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June 29, 2012


June 29, 2012

I cannot say enough about the dedicated people and the hard work that the SADS organization provides to the general public. They are dedicated to educating people about the dangers of SADS related conditions. More importantly, they provide encouragement and comfort to parents that have had to endure the loss of a child due to a SADS related syndrome. My father passed away at age 33 from a SADS related problem and I lost a sister in 1897 to the same malady. Nothing is worse than a premature death and a life cut short, especially when it may have been detected and potentially prevented.

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June 4, 2010


June 4, 2010

I lost my youngest granddaughter on November 22, 2009. She had been treated for seizures for years. It was not until one horrible day we found out that her problem was Long QT. A gene problem that had been passed on from me to my daughter to Abbey. Our pain is so great we can hardly function. But because Abbey was such a giving and loving little girl we had to do something. Laura and all the people a SADS has been great. We have gotten so much love and support for everyone. We are always thinking of ways to raise money to better serve the organization and keep Abbey's memory alive. We are just a few, but that is all it takes. One small step after another. Laura sent me a packet of information to deliver to all the surrounding schools. Awareness if vital. Everyone must understand how important the work that SADS is doing and support in the smallest of ways. Small donations are so welcomed. One person giving $1.00 and spread the word, then another person can give $1.00. Pretty soon we could raise thousands. It is that simple. I am and will always be a strong supporter of SADS Foundation.

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Lots of support and love. Plus all the materials I need to help spread the word about Long QT and the SADS Foundation.

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About every month

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