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June 2, 2010


June 2, 2010

As the president of the APS Foundation of America, Inc, I would like to share the accomplishments of 2009. Every year we work harder to get awareness out and work on education to the public and medical community. - Maintained 501(c)3 Non Profit Status granted under Section 170, 2055, 2106, 2522. We also were granted an advanced ruling as a Public Charity. - Filed Taxes - Registered to solicit in the states we were required to - Made all brochure & booklets that have bibliographies available – available online - Published quarterly newsletters that are available free to the public on our website – benefited at least 200,000 people - Donated & Mailed Brochures & Booklets –benefited at least 20,000 people - Donated Printed Publications to Public Libraries – Unknown number of people benefited - Invited to several large professional medical conferences. - Networking with other Non-Profit Organizations and medical professionals - Maintained our Webpage –benefiting 76,839 people based on the index page. - Maintained the forum to make it more user friendly – benefiting 183,844 people - Maintained HONCode Certification on APS Foundation of America, Inc. - Maintained HONCode Certification on APS Friends & Support Forum. - Started and maintain several blogs on various servers to get awareness out – benefited at least 200,000 people - Launched press releases – benefited at least 50,000 people - Launched Radio Public Service Announcements – benefited at least 5,000 - Fundraisers - Café Press – approx 400 items sold - Holiday Stuff - Giving Tree – 38 participated - Café Press Collectors Edition – 3 participated - Made Press in 5 different media venues that we are aware of – at least 100,000,000 people benefited - House, MD – “Instant Karma” (original air date: 10/15/09) – benefited at least 16,000,000 people. - Death of Tom Sparks due to APS – picked up by AP Wire - unknown how many people benefited (Picked up on TV, radio, internet, newspapers & social networking sites) - Mystery Diagnosis – “Falling Through the Cracks” (re- aired several times, original air date: 3/6/2006) - unknown how many people benefited - Number of Friends of APSFA: 35 benefited


The Great!

I've personally experienced the results of this organization in...

a great sense of accomplishment in helping others and spreading the word about APS. I have also received advocacy from our Medical Advisers and volunteer Social Worker. I have also made some great friends!

Ways to make it better...

If I had to make changes to this organization, I would...

find more volunteers and professionals willing to step up and donate their services.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

making new friends and knowing I am making a difference in the world regarding APS Awareness and helping APS patients & educating medical personnel.

The kinds of staff and volunteers that I met were...

great and easy to work with.

If this organization had 10 million bucks, it could...

make chapters in every state and be able to afford to attend more conferences.

Ways to make it better...

we had more committed volunteers.

In my opinion, the biggest challenges facing this organization are...

financial. With the economy being tight, donations are lower and makes it hard for us to do what we need to do and attend what we want to attend.

One thing I'd also say is that...

the staff, volunteers, medical advisers, and board of directors are a hard working bunch. I am proud to work with them.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


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  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
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3 hours of volunteer time for this nonprofit will...

help with answering questions on the our support forums. You could also write a more cited technical article for our newsletter that could also be published in various places. You could also write and produce a YouTube video for the APS. You could also attend a conference, set up a booth for us at a session that the APSFA was invited to attend. Volunteer