Mesothelioma Applied Research Foundation Inc
Rating: 4.95 stars 101 101 reviews
1317 King Street Alexandria VA 22314 USA
The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.
The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.
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Reviews for Mesothelioma Applied Research Foundation Inc
The Meso Foundation and its dedicated staff gave our family courage when we needed it the most - to help us through our son Adam's peritoneal mesothelioma, and to help Adam see that he was not alone with this awful illness. Every penny given to the Foundation has resulted in better treatments and hope for thousands of patients and their families. Survival rates are up, and the network supported by the Foundation allows patients and family members to access medical experts and promising treatments, and allows researchers to move forward. Thank you, Meso Foundation.
I have several friends who are either battling mesothelioma, have a loved one who is (or who died from it), or are health care providers to meso patients. From them, I have learned that the Meso Foundation is the kind of nonprofit all others should strive to emulate! Its leaders are eminently ethical and professional in their operation of the foundation and stewardship of its funds -- and they provide absolutely priceless support to meso patients and caregivers. More than one of my friends have told me the Meso Foundation is the first place that gave them hope for effective treatment of their cancer, rather than just bad news. The Foundation stays on top of -- and helps fund -- the latest treatments for mesothelioma, and connects patients and families with expert doctors and nurses who are using these treatments. As a result, my friends who have the disease are alive today! The Meso Foundation also does a wonderful job of bringing patients and caregivers together in their yearly Symposium...and one of the truly healing and bonding experiences that has developed at this event is a band! They call themselves the Meso Fighters Band, and I wrote a blog post about them here. Please forgive the shameless plug...only including the link because it is absolutely an example of what makes the Meso Foundation, and all associated with it, exceptional: http://www.jcsmusicsbest.blogspot.com/2015/08/we-will-rock-you-meso-fighters-band.html
1 person found this review helpful
Incredible peer support for a rare disease that doesn't have a lot of support elsewhere. The foundation helps the entire family, not just the patient. The funding they have provided for research has truly made a differenced in the world of mesothelioma treatment. i'm proud to continually spread the word and raise money for this foundation, as I know it will be used for research.
16 people found this review helpful
This is a great foundation with purpose. It has helped many families that are going through an unbelievably tough time. Trying to provide answers, where there are none. Trying to provide solutions, where they are needed. They have played a very influential role in members of my families lives. We all appreciate everything they have done.
I've personally experienced the results of this organization in...
My family. They were there for my uncle and his family as he battled Meso.
If I had to make changes to this organization, I would...
Stay the course.
What I've enjoyed the most about my experience with this nonprofit is...
They have tried there best to help all that are influenced by this disease.
The kinds of staff and volunteers that I met were...
Kind and had big hearts.
If this organization had 10 million bucks, it could...
Ask for more. I'm sure it would help all parties involved, but it will take more than that to reach the true goal. A cure!
Ways to make it better...
Nothing could make the experience better.
In my opinion, the biggest challenges facing this organization are...
Lack of government help. The politics involved in trying to save lives, are overwhelming.
One thing I'd also say is that...
My family is better off because of this organization. My uncle may not have survived, but his journey was improved thanks to them.
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