Mission: The mission of the Brain Tumor Foundation for Children is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected.
Results: In the 2012 fiscal year (7/1/11 – 6/30/12), we provided $360,000 in emergency financial assistance for 300 families in the southeast through our Butterfly Fund. Since being established in 2000, this one program has provided over $1.8 million in assistance for hundreds of families – helping with items that include rent and utilities, car payments and repairs, gasoline, treatment-related travel expenses, and much more. We will continue to “Help Families Cope,” as long as needed through this and other programs that are described on our website.
Target demographics: Families of children aged birth through 21 years in the southeast who have brain and spinal cord tumors.
Geographic areas served: Southeast
Programs: The Brain Tumor Foundation for Children provides a financial assistance program (Butterfly Fund) for the families of children treated for the disease at certain hospitals in eight southeastern states (GA, FL, LA, MS, AL, KY, SC, TN); it provides information and education for families; it provides hands-on support to families (mostly in the state of Georgia); it supports research for a cure.
In July 2005 our neighborhood of Decatur, Georgia lost one of our beloved children to pediatric brain cancer. Ian was a bright, vigorous, athletic 15-year old with a passion for skateboarding. After his death, friends and neighbors came together to raise money for the devastated family through a neighborhood festival called SkaterAid. The money we raised that year meant a lot, but the real power of the event was the healing it brought to Ian's family and friends. This year we celebrated our 8th SkaterAid. We continue to donate every dollar to the Brain Tumor Foundation for Children, who uses these funds to pay bills for families struggling with this disease. The people at the BTFC are truly the most caring, wonderful people you could ever hope to meet. SkaterAid is an anuual event, but we are proud to play a part in the work the BTFC does every single day of the year.