Jacob's Cure, Inc.

Rating: 4.94 stars   17 reviews

Issues: Health, Cancer

Location: PO Box 52 Rye NY 10580 USA

Mission: Jacob’s Cure is a 501c3, non-profit foundation that was created in September 2000. Jordana Holovach is the Founder and Director of Jacob’s Cure. She created the foundation because of her passion to save the life of her son, Jacob, who is afflicted with Canavan disease, a fatal genetic brain disorder. The sole mission of Jacob’s Cure is to fund research in Canavan disease that aims to cure thousands of children dying of Canavan disease today. Jacob’s Cure allocates monies raised to research, this is made possible due to volunteer staff and minimal overhead. Areas of research include gene-therapy, stem cell transplantation, pharmacological approaches and basic science in understanding the pathways of the disease. Because Canavan is a rare disorder, federal funding is scarce. It is through the efforts of Jacob’s Cure and the philanthropy of others that enables Canavan research to continue and a cure for Canavan a hopeful reality.
Results: To date, Jacob’s Cure has funded two gene-therapy trials and is currently funding research towards a phase 1 stem-cell clinical trial aimed for 2011. Research efforts to date have slowed down and in some cases halted the progression of the disease in most of the children who received gene-therapy and have begun the recommended pharmacological regimen.
2010 Top-Rated Nonprofit
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EIN 13-4136564
9145024249
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Community Reviews

Rating: 5 stars  

4 people found this review helpful

I have someone close to me who has Canavan and have donated to this organization in hopes of helping to find a cure for this awful diesease.

I've personally experienced the results of this organization in...

I have not personally experienced the results of this wonderful organization, but I know they are doing so much for my lovedone. They are very caring and helpful and are making this disease be known to the public!

If I had to make changes to this organization, I would...

Nothing. Just to have them keep doing what they are doing!

What I've enjoyed the most about my experience with this nonprofit is...

knowing that there is hope.

The kinds of staff and volunteers that I met were...

kind, caring and devoted to the cause.

If this organization had 10 million bucks, it could...

Save the lives of thousands of innocent children.

Ways to make it better...

none. it was great.

In my opinion, the biggest challenges facing this organization are...

the fact that the disease is not as well recognized. There are many hurdles to pass for gaining the broad support that is needed.

One thing I'd also say is that...

They are doing a wonderful job!

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2009-3-01

 
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Rating: 5 stars  

7 people found this review helpful

Jacob is magical and Jordana his mother is a real go getter. Please watch the video and see how much progress has been made in the treatment of this brain disease through Jacob's cure and how this science can help other too. The quality of life of these children and their families is improving all the time. It still takes a tremendous amount of effort and money to keep moving forward. Please give generously to Jacob's Cure and know that not one cent of your money or time will go to waste. You can feel proud that you you are helping families and improving the future of health care for us all.

I've personally experienced the results of this organization in...

Seeing the progress of children with Canavan

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010-6-01

 
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