Lam Foundation

Rating: 5 stars   38 reviews


4015 Executive Park Drive Cincinnati OH 45241 USA


The lam foundation urgently seeks safe and effective treatments and ultimately a cure for lam.


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Target demographics:

Women in their child bearing years 16-90


Research costs - the 17th annual lam international research and lamposium conference was held in chicago. The 3 day conference was attended by 108 physicians and scientists. Eighteen countries were represented at the conference. Fifteen grant applications were received for the fall funding cycle; the board approved one fellowship, one established investigator award, 2 pilot grants, and one special project for a total amount of $367,000 to be awarded over the next 3 years. The foundation hosted its first ever lam biomarker innovation summit; there were 48 participants in the summit ranging from stakeholders, patients, physicians and researchers. In 2014 lam expended $619,364 in grants to further the research for a cure.

patient services - the 17th annual lam international research and lamposium conference was held in chicago. The 3 day conference was attended by 152 patients and 116 family, friends and caregivers. Fifty eight patients attended the conference for the first time. The foundation sponsored regional meetings across the country for patients. The foundation provides support and information for the 3,000 plus women who have identified themselves as patients. Twice a year, the foundation produces journeys a publication which provides updates on the clinical research and how to live with lam.

clinical - the sos (safety of simvastation) trial began enrolling patients. A new lam clinic opened at keck hospital of usc in los angeles, california.

2010 Top-Rated Nonprofit
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(513) 777-6889

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Reviews for Lam Foundation

Rating: 5 stars  

8 people found this review helpful

I was diagnosed with LAM in 2007, and after discovering a lot of out dated information on the internet, turned to the LAM foundation. I was given much needed emotional support from the staff as well as information and contact info for fellow LAM patients. LAM is such a rare disease, and many patients who have LAM, do not know it. The foundation also works on increasing awareness of this disease and it's symptoms. Without this foundation, I would not have the resources that I have been exposed to.

I've personally experienced the results of this organization in...

-having a LAM liason -finding a LAM clinic in my area -receiving literature to distribute to raise awareness. -peace of mind knowing I can call the foundation if I have questions. -receiving the support through the LAM ListServ.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?


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