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Coping With Laryngomalacia, Inc

Rating: 5 stars   82 reviews 3,156

Nonprofit Issues:

Address:

PO 313 Port Monmouth NJ 07758 USA

Mission:

to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.

Results:

Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!

Target demographics:

families worldwide

Direct beneficiaries per year:

over 1,000 families

Geographic areas served:

Port Monmouth, New Jersey

Programs:

24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!

2015 Top-Rated Nonprofit
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More Info

www.CopingWithLM.org

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Reviews for Coping With Laryngomalacia, Inc

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Role: General Member of the Public
Rating: 5 stars   Featured Review

1 person found this review helpful

I found Coping With Laryngomalacia Inc one night as I layed in my bed with an empty bassinet next to me. My daughter was stuck in the NICU with some condition I could not even pronounce! I read stories and asked questions and then asked more questions, there was always someone to answer, even in the middle of the night. My daughter is 15 months now, if it was not for this page I would have lost my sanity. She still struggles with LM everyday, and I am reassured because I know there is a caregiver out there somewhere who is ready and willing to support me in my time of need and I am ready to do the same for them!! Thank you CWL for helping my daughter and I survive LM.

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Rating: 5 stars  

I had no idea where to turn when my 2 week old was diagnosed with an airway defect. I googled his condition and thankfully this organization had answers to my questions and a full support team of mommas that were going through/had gone through the same thing. I thank God for this organization and the support they offer through care packages, online groups and words of hope.

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Rating: 5 stars  

I am so thankful that I found Coping with Laryngomalacia, Inc shortly after my daughter was diagnosed. So much great information and support! They are doing such a great job helping families and spreading awareness!

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Role: General Member of the Public
Rating: 5 stars  

Coping with Laryngomalacia, Inc. was a blessing to me at a time of feeling lost and confused. I found them one day as I searched for answers on LM, answers I was not getting elsewhere including from our pediatrician. Thank you for being there through a very scary time! Thank you for bringing awareness! Thank you for piece of mind!

When was your last experience with this nonprofit?

2015

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Rating: 5 stars  

2 people found this review helpful

I found Coping with Laryngomalacia when my daughter was diagnosed at 6 weeks.... I was lost, confused, scared, and alone because I didn't understand what was going on with my little girl...once I found this group I felt relief...I read other people's stories that sounded very similar to mine...it made me feel like I could talk about my situation and get feed back without feeling like I am constantly repeating myself and people around me getting tired of my story.... We as parents of children with LM know the hardship of the struggle.... We fight hard because fighting hard is all we've got.... Our little ones are considered pintsize powerhouses, well then we as parents are the keeps of the powerhouse who will never stop pushing forward....
Thank You...

Nancy Villanueva, Ogden UT

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Rating: 5 stars  

When I first heard this long and crazy term that I couldn't even pronounce, I immediately began my research and learned how to properly say it while meeting with these various doctors. I came across Coping with Laryngomalaycia and immediately read everything I could on their site and on their Facebook support group. It is amazing to see these people from all over the world going through the same journey you are and not feeling alone. It was even better to hear people from your area recommend the doctor that you are using. When I had questions, I sent a quick email and they were so supportive and responded so promptly. I am so appreciative of the care package they are sending to my son and we will forever represent this organization. Thank you for all you have ALREADY done!

When was your last experience with this nonprofit?

2015

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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My son had severe LM, severe GERD, and severe sleep apnea. If it wasn't for Coping With Laryngomalacia , I'm not sure how I would have dealt with these issues. This organization helped me and my son and our family through a difficult time. Once again Thanks to this wonderful organization.

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Rating: 5 stars  

1 person found this review helpful

I found coping with laryngomalacia while trying to find out what this malacia thing was.. I was feeling lost and hopeless until I found them.. The support and help I got from them was amazing. When my baby was due to have surgery they immediately sent us a wonderful care package, not only for my baby but for me even tho I didn't ask for anything for myself... I would have been lost without Coping with LM!

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Rating: 5 stars  

1 person found this review helpful

This site allowed me to acquire a great deal of information in getting my daughter a diagnosis and a plan of action. Plus it is a great support system for parents and caregivers.

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Rating: 5 stars  

1 person found this review helpful

Five years ago we received a diagnosis I could barely pronounce. CWL has given me support, advice and friendships. I can't thank them all for what they have done for our family.

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