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September 17, 2014


September 17, 2014

For 3 yrs, I worked very closely with LM patients daily and followed CWL on Facebook. I would see questions posted by LM parents and sit in the shadows stalking the responses for accuracy and helpful information. I began making it a routine to passout CWL postcards to all newly diagnosed LM patients in an effort to increase exposure of this disorder and hopefully educate the new parents of what to expect. I was never disappointed. Every single parent who has gone to this website to better understand the disorder has been educated and now feel comfortable moving forward with treatment on their little ones. Yes, some cases are much more severe than others, however, it still prepares you for the worst. This website is amazing and should continue to be recognized for helping others.
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