My son was diagnosed with growth hormone deficiency 7 years ago. The MAGIC Foundation has been an invaluable source of information and support, whether through their web page, their annual educational convention (which we've attended three times), or their very active Facebook groups. We were fortunate to have health insurance that covered my son's treatment without dispute, so we didn't need to call on MAGIC's insurance specialist; but it was nice to know help was available if we had needed it.
My son had just finished his last test to confirm diagnosis & determine treatment options when our Dr. gave me a list of support groups. "Magic Foundation" stuck out to me. I didn't call any for a few months. Then the bullying started. The questions & pressure of treatment options & schedules became overwhelming. I reached out to this foundation via fb. They called me immediately. The instant response & feedback made me feel better. Then they understood me. That made a world of a difference. They were moms just like me. They had little ones just like me. They were able to support & celebrate with me. We began following their videos & discussions. Even my son felt consoled knowing he wasn't alone. This foundation literally kept us sane & together. It has been an up to down to up journey. We are so grateful for the Magic Foundation!
I remember when I found MAGIC: it was November 2002 in the middle of the night-the only opportunity I had time to research online. Back then, Internet resources weren't what they are today. The middle of the night was my only opportunity to research because during the day I was constantly feeding my daughter or taking her to numerous doctor appointments.
The night I found the MAGIC website and read about a child with RSS changed our lives.
Since then, MAGIC is our #1 priority for charitable donations. I hope every parent who is struggling with a child who has a rare growth disorder finds this organization.
We tell people "that is when the clouds parted and the sun came out" for our family. The resources MAGIC has provided us are amazing: medical, emotional, and financial (help with insurance issues) not to mention the life-long relationships!
Thank you MAGIC!
The information provided by magic in relation to our daughters diagnosis of russell silver syndrome has been invaluable. Helped us argue for appropriate protocols to be followed for treatments and much less stressful hospital admissions as a result. Being able to link in with other families going through similar experiences has literally been a life saver! Thanks for the handbook...the website...the social media and all that you do for families like us MAGIC xx
MAGIC Foundation has changed my life. I first went to a convention for adults with growth hormone deficiency about 10 years ago. Before that I had never met anyone with panhypopituitarism. The support and friends I have found through them has been incredible, I no longer feel alone in this. Over the years I have come to depend on their annual convention to help me feel good about myself again. I realize that others experience the same issues I do and they truly understand! I worked as a division consultant for them for a couple of years and saw first hand the difference it made in other people's lives.
My daughter was born premature. She has struggled to gain weight since day one. She's been tested for so many things trying to get answers. It was until I found MAGIC when she was 4 that I found help. My daughter is considered SGA. They are a wonderful support for advice with my daughter's healthcare. A wonderful resource. I'm so grateful for their service. I try to share whenever I can!
Magic has been an incredible resource. It's provided information a about my son's diagnosis that would of taken months to find out, connected me to other parents for support and even physicians that our knowledgeable of the his rare growth disorder.
Before I found the MAGIC Foundation, I was lost. My daughter was "just a preemie" and we were continually being told to "wait and see" well I had a feeling there was something more. Once I found Magic, I found my answers, I found community and I found acceptance.
The Magic Foundation has been a LIFESEND!!!! My son was diagnosed with a rare disorder and not only did they offer me help but their department head of his condition actually called me to help me. And the have helped me with EVERY problem we have ever had! Our 1 year old has been hospitalized 2x so far and Magic was there answering all our questions and we there for us during some of our VERY HARDEST times and continue to be there for us. I would literally be lost with them and all their incredible knowledge on what we're going through. You would think every doctor you see for your child can help you but that's NOT true. The Magic Foundation has known more about how to treat my son than 90% of the doctors he has seen!!