2024 Top-Rated Nonprofit

FRAXA Research Foundation

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Nonprofit Overview

Causes: Autism, Brain Disorders Research, Disabilities, Health, Philanthropy, Philanthropy, Voluntarism & Grantmaking Foundations, Specifically Named Diseases Research

Mission: FRAXA was founded in 1994 by three parents of children with Fragile X. Our mission is to accelerate research aimed at finding effective treatments and a cure for Fragile X and related disorders, by directly funding grants and fellowships at top universities around the world.

Community Stories

1 Story from Volunteers, Donors & Supporters

Olivia Eddy, Volunteer

Rating: 5

06/02/2022

FRAXA Research Foundation has provided a lifetime of support to my family and others alike through its uncompromising dedication to finding treatments and a cure for Fragile X Syndrome. I feel fortunate to have grown so close to its co-founders, Katie and Mike, who work tirelessly to drive FRAXA's valiant efforts since its conception in 1994. It has been an honor to have witnessed first-hand the direct impact FRAXA's progress has made on both my family and others impacted whom it has forever brought into our lives. I look forward to the continual, inspirational growth on the road ahead alongside our FRAXA Community.

3 Mike Snape

Mike Snape Advisor

Rating: 5

10/14/2015

I have interacted with FRAXA since 2006, acting as a researcher working in development of new medicines for Fragile X Syndrome. What attracted me to FRAXA in the first instance, and continues to be true today, is the role FRAXA has played in putting Fragile X Syndrome on the radar of the pharmaceutical industry. I can remember the days when there were no clinical stage investigations of novel potential therapeutic approaches to Fragile X Syndrome. Now there is an industry wide pipeline of programs in development across many companies. I think it is a simple truth that without FRAXA this would not be the case. The initiatives FRAXA has in place have, and continues to be, crucial to this critical mass of effort to find new options for people with lives touched by Fragile X Syndrome.

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