Mesothelioma Applied Research Foundation Inc
Rating: 4.96 stars 112 112 reviews 12,125
1317 King Street Alexandria VA 22314 USA
The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.
The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.
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Reviews for Mesothelioma Applied Research Foundation Inc
What a great source for information and support. Everyone associated with it wants to help find a cure and help you and your family.
Most amazing foundation truely dedicated to research.
My mother was diagnosed with Mesothelioma in 2014. The Meso Foundation served so many roles for us over the last two years -- expert knowledge of doctors, trials, treatments, caregiving, and side effects. Mary's straightforward, compassionate conversations and friendship during Mom's end of life this summer during my time of need was invaluable and much appreciated.
I attended the October 7, 2016 Mesothelioma Symposium in Chicago as the 'caregiver' of a patient, my husband. I arrived alone, a bit apprehensive not knowing what to expect. The group was very welcoming, it was wonderful to realize there were many other patients and families struggling with the same disease and issues.
The agenda and experts were stellar, the Q & A portions moved right along, the lunch provided was outstanding.
I learned about the Facebook group, and now have additional resources to use in the future, because that's the one thing there is available to us, a FUTURE!
I would recommend the Mesothelioma Applied Research Foundation to anyone with an interest in the disease, as a parent, caregiver, or clinician.
I was diagnosed in 2009 and I have been on a long journey where the infomation on Mesothelioma is so swamped with bad news. I found MARF and although in the US and Im in the UK it was great to find other people in the same boat as myself. I found so much infomation and great to read about trials that although in the US soon came to the UK. We are all one family and we share so much.
I share the site and infomation with our Mesowarriors UK Groups on Social Media so a huge thankyou for all the hard work xx
I cannot thank the staff at MARF enough. When my father was diagnosed with mesothelioma, we had no one to turn to at the hospital. No one was answering questions, no one was giving us resources. Then, we found MARF. My father only lived two months after his diagnosis but without the help of MARF, those two months would have been more chaotic and uncomfortable than I could ever have imagined. Thank you for being there and thank you for you support. Here is a photo of our family at our first Miles for Meso this summer, two months after my dad passed away.
I've spent over 30 years in litigation arising from asbestos. In those years, this group stands alone - by far - as the top group advocating for scientific research and providing educational, emotional and financial support for patients and their caregivers. No other group has - or will have - the knowledge, compassion and tenacity of Mary, Melinda and the entire team.
MARF is the only place to go for Mesothelioma information. The money goes to research to help understand this very rare form of cancer. God Bless them and the work they do!
I stumbled upon this foundation in my research for patient assistance when my husband was diagnosed with Mesothelioma a year ago. The foundation provides both financial and educational assistance for patients and their loved ones. Their executive director, Mary Hesdorffer, RN is incredibly knowledgeable and helpful in advising and educating patients about the different clinical trials available for treatment of Mesothelioma. She is dedicated to helping patients getting the help they need and has been incredible helpful to us. I highly recommend this foundation.
The Mesothelioma Applied Research Foundation brings together patients, physicians, policymakers, caregivers, researchers, the bereaved, donors, and activists in a community whose goals are the alleviation of suffering in current patients, the advancement of medical knowledge that can move us toward new treatments and perhaps a cure, the increase of awareness about the disease and the ubiquitous nature of its cause (asbestos), the constant and sophisticated support for the families who support the patients, and the necessary political advocacy to further funding to accomplish all of the former. It is a non-profit, alone in its field. The professionals running the Foundation are tireless, selfless, and indispensable.
I, like so many of my peers, am alive in no small part because of how these people live their lives.