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Coping With Laryngomalacia, Inc

Rating: 4.97 stars   115 reviews 3,601

Nonprofit Issues:

Address:

PO 313 Port Monmouth NJ 07758 USA

Mission:

to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.

Results:

Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!

Target demographics:

families worldwide

Direct beneficiaries per year:

over 1,000 families

Geographic areas served:

Port Monmouth, New Jersey

Programs:

24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!

2015 Top-Rated Nonprofit
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More Info

www.CopingWithLM.org

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Reviews for Coping With Laryngomalacia, Inc

Rating: 5 stars   Featured Review

1 person found this review helpful

I felt so alone once my son was diagnosed with laryngomalacia. I could barely pronounce it, let alone grasp all of the side effects, medications, surgical routes etc that are associated with this airway defect. Coping with Laryngomalacia Inc answered all of my questions, provided a network base that allowed me to connect with other parents in the same situation, and best of all: gave us hope that he would improve and was a strong pint-sized POWERHOUSE!

 
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Role: General Member of the Public
Rating: 5 stars  

I'm a nurse, so I should "get it," right? Well, a medical background gets all but forgotten when it's *your* baby, let me tell you. Finding this group at the beginning of our journey has been a Godsend.

 
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Role: General Member of the Public
Rating: 5 stars  

I had no idea what was wrong with my baby girl and at a month old she stopped breathing, went blue, limp and foaming out of her mouth. I will never forget that moment. We learned she had Laryngomalacia I was terrified and looked every place I could for support I found Coping for Laryngomalacia after the fact and after her surgery but it's been amazing to talk to moms who have been there or be support for someone new going through what we did. This group has been a life saver and I'm so glad I found it. I'm so glad there's a place you can go to vent or tell something exciting or terrifying but you can because these moms know.

 
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Role: General Member of the Public
Rating: 5 stars  

My daughter was diagnosed at birth. We felt so alone and confused until we found Coping with Laryngomalacia Inc. They have helped us so get through some of our most difficult times. I have connected with so many other mommies dealing with LM. The support we've received has been overwhelming!

 
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Rating: 5 stars  

I don't know what we would have done without CWL.
Our son was diagnosed with laryngomalacia at seven weeks old, and we had no idea what to expect. No one we knew had ever heard of it.
Because of CWL, we learned not only what to expect and how to help our son, but how to advocate for his needs. On their page, we found the support we needed to get through this dark period in our lives. Our son - and our family - is thriving because of CWL.

 
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Rating: 4 stars  

This site and group has provided us with lots of information and guidance since our lo was diagnosed.

 
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Rating: 5 stars  

If I didnt find this company I would be lost. My son was diagnosed at birth. It ended up being in the life threatening category so he needed immediate surgery at the age of two weeks old. He is now my 8 1/2 month big boy

 
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Role: General Member of the Public
Rating: 5 stars  

CWL has provided me with so much knowledge and support since my little one was diagnosed with LM. They provide parents with the the feedback they need to take care of our precious gifts. They have truly gave me a piece of mind that I would not have had without them.

 
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Role: General Member of the Public
Rating: 4 stars  

I have found this page and fb page so helpful. My son was diagnosed at 8 weeks and is now 8 months. ♡

 
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Rating: 5 stars  

My daughter was diagnosed at 4 weeks with severe LM. No Dr's here could tell us or help us. They kept telling us to wait to see the ENT. This website has provided so much insight on everything. This was my main source to educate myself and others on LM. We had 2 supras done and she is now thriving. Our journey of LM is not over but I know I have a group of others to support me and understand me. That right there is the most powerful tool I could ever ask for. Thank you Stephanie and all the Coping with LM inc. team for answering so many questions and giving me support through our toughest battles.

 
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