Jacob's Cure, Inc.
Rating: 4.94 stars 17 reviews
Issues: Health, Cancer
Location: PO Box 52 Rye NY 10580 USA
Results: To date, Jacob’s Cure has funded two gene-therapy trials and is currently funding research towards a phase 1 stem-cell clinical trial aimed for 2011. Research efforts to date have slowed down and in some cases halted the progression of the disease in most of the children who received gene-therapy and have begun the recommended pharmacological regimen.
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1 person found this review helpful
As co-founder of the Dare To Hope Foundation, I am always looking for valuable & real information on rare diseases. Jacob's Cure is an amazing resource for families affected by Canavan's Disease, dedicated to awareness, research and support for those families.
I've personally experienced the results of this organization in...
its involvement with the Global Genes Project, bringing awareness for all rare diseases
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?