I remember when I found MAGIC: it was November 2002 in the middle of the night-the only opportunity I had time to research online. Back then, Internet resources weren't what they are today. The middle of the night was my only opportunity to research because during the day I was constantly feeding my daughter or taking her to numerous doctor appointments.
The night I found the MAGIC website and read about a child with RSS changed our lives.
Since then, MAGIC is our #1 priority for charitable donations. I hope every parent who is struggling with a child who has a rare growth disorder finds this organization.
We tell people "that is when the clouds parted and the sun came out" for our family. The resources MAGIC has provided us are amazing: medical, emotional, and financial (help with insurance issues) not to mention the life-long relationships!
Thank you MAGIC!
I found the Magic Foundation after it was found that my daughter had a rare form of dwarfism called Meier-Gorlin Syndrome. We attended the annual convention that Magic holds in Lombard, IL the year of our diagnosis. The group welcomed us with open arms. My daughter was 9 years old at the time and was getting to the age where other kids started noticing the difference in her size. Spending the weekend with other kids that had Primordial Dwarfism was great for her. It was a place she felt safe and unjudged. Magic has also been an outstanding resource for me as well. I have received helpful information on insurance matters, education on Growth Hormone use, and many other useful tips and tricks. It is amazing to have a place to turn that truly understands our families struggles. We LOVE the Magic foundation and all it has done for our family.