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August 9, 2009

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August 9, 2009

This is one of the finest groups of people that I have worked with...the passion to help others is paralleled by none. By treating patients with epilepsy, I came to see more activity and assistance for those in need than any other support agency I know. The grass-roots approach of caring, and the cost-effectiveness with the case-management program should be a model applied on a large-scale to PWE to help advance our current outcomes based goals. It is a pleasure and privilege to have worked with this great team of dedicated professionals.

The Great!

I've personally experienced the results of this organization in...

direct observation and participation as volunteer, physician, and board-member help people with epilepsy who would have been lost to health care

Ways to make it better...

If I had to make changes to this organization, I would...

Lobby heavily to obtain necessary financial support,unify providers in the state, develop tighter allegiance with the national organization,and try to instill values of agencies elsewhere to adopt similar principals and programs.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people and their insatiable desire to help those in need.

The kinds of staff and volunteers that I met were...

Outstanding

If this organization had 10 million bucks, it could...

Change the lives significantly of patients with uncontrolled seizures, channel patients to epileptologists to ensure adequacy of treatment,develop projects that would improve cost-effective patient care through research

Ways to make it better...

Funding allowed for the opportunity to "cure" individuals with surgically remediable uncontrolled seizures.

In my opinion, the biggest challenges facing this organization are...

Financial

One thing I'd also say is that...

I am thankful to have had the opportunity to work with Tom Orth (past executive director for ESWCF) and Michael Finch (current director for SEA) during the many years of my involvement with the agency that helped so many people with epilepsy.

When was your last experience with this nonprofit?

2009

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5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
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3 hours of volunteer time for this nonprofit will...

1. help with some secretarial duties;2. lead a virtual or face-to-face support group for pre-teens, teens, siblings or families affected by epilepsy;3. organize a party for kids with epilepsy. Volunteer