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17 Reviews
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June 28, 2010

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June 28, 2010

I have someone close to me who has Canavan and have donated to this organization in hopes of helping to find a cure for this awful diesease.

The Great!

I've personally experienced the results of this organization in...

I have not personally experienced the results of this wonderful organization, but I know they are doing so much for my lovedone. They are very caring and helpful and are making this disease be known to the public!

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing. Just to have them keep doing what they are doing!

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

knowing that there is hope.

The kinds of staff and volunteers that I met were...

kind, caring and devoted to the cause.

If this organization had 10 million bucks, it could...

Save the lives of thousands of innocent children.

Ways to make it better...

none. it was great.

In my opinion, the biggest challenges facing this organization are...

the fact that the disease is not as well recognized. There are many hurdles to pass for gaining the broad support that is needed.

One thing I'd also say is that...

They are doing a wonderful job!

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2009

June 16, 2010

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June 16, 2010

Jacob is magical and Jordana his mother is a real go getter. Please watch the video and see how much progress has been made in the treatment of this brain disease through Jacob's cure and how this science can help other too. The quality of life of these children and their families is improving all the time. It still takes a tremendous amount of effort and money to keep moving forward. Please give generously to Jacob's Cure and know that not one cent of your money or time will go to waste. You can feel proud that you you are helping families and improving the future of health care for us all.

The Great!

I've personally experienced the results of this organization in...

Seeing the progress of children with Canavan

More feedback...

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

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