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Coping With Laryngomalacia, Inc

Rating: 4.98 stars   120 reviews 3,801

Address:

PO 313 Port Monmouth NJ 07758 USA

Mission:

to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.

Results:

Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!

Target demographics:

families worldwide

Direct beneficiaries per year:

over 1,000 families

Geographic areas served:

Port Monmouth, New Jersey

Programs:

24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!

2016 Top-Rated Nonprofit
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More Info

www.CopingWithLM.org

Reviews for Coping With Laryngomalacia, Inc

Rating: 5 stars   Featured Review

1 person found this review helpful

I felt so alone once my son was diagnosed with laryngomalacia. I could barely pronounce it, let alone grasp all of the side effects, medications, surgical routes etc that are associated with this airway defect. Coping with Laryngomalacia Inc answered all of my questions, provided a network base that allowed me to connect with other parents in the same situation, and best of all: gave us hope that he would improve and was a strong pint-sized POWERHOUSE!

 
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Rating: 5 stars  

1 person found this review helpful

When my daughter was diagnosed with laryngomalacia at 7 weeks old, I felt alone and terrified. this past year has been challenging to say the least--from feeding and weight issues, reflux, numerous dr and specialist appointments and now finding out a week ago she will need to have surgery that we were originally told she would not need to have--however, the support and the community from Coping with LM has been incredibly helpful. We are so worried about her surgery and can't even imagine how her 14 month old mind is going to cope and understand this but our worries have been helped by the special and thoughtful care package that this organization sent her so she can have some comfort during her hospital stay. Coping with LM is a wonderful support network for us and I don't know how we would've managed this past year without their knowledge, resources, and support

 
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Rating: 5 stars  

1 person found this review helpful

I was so thankful to find Coping with LM after my daughter's diagnosis. I learned so much about her condition and knew what to ask her doctors. I am thankful to know we are not alone in dealing with this.

 
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Rating: 5 stars  

1 person found this review helpful

It's been a hard year and couldn't have done it without there support xx

 
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Rating: 5 stars  

1 person found this review helpful

My son was diagnosed at 6 weeks old with Laryngomalacia. After a poor sleep study, he was determined to need a laryngoscopy, broncoscopy, and supraglottaplasty. Within 6 days of getting our sleep study results, we were having surgery. I applied for a care package for my son and it arrived in 4 days, so he was able to take his blanket into surgery with him, and his ENT lived his special socks. My son enjoyed his stuffed lamb and it comforted him throughout the scary ordeal. We are forever grateful to this group for its kindness and support

 
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Role: General Member of the Public
Rating: 5 stars  

3 people found this review helpful

My son was diagnosed with LM at birth. We first were told that it was a moderate case; however, by week three he started having trouble breathing and eating. We went back to the doctor and were told again not to worry he will grow out of LM and to just "work harder" to feed him. This just didn't feel right - my son was in distress while breathing and would barely eat a couple ounces at a feeding.
I started doing my research and came across this non-profit website and it was a LIFE SAVER for my son. I learned more about LM and also found another ENT Doctor through the website. We eventually made an appointment with this new ENT and he ultimately did surgery on our son. He is now thriving and breathing and eating normally. It is a miracle. Because of this site I was able to get information and act accordingly. It changed our lives and my sons life forever. Forever grateful.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I'm a nurse, so I should "get it," right? Well, a medical background gets all but forgotten when it's *your* baby, let me tell you. Finding this group at the beginning of our journey has been a Godsend.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I had no idea what was wrong with my baby girl and at a month old she stopped breathing, went blue, limp and foaming out of her mouth. I will never forget that moment. We learned she had Laryngomalacia I was terrified and looked every place I could for support I found Coping for Laryngomalacia after the fact and after her surgery but it's been amazing to talk to moms who have been there or be support for someone new going through what we did. This group has been a life saver and I'm so glad I found it. I'm so glad there's a place you can go to vent or tell something exciting or terrifying but you can because these moms know.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My daughter was diagnosed at birth. We felt so alone and confused until we found Coping with Laryngomalacia Inc. They have helped us so get through some of our most difficult times. I have connected with so many other mommies dealing with LM. The support we've received has been overwhelming!

 
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Rating: 5 stars  

1 person found this review helpful

I don't know what we would have done without CWL.
Our son was diagnosed with laryngomalacia at seven weeks old, and we had no idea what to expect. No one we knew had ever heard of it.
Because of CWL, we learned not only what to expect and how to help our son, but how to advocate for his needs. On their page, we found the support we needed to get through this dark period in our lives. Our son - and our family - is thriving because of CWL.

 
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