Making Headway Foundation Inc

Rating: 5 stars   58 reviews

Issues: Health, Cancer

Location: 115 King St Chappaqua NY 10514 USA

Mission: Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”
Results: Among our many accomplishments, one of the most notable from 2012 is that we have recently committed $1 million toward a neuro oncology laboratory at NYU. We were also instrumental in finding another matching grant for $1 million. Making Headway Foundation was also named Nonprofit of the Year for 2013 by the Chappaqua-Millwood Chamber of Commerce.
Target demographics: Children with Pediatric Brain or Spinal Cord Tumor
Geographic areas served: NY, NJ, CT
Programs: support services for during treatment, ongoing care post treatment and funding for medical research.
2015 Top-Rated Nonprofit
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EIN 13-3906297
914-238-8384
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Community Reviews

Rating: 5 stars  

This foundation has worked tirelessly to advocate and fund research for children with bran tumors. As a parent of such a child who was diagnosed over 20 years ago , it is remarkable and quite selfless to me how the members and health professionals work together to help those afflicted as well as their families. It would be even more of a challenge to face the stress of a child facing surgery and treatments and Making Headway brings a wealth of information and support for the victims of brain and spinal diseases.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2005

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It's our pleasure to assist you.

Rating: 5 stars  

Our daughter Allison was diagnosed with a PNET. THEY WERE THERE FOR A FAMILY FROM THE BEGINNING TO THE END. They offered so many services and helpful information it was amazing!!

If I had to make changes to this organization, I would...

More pastors involved.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 

We like your idea of more Pastors, Gregory. Good suggestion.

Rating: 5 stars  

The Making Headway Foundation changes lives every day. The volunteers and professionals involved with this non-profit are caring, committed, and tops in their respective fields - seeking constantly to improve the quality of life for children with brain tumors and their families and caregivers. From the research they support to the hugs they offer a parent in a waiting room and from the vast knowledge they put at parents' fingertips to the fun social activities they offer for the kids, the people at Making Headway are on mission to improve lives, one minute and one day at a time. This great organization provided such incredible comfort and support during the very difficult years for our son and family - just knowing there was a team of very qualified people to answer our questions and there was a friendly place where our then five-year-old son could comfortably wait for appointments. And even as our 19-year-old son becomes an adult, we know that Making Headway is still "there" for us and more importantly, for him!

How would you describe the help you got from this organization?

Some

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 

It's an honor to help all of our families. Thank you.

Rating: 5 stars  

My then 16 year old daughter was diasgnosed with an hermangioma on her brain. Dr. Fred Epstein performed the successful operation. Maya and Ed Manley, co-creators of the Making Headway foundation were there every step of the way, prior to and after the operation as well as yeas later inviting us to the picnic that Making Headway has every year at the Manley residence.
Maya and Ed are extremely warm, caring and affectionate to all who come in contact with them. Be it , the patirent, doctor, parents, etc. All of them are given extreme care, understanding, and love by the Manleys' and the rest of this wonderful organization. I can't imagine what that time of our lives would have been like if it wasn't for the Making Headway Foundation.
My daughter is now 32 years old, I have a wonderful 21/2 year old grandaughter, and every year we don't forget the Making Headway Foundation. Especially Ed and Maya Manley whose slow , low manners lulls you into their submission and generosity, love, caring and affection.
Thank God for the Making Headway Foundation

Patrick and Linda Imbriale

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

1997

Was this review helpful? 

Thank you for your kind words. All of us at Making Headway appreciate the trust you place in us.

Rating: 5 stars  

My daugter was diagnosed in 1998. Her DR hooked us up with Making Headway and they have been part of our lives ever since. They do a wonderful job making the kids feel comfortable while waiting for treatment and helping parents get the support they need. We look forward to seeing them at their wonderful events for the kids and reconnecting with parents who have similar stories. It breaks me up when I see all of these wonderful kids together who have thrived despite horrendous odds. Thank God for Ed and Maya.

How would you describe the help you got from this organization?

Some

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 

We are so happy we can be of help to families such as yours.

Rating: 5 stars  

Making Headway is a wonderful Nonprofit organization that helps children and their families deal with brain and spinal tumors. They also support cancer research and fun activities. My son was diagnosed with a malignant brain tumor in July 2001. Maya Manley and Making Headway Foundation helped make the long hospital stays bearable. To this day, my son still looks forward to the Making Headway activities! One time, I was able to get a massage in the doctor's waiting area after my son got a MRI scan! The volunteers work tirelessly and are truly caring. Making Headway is GREAT!!!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

Making Headway was wonderful to my son and my family when he was hospitalized for a brain tumor. They also gave us support after we went home. They still continue to provide great activities for our son - 11 years later! They also donate money for cancer research.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

As one of the original beneficiaries of this amazing organization (when I was diagnosed with brain cancer in 1996 at the age of 21), Making Headway was there for me. The support they offered by way of free psychotherapy and peer support were invaluable to helping me back on my feet and ready to address the "what's next" and how to get busy living. I will forever be indebted to their services.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

When was your last experience with this nonprofit?

1997

Was this review helpful? 
Rating: 5 stars  

their help for 60 weeks while my daughter was getting chemotherapy was incredible. that was in 1996. my daughter has been cancer free now for over 10 years!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

This organization provided amazing support and resources for myself ( the caregiver) and my husband ( the patient). When Chris was diagnosed with medulloblastoma at age 26 we both needed support and guidance on how to handle this challenge. Making headway stepped right in and provided us with exactly what we needed. We will be forever gracious. Thank you from the Ravanellos!

When was your last experience with this nonprofit?

2012

Was this review helpful? 

We are so happy we were able to help you, Renee.

Rating: 5 stars  

My family goes way back with Making Headway,my daughter Bari is now 30 years old . She has gone through 5 spinal surguries and Making Headway was there for us through each one. Living in the hospital for periods of time really takes a toll on the family but Making Headway was always there to provide activities, therapy and just unbelievable kindness to help make it bearable. At one point my daughter needed surgery in another hospital the biggest surprise was Making Headway sending her therapist there my daughter was so happy to see a familiar face and did wonders for her attitude and the will to go on. I don't know any other organization that would got that far to make sure their clients were doing OK. In college my daughter did an internship with Making Headway, she is now a licensed master of social worker and licensed child life specialist due to their influence.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2006

Was this review helpful? 

What a beautiful success story! Thank you for sharing it.