available!

5 Yasmin K.

Volunteer

Rating: 5

I feel so honored to know about International Hyperhidrosis Society. The society and people working for this organization has given me a reason to live and to believe in miracles.
I have suffered with hyperhidrosis (Non-stop sweating) for 45 years until I came to know about this wonderful organization that gave me a hope and second a chance of living with dignity and positivity.
It changed my life and my prospective completely.
Today I feel positive, confident and I feel I can help others guiding them towards this society so they can start believing; yes there is a help and help through wonderful Non-profit organization such as International Hyperhidrosis Society. Committed to helping people like me. Say no to suffering and say yes to treatment is what I learned through this society.
Thank you International Hyperhidrosis Society. Thank you Executive Director, Lisa J. Pieretti for all your efforts towards changing lives of those suffering from Hyperhidrosis. Thank you Dr. Dee Anna Glaser, IHhS President. Thank you Dr. David M. Pariser, Secretary and Founding Member, International Hyperhidrosis Society, Professor, Department of Dermatology for all your on-going dedication towards IHHS.

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8

Volunteer

Rating: 5

I would like to thank International Hyperhidrosis Society and all the organizers and donors who made it possible to give us an opportunity to try out a free treatment and attend a workshop as volunteer patients. Receiving a botox treatment was amazing experience. I never thought something like botox would stop my sweating for few months. Having been suffering all my years with type 4 excessive sweating on my palms and feet and learning about the research scientist and the organization are doing was an amazing experience. I look forward to attend again given an opportunity once again. It was a dream come true being free from suffering. I hope there is more and more research on this. People like us suffer silently. No one can know our suffering unless you are in that situation. I truly hope and pray that there will be cure that is available for all the people suffering. Thank you once again for changing our lives even though it's for short time of period.

2

Client Served

Rating: 5

I was researching my condition a few years back and I came across the website for International Hyperhidrosis Society and since then it truly has been life changing for me. I have suffered from hyperhidrosis all my life and now that I’m older it has gotten worse. Since I found this organization I have been able to be helped in different ways. I have a wealth of information of products and methods that I have been able to use to be able to help me with this condition. The support that I have had is remarkable. Just when I thought I was the only one with this condition, I have since found others who share this horrible disease. Knowing that I am not alone, is empowering. Lisa is truly a remarkable person. She has made me feel the love and support that has helped me a great deal. I thank you International Hyperhidrosis Society many times over. You are truly a wonderful place that I as a sufferer can find whjat I need to have a better quality of life. Thank you!!!!!

2

Client Served

Rating: 5

My name is Balla-Rena Jones and I live in Florida. Three summers ago I was a wits end due to my excessive sweating. I had called every where down here and then one of the doctors told me to call the Inernationally Hyperhidrosis Society. That day I spoke to Lisa and she told me that I had something called hyperhidrosis and that there were other people who had this disorder. I had never heard of Hyperhidrosis let alone thought anyone else had this sweating problem. All I know I had been crying my eyes out and I told my husband if this is the way I am going to live out my life I didn’t want to live.
Lisa was so kind and compassionate with me and shared many stories with me. Being 67 I found comfort in her stories then she informed me with regards to the symposium that was going to be held in Washington DC. She saved my life that day!
I went to the symposium and I got to meet other people Who had the same problem I had what a relief that was. I have made some very good friends because of Lisa. Her kindness and love was so appreciated.

2

General Member of the Public

Rating: 5

I learned about the International Hyperhidrosis Society when the daughter of my best friend was diagnosed with this condition. I was impressed by the detailed information IHS provided regarding the personal challenges everyone affected by the condition face on a daily basis, along with treatment options. I applaud the patients and professionals who continue to bring greater awareness to hyperhidrosis.

2 cavkosh

Client Served

Rating: 5

IHHS has been a wonderful organization that has helped me tremendously. They are all so kind & I am so grateful to have been able to meet other hyperhydrosis sufferers through this organization.
My experience with them has truly been life changing - they have given me much hope ❤️

2

Client Served

Rating: 5

IHhS has always been very supportive and promotes a positive community in the Hh world. I am grateful for the opportunities this organization has provided me.

2 Jake T.

Client Served

Rating: 5

I'll forever be grateful for this organization. Ever since I joined their email list, I was able to get valuable information about the different types of hyperhidrosis and was able to include myself in a clinical trial thanks to their recommendation.

Although we are only 5% of the population, they strive to find ways to help us find the CURE. Thank you!

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8

General Member of the Public

Rating: 5

I have nothing else but good things to say about this organization. They are very supportive with people suffering from HH and they continue to strive day in and day out to find THE CURE! Thank you so much for everything!

2

Volunteer

Rating: 5

I was blessed with the opportunity to meet the leaders of this organization. They are so full of love & compassion for the people that are dealing with this issue! They paid for my travel expenses to speak to the FDA in D.C. about looking into more solutions for ppl suffering with hyperhidrosis. I was completely overwhelmed by the experience and forever grateful!

5

Volunteer

Rating: 5

Hello,
I have been blessed with the opportunity to volunteer with this organization. My severe Hyperhidrosis has led me to seek countless remedies. This organization provided support resources and education on how to cope with this condition. I have worked closely with the team and I cannot wait to the success of this organization.
THANK YOU!

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4

Volunteer

Rating: 5

The International Hyperhidrosis changed my life. I have been suffering from this condition all my life, it wasn't until now that i decided to do something about it. After reading the stories and information on the website i decided to contact them. I was able to receive free treatment as well as the chance to be a part of this community. I have met some great individuals who continue to inspire me. Some of them include Sophia wastler and Lisa Pieretti. I am now an active volunteer for the organization and continue to raise awareness by educating schools about the condition. I am honored to be part of this organization and will continue to do my part as long as i can.

4

General Member of the Public

Rating: 4

Can someone please help me I've just been to granddaughters christening I had to leave my hair was dripping wet sweat running down my face so embarrassing

4

Client Served

Rating: 5

I have had severe hyperhidrosis most of my entire adult life. It has stopped me from socializing and made me very uncomfortable in social settings. My favorite is when people proclaim stuff like, "Geez, you're sweating a lot!". Thanks,.. I haven't noticed.. Thank good there is a site that is dedicated to help those who have this condition.

7

General Member of the Public

Rating: 5

I been sweating for a good many years now. I am to the point I can not stand it anymore Whenever I move around my whole body gets soaked. I change my clothing 3x a day. When I sit on a chair you can see a wet spot where I sat. It"s bad.My hair gets soaking wet and drjps. I take alot of medicine, Fentanyl patches, Vicodin, Lyrica, blood pressure.Maybe some of this is causing it but why is it only when I move around? Can you help?

3

General Member of the Public

Rating: 4

I had been looking everywhere trying to find an answer for Hyperhidrosis but no luck with anything in Australia. I just kept getting a diagnosis of the sweating but no clue to finding a solution to the problem. Kept searching and came across the International Hyperhidrosis Society's site.
I have to congratulate them on giving more answers than I had been able to find with all my other searching I had done. I found this to be a thorough, friendly and helpful place to look for answers. I was sent the latest information regarding this condition with names of professionals to contact here in Australia.
I hope this Society gets all the support they deserve to continue their excellent work. Thanks from a very grateful Aussie.

5 Deb_65

Volunteer

Rating: 5

I volunteer for this organization and they are well-organized and really care about their patients. They go out of their way to make sure that sufferers are made aware of the disease and any upcoming treatments and studies. I have volunteered for many organization and they are a top-notch non-profit!

4 Evan11

General Member of the Public

Rating: 5

Christine was very helpful with all my questions. I appreciated her thorough e-mail.

3

General Member of the Public

Rating: 5

Wow! What an amazing organization that truly cares about people! What a great source of support and information. Everyone that I have come in contact with at the organization is professional and has such compassion! Thank you IHHS for the work you do to help those who have hyperhidrosis!

6

Professional with expertise in this field

Rating: 5

I first learned about hyperhidrosis through a client I worked with at a behavioral clinic. I saw the debilitating effects of hyperhidrosis on a child worked with first hand. Daily, the child would struggle to hold utensils, writing tools and even simple toys that required assembly were difficult tasks. More heartbreaking not only as a therapist, but as a parent, was the constant teasing from classmates when they were required to sit near or hold the child's hands for a group activities. Comments were frequently made about how "wet" and"gross" the child was.
The parents sought treatment options, and were given the "first line of defense", Botox to reduce the symptoms of her excessive sweating. Unfortunately it was not effective and they declined further treatment due to side effects. If only they had they had known of the many options that are available, perhaps the outcome would have been different.
Being introduced to the International Hyperhidrosis Society has given me that opportunity and the tools to provide options for those seeking treatments. Not a size fits all options for those suffering hyperhidrosis! Not only has the organization further informed me about hyperhidrosis, the available treatments, awareness for patients and doctors, and provided invaluable information regarding studies that can help provided treatments for those suffering with the many forms of hyperhidrosis.
Thanks to the work and dedication of Lisa Pieretti, and her medical friends, countless volunteers, advocates those suffering with hyperhidrosis, they now have hope and options with the International Hyperhidrosis Society.

3

General Member of the Public

Rating: 5

I just recently learned about hyperhidrosis and I'm surprised at the number of people suffering from this condition . I have been totally impressed by the dedication and endless hours that has been but into IHHS by Lisa and her staff. They have a true passion for helping everyone effected , in such a loving and caring way I feel privileged to have been able to learn from them this past week.

5

Professional with expertise in this field

Rating: 5

What a valuable non-profit organization which is committed to making a difference in so many lives! I did not realize the numbers of people who suffer from this embarrassing and limiting condition until I became educated on hyperhidrosis by chatting with individuals who suffer. The IHHS website SweatHelp.org offers the most up to date education, informational programs and opportunities to participate in clinical trials with investigational drugs which will hopefully make a difference. Lisa Pieretti is one of the highly dedicated and professional individuals who make this organization tick! I totally recommend the expertise and assistance of this nonprofit group.

2

General Member of the Public

Rating: 5

The International Hyperhidrosis Society was created to help people who suffer with this condition in the most loving and compassionate way possible. Everyone involved deeply cares about those with Hyperhidrosis. A combination of research, education and outreach is helping people who may otherwise have nowhere to turn. I am very impressed with both the mission and the people of the International Hyperhidrosis Society.

2

General Member of the Public

Rating: 5

I have just recently learned about this wonderful organization. They are kind, caring and have such a passion for helping people with Hyperhidrosis. It truly is an honor to work with them.

3

General Member of the Public

Rating: 5

I was surprised as a registered nurse that I had never heard of the disease HH. I was saddened to learn about the many people who are suffering in silence. The IHHS is truly an amazing organization! They are bringing awareness to the general public about this condition (and the medical community as well). They are connecting patients with physicians who are knowledgeable about HH and it’s treatment options. IHHS is also promoting cutting edge research for new treatments. All of this is being done with so much compassion for the people who are suffering from this disease. What a wonderful organization!