Rating: 5 stars 38 38 reviews
4015 Executive Park Drive Suite 320 Cincinnati OH 45241 USA
The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.
go to http://www.thelamfoundation.org/images/pdfs/milestones.pdf
Women in their child bearing years 16-90
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Reviews for Lam Foundation
8 people found this review helpful
I was diagnosed with LAM in 2007, and after discovering a lot of out dated information on the internet, turned to the LAM foundation. I was given much needed emotional support from the staff as well as information and contact info for fellow LAM patients. LAM is such a rare disease, and many patients who have LAM, do not know it. The foundation also works on increasing awareness of this disease and it's symptoms. Without this foundation, I would not have the resources that I have been exposed to.
I've personally experienced the results of this organization in...
-having a LAM liason -finding a LAM clinic in my area -receiving literature to distribute to raise awareness. -peace of mind knowing I can call the foundation if I have questions. -receiving the support through the LAM ListServ.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?