Epilepsy Services Foundation, Inc.

Rating: 4.98 stars   60 reviews

Issues: Health

Location: 4628 North Armenia Avenue Tampa FL 33603-2706 USA

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida. The office is located in Tampa, FL.
Results: ESF trained 32 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESFprovided 22 camp scholarships and 10 scholarships for families to attend a family weekend retreat. ESF provided 4 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 3 scholarships for 3 persons with epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.
Target demographics: Persons affected by epilepsy, primarily children & families
Direct beneficiaries per year: 800-1,000 persons
Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando, Sumter, Citrus.
Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer
2014 Top-Rated Nonprofit
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EIN 59-1680892
813-374-8907
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Community Reviews

Rating: 5 stars  

7 people found this review helpful

This is one of the finest groups of people that I have worked with...the passion to help others is paralleled by none. By treating patients with epilepsy, I came to see more activity and assistance for those in need than any other support agency I know. The grass-roots approach of caring, and the cost-effectiveness with the case-management program should be a model applied on a large-scale to PWE to help advance our current outcomes based goals. It is a pleasure and privilege to have worked with this great team of dedicated professionals.

I've personally experienced the results of this organization in...

direct observation and participation as volunteer, physician, and board-member help people with epilepsy who would have been lost to health care

If I had to make changes to this organization, I would...

Lobby heavily to obtain necessary financial support,unify providers in the state, develop tighter allegiance with the national organization,and try to instill values of agencies elsewhere to adopt similar principals and programs.

What I've enjoyed the most about my experience with this nonprofit is...

The people and their insatiable desire to help those in need.

The kinds of staff and volunteers that I met were...

Outstanding

If this organization had 10 million bucks, it could...

Change the lives significantly of patients with uncontrolled seizures, channel patients to epileptologists to ensure adequacy of treatment,develop projects that would improve cost-effective patient care through research

Ways to make it better...

Funding allowed for the opportunity to "cure" individuals with surgically remediable uncontrolled seizures.

In my opinion, the biggest challenges facing this organization are...

Financial

One thing I'd also say is that...

I am thankful to have had the opportunity to work with Tom Orth (past executive director for ESWCF) and Michael Finch (current director for SEA) during the many years of my involvement with the agency that helped so many people with epilepsy.

When was your last experience with this nonprofit?

2009-5-01

 
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