Seventeen 22 is a unique charity as it provides monetary relief to families directly affected by NF. The high costs associated with doctor visits, surgeries, travel expenses, etc., can be overwhelming for families. Seventeen 22 does an amazing job of helping to offset those costs. In 2022 they awarded their first scholarship and plan to do more in 2023. They also do a PJ distribution at Christmas that brings some cheer to all families who ask.
This organization has a great community of people. They host lots of fundraiser events which are a blast for the family and are a great way to meet other people with similar situations. They have been an amazing support system for my family!
This foundation is excited about the awareness of neurofibromatosis. Great things are in place with PJ's for the Holidays, Scholarship Funds, and Family Aid Grants, We can't just sit idle!!!
When you have NF there are so very many unexpected expenses. A charity like this fills in the gaps. We offer family grants, a Holiday Pajama Drive, and a scholarship!
Seventeen22 Foundation does amazing work to being awareness of NF as well as support immediate family and extended family during this life long journey. At times it might emotional support, financial support or simply a listening ear from those who understand. The quaility of their work, their passion and willingness to give back is outstanding to see.
The Seventeen22 Foundation provides much needed financial support to NF Families! Living with NF is not easy and we are very blessed that this Organization exists!!
I am so lucky to be apart of this wonderful amazing foundation. We truly are a family and treat everyone associated with the foundation like family. I am fortunate to have my whole family apart especially my daughter who has benefited in so many ways. The lives we continue to try to help and just put a smile and some relief on their faces is priceless.