2010 Top-Rated Nonprofit

Jacob's Cure, Inc.

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Health, Medical Research, Pediatrics Research

Mission: Jacob’s Cure is a 501c3, non-profit foundation that was created in September 2000. Jordana Holovach is the Founder and Director of Jacob’s Cure. She created the foundation because of her passion to save the life of her son, Jacob, who is afflicted with Canavan disease, a fatal genetic brain disorder. The sole mission of Jacob’s Cure is to fund research in Canavan disease that aims to cure thousands of children dying of Canavan disease today. Jacob’s Cure allocates monies raised to research, this is made possible due to volunteer staff and minimal overhead. Areas of research include gene-therapy, stem cell transplantation, pharmacological approaches and basic science in understanding the pathways of the disease. Because Canavan is a rare disorder, federal funding is scarce. It is through the efforts of Jacob’s Cure and the philanthropy of others that enables Canavan research to continue and a cure for Canavan a hopeful reality.

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This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.

Community Stories

1 Story from Volunteers, Donors & Supporters

1

gina6 Professional with expertise in this field

Rating: 5

06/28/2010

As co-founder of the Dare To Hope Foundation, I am always looking for valuable & real information on rare diseases. Jacob's Cure is an amazing resource for families affected by Canavan's Disease, dedicated to awareness, research and support for those families.

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