MAKING HEADWAY FOUNDATION INC

Rating: 5 stars   46 reviews

Issues: Mental Health, Health

Location: 115 King St Chappaqua NY 10514 USA

Mission: Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”
Results: Among our many accomplishments, one of the most notable from 2012 is that we have recently committed $1 million toward a neuro oncology laboratory at NYU. We were also instrumental in finding another matching grant for $1 million. Making Headway Foundation was also named Nonprofit of the Year for 2013 by the Chappaqua-Millwood Chamber of Commerce.
Target demographics: Children with Pediatric Brain or Spinal Cord Tumor
Geographic areas served: NY, NJ, CT
Programs: support services for during treatment, ongoing care post treatment and funding for medical research.
2014 Top-Rated Nonprofit
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EIN 13-3906297
914-238-8384
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Community Reviews

Rating: 5 stars  

Making Headway is a wonderful Nonprofit organization that helps children and their families deal with brain and spinal tumors. They also support cancer research and fun activities. My son was diagnosed with a malignant brain tumor in July 2001. Maya Manley and Making Headway Foundation helped make the long hospital stays bearable. To this day, my son still looks forward to the Making Headway activities! One time, I was able to get a massage in the doctor's waiting area after my son got a MRI scan! The volunteers work tirelessly and are truly caring. Making Headway is GREAT!!!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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1 previous review
Rating: 5 stars  

Making Headway was wonderful to my son and my family when he was hospitalized for a brain tumor. They also gave us support after we went home. They still continue to provide great activities for our son - 11 years later! They also donate money for cancer research.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

As one of the original beneficiaries of this amazing organization (when I was diagnosed with brain cancer in 1996 at the age of 21), Making Headway was there for me. The support they offered by way of free psychotherapy and peer support were invaluable to helping me back on my feet and ready to address the "what's next" and how to get busy living. I will forever be indebted to their services.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

When was your last experience with this nonprofit?

1997

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Rating: 5 stars  

their help for 60 weeks while my daughter was getting chemotherapy was incredible. that was in 1996. my daughter has been cancer free now for over 10 years!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

This organization provided amazing support and resources for myself ( the caregiver) and my husband ( the patient). When Chris was diagnosed with medulloblastoma at age 26 we both needed support and guidance on how to handle this challenge. Making headway stepped right in and provided us with exactly what we needed. We will be forever gracious. Thank you from the Ravanellos!

When was your last experience with this nonprofit?

2012

Was this review helpful? 

We are so happy we were able to help you, Renee.

Rating: 5 stars  

My family goes way back with Making Headway,my daughter Bari is now 30 years old . She has gone through 5 spinal surguries and Making Headway was there for us through each one. Living in the hospital for periods of time really takes a toll on the family but Making Headway was always there to provide activities, therapy and just unbelievable kindness to help make it bearable. At one point my daughter needed surgery in another hospital the biggest surprise was Making Headway sending her therapist there my daughter was so happy to see a familiar face and did wonders for her attitude and the will to go on. I don't know any other organization that would got that far to make sure their clients were doing OK. In college my daughter did an internship with Making Headway, she is now a licensed master of social worker and licensed child life specialist due to their influence.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2006

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What a beautiful success story! Thank you for sharing it.

Rating: 5 stars  

My daughter was diagnosed with a JPA tumor in 2001. As this was 3 days after Sept. 11 in the heart of NYC, as terrified parents we were escorted through the police and military barricades to get her to Beth Israel (North) Hospital for brain surgery. We were given the opportunity to 'move in' to her room with her pre and post surgery. The first person who welcomed us in was Maya Manley, a true angel on earth who came into our room with a stuffed toy for my daughter to play with (she also trekked in during the post-9.11 hysteria, just to care for the kids). From that moment on she introduced us to the Making Headway Foundation, the organization whom she and her husband Ed founded to provide support to the children and families of Brain and Spinal cord tumor patients. Since that time, as Beth Israel Closed and the foundations 'play center' moved along with Dr. Allen to NYU, most of the surviving patients of Dr. Allen and his team moved along with them (us being one of them). The foundation has provided us with tremendous support (emotionally and information-wise) over the past 11 years (yep, Julia is 11 years Cancer Free :)) ), each and every time we visit the hospital for our checkups and MRI's we are always welcome by the Making Headway team, always full of smiles and cheerful positive thoughts...I cannot express enough how incredible this foundation is and the thanks I have for what they do. Any and all donations made to this organization directly support the children, many of which are in dire need, far from home and scared to pieces.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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We appreciate your support and good comments. Thank you!

Rating: 5 stars  

This is not a charity - it's a family. Going through the worst time of my life, my son's tumor treatment, would have been unbearable without Making Headway. Healthy kid-friendly snacks, art, parties, massages for the adults, and a shoulder always available. Have you ever heard a child say "I can't wait to go to chemo!"? I did. And so much is going out behind this. The fundraising for research and treatment is phenomenal. Created by and run by a beautiful and humble couple, who has gone through this with their own daughter, they have pour their lives into this very needed cause. Thank you Maya and Edward. Thank you Making Headway!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 

You are so right. We like to think of all of you as "family". We appreciate the positive review.